I posted recently because my endo has asked me to stop my Levo prior to my 1st appointment with him as he thinks, because I am borderline I may not need it.
As luck would have it, from me complaining to the GP that I felt worse on Thyroxine than before I started it, to the time I got the endo's letter a miracle happened...I started to feel OK! From being someone who hated taking every single Levo tablet I now wanted to keep it!! My temperature had always been approx 34.5 but is now normally in the high 35s-low 36s.
I wrote to the endo telling him that I would prefer not to stop it, especially since I had been told that Thyroxine slowed down the antibody's attack on the Thyroid. (I have massive antibody levels which have reduced significantly but are still v.high)
I have received his reply today. He has told me if I continue to take the Levo I am wasting both my time and his. He says antibody levels are like high cholesterol or high blood pressure in that they indicate that a person may be at risk of having a Thyroid problem in the future but not whether they have one at the moment.
He goes on to say he can't evaluate the reason I am not feeling perfect if it is not clear that medication is necessary in the first place and that many people are started on Thyroxine without good reason and this can cause people to feel poorly.
I feel absolutely crushed and don't know what to do. Nothing in the world would give me greater pleasure than not having a Thyroid problem but as far as I am concerned, I have. The symptoms that have improved are constipation (but that could be due to me being gluten free) and just recently my mood swings/depression seem to have gone too-thank God but I still have massive problems with my weight, hair, skin, libido and temperature intolerance.
My latest blood results from March 2014 were:
TSH 0.33 (0.4-4)
free T4 17.8 (9-25)
free T3 3.7 (2.8 -7.5)
TPO Antibodies 1170 (they were originally 1600)
Please, please can anyone give me some advice? He wants me to do without Levo for 6 weeks but I am really scared about this. Firstly, from an antibody point of view, but also I am so worried in case my hair suffers even more
Thanks very much x