Hello everyone. I haven't been here for a while, but I got a lot of help from the lovely people here a couple of years ago and felt well for a while, but unfortunately I am back again for more advice. I was diagnosed with an underactive thyroid 5 years ago shortly after my son was born. I was given 50mcg of levo and even though I still had a lot of awful symptoms was told they couldn't be my thyroid and I was depressed and it was all in my head. It took 3 years, about 8 GPs and one cow of an Endocrinologist before I finally managed to get my levo increased. For about a year I was taking 150mcg and felt really well. I could walk for miles, lost over 4 stone, I got a job that I love and my life turned around. I still had a few symptoms, some brain fog and occasional lethargy and depression, but generally I felt great.
Then a year ago I started to feel underactive again. I was tested and my T4 was low. My GP increased my dose to 175 and my T4 went too high, not dramatically, but enough for me to get hyper symptoms. I decreased to 167.5 and it was still too high. Back down to 150 and my T4 was high again. Down to 125 and it has dropped right down and I am back to feeling exhausted all the time. My TSH has barely moved throughout all those changes. I take my medication first thing in the morning on an empty stomach and don't eat until an hour after, so I don't think it is an absorption problem. I also make sure I always have the same brand of levo.
Does anyone have any idea what could be causing these fluctuations? I have been tested a couple of times for antibodies and they have come back negative, so I don't have hashimoto's.