Does anyone know of a doctor in the East Midlan... - Thyroid UK

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Does anyone know of a doctor in the East Midlands that prescribes Nature-Throid?

Ivvy profile image
Ivvy
6 Replies

I'm really hoping someone can help me with this. I've been taking 100 mcg Levothyroxine & 20 mcg Liothyronine for 15 years, and to be honest, I still feel terrible. I've gained a load of weight, tired all the time, and my hair is falling out. I've been doing a lot of research on Nature Throid, and I've asked two doctors if they would put me on it, only to be told no. My MP is now looking into this matter as I can't afford to buy it myself, and I know there must be GPs that are wiling to prescribe it. Can anyone tell me if there are doctors in the East Midlands that do?

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Ivvy profile image
Ivvy
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6 Replies
lisabax profile image
lisabax

Sorry I can't answer your question but I'm sure others will come along who can help. But it does occur to me that there may be other things going on. I am also on T4 and T3 and after a few years started getting a worsening of symptoms. I've been investigating and have found a private doctor from the TUK list, and I have adrenal insufficiency and gut problems which until sorted, he says, won't make me respond to NDT any better than T4 and T3. Have you had the usual tests from your GP for B12, vit D, ferritin, folate etc? Have you got your latest thyroid blood results you can post on the site for others to comment? This will help others to be able to respond. LB

marram profile image
marram

I think it sounds as if the T4 is not really doing anything much, you might benefit from reducing it because you may have a problem with converting the T4 to T3.

Also you really could do with checking you Iron/Ferritin/Folate/Vit D/B12. low levels of these could not only give you similar symptoms to hypo but also can prevent conversion.

I know some people quite comfortably take 100mcg Levo and 20mcg T3, but it may be too much for you. It would give you a clue if you were to reduce the T4 down to 75 for a week or so to see how you feel, if it makes you feel a bit better, chances are that the T4 has been 'pooling' in your system which from my own personal experience makes you feel pretty bad.

Even though I have NO thyroid. I cut my T4 to 75 and within a few days I started to feel more alert, pain was reducing, and although I was only taking a tiny bit of T3 (12.5mcg daily) it made a huge difference to me.

Eventually with support from Dr BDP I weaned myself off the T4 and went to T3-only. Apart from a bit of a blip due to an unrelated problem, I have never looked back. I also had Adrenal problems, which have gradually resolved - again with help from Dr BDP - with the use of Nutri Adrenal.

It is very common after a long time on Levo that the body has just had enough of all the hard work it has been doing and the Levo just stops being effective. Of course, some people never get on with it in the first place.

If it's a conversion problem, NDT will not help, it is still mainly T4.

rosetrees profile image
rosetrees

Take a look at thyroid-s. It's a fraction of the price. If you want a source, send me a PM.

Chippysue profile image
Chippysue

Ivvy, I wouldn't give up on levo and t3 just yet. Let us know what your free t3 and free t4 were. Ideally your free t4 will be a the top or just above the top of the lab range and your free t3 will be towards the top of the lab range.

If this is not the case then there is room for improvement.

Also is your B12 above 500? Is your ferritin, folate and vitamin D at optimum levels? If not then symptoms of deficiencies in these are similar to hypothyroid symptoms, especially hair loss. My hair has stopped falling out since supplementing with sublingual B12 for example.

My MP also looked into Doctors prescribing NDT and I have a copy of the letter from the House of Commons saying that Doctors CAN prescribe it if they take responsibility. Which means that most doctors will not, mainly because they don't know anything about NDT.

The other reason why I wouldn't jump to another medication at this point is that you will more than likely find it difficult to have T3 prescribed again if you stop it. There are many people who are unable to have T3 prescribed.

Also please don't self medicate, we want you to improve your health, not risk making it worse.

Sue

thyroiduk.org

carolr profile image
carolr

These people come and go.

Have a look for homeopathic doctors I think your half way there.

They maybe more sympathetic.

Carol

carolr profile image
carolr

These people come and go.

Have a look for homeopathic doctors I think your half way there.

They maybe more sympathetic.

Carol

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