Am being treated at St Mary's by Prof. R for past three months after urgent rerferral for hyperthyriod. On carbimazole 20mg daily & 40mg propranolol x 3 daily, on month 3 now. Was advised that I would feel "a lot worse before feeling better" & he was completely right, feeling worse every day! Will see him again next week & am trying to formulate what questions to ask ...Got a copy of last months blood tests today which show:
TSH @ L0.01 (not surprising),
Free T3 H @ 5.9,
Free T4 @ 18.4
Thyroid peroxidase Ab H @ 134
TSH Receptor Ab H @ 4.0
So, I think, the presence of these antibodies indicate some kind of autoimmune disorder. Hashi? Graves? The results look contradictory: but slightly misleading as the thyroid function (TSH) is blocked by the carbimazole.
Can anyone suggest useful questions to ask Prof R at my next appointment? Any further tests? And then what happens? The research I've done doesn't suggest any clear way forward. Am changing my diet from today (whole foods, gluten free), eliminating as much stress (bad relationships, work & housing) and start exercising again (which I was told to stop 3 months ago when I was passing out & was hyperthyriod ) it is hard since I get very short of breath very quickly & the heart, muscle & joint pain come on very quickly & lingers. Have gained a lot of weight in a short time, despite eating less & miss the daily discipline of my yoga practice.
I accept now the changes going on in my body & am grateful that the hyper stuff was sorted before anything more serious developed but is there light at the end of the tunnel? Feel like I'm too young to feel this old, will my strength return, will I be able to climb stairs, carry shopping without having to stop to breathe? Worse of all tho is how this has affected my fertility. We have tried for years, struggled, miscarried & grieved & now am too old. Can't help but feel if I were diagnosed earlier things may have turned out differently ......
Any advice would be most gratefully received.