Hi my name is Laura. I'm 27 and was first diagnosed with Graves Disease in February 2012. My T4 was at 77 and my TSH was barely traceable! After 18 months on Carbimazole I came off and went into remission for 6 months until I took a turn for the worst n became overactive again in Feb 2014. I have been back on Carbimazole since and generally feel fine apart from feeling tired ever so often and having bad mood swings and swollen eyes.
However I am constantly feeling the pressure to make a decision about definitive treatment. Do I have definitive treatment or don't i? Do I stay on Carbimazole long term or do I try and come off it to see if I go into remission and then take definitive treatment if it doesn't work for a second time? I am getting myself in such a state worrying about what to do and what is best for me for someone of my age who is looking to have children in the next few years and getting married in a year from now.
I'm so scared of what could lie ahead if I go for definitive treatment and become hypothyroid but I also understand the complications of being on Carbimazole whilst pregnant.
I feel so lost, scared and exhausted trying to make this decision and would really appreciate any help or advice people can give. I don't feel like the endos can give me the answers I need as everyones experience is so different.