I apologise in advance for the length of this post!
In 2003 I hade a human heart valve replacement for a congenital valve defect (not sure if this is relevant).
In 2012 I had a 3 1/2 gland parathyroidectomy and an unscheduled partial thyroidectomy.
The surgeon came to see me the morning after my operation to inform me that he had to take away half my thyroid as it was "dead", (the remaining half has a goitre and multiple nodules), he said he was amazed I didn't have any thyroid symptoms. Anyway, this is when all my problems began.
I have felt very unwell every day since my operation. Initially I wasn't presribed any thyroid medication and it was only through sheer persistance and two endocrinologists that I was finally prescribed 100mcg thyroxine, no change in symptoms. I will list my lab results below and all variety of medication and doses I have been prescribed:
Prior to any medication:
TSH -= 2.55 (0.27-4.20)
FT4 = 15.7 (12.0 - 22.0)
FT3 = 4.5 (3.9-6.7)
TSH = <0.02 (0.27-4.20)
FT4 26.2 (12.0-22.0)
FT3 5.9(3.9-6.7) NO HYPER SYMPTOMS STILL VERY HYPO
TSH = 0.89 (0.27 - 4.20)
FT4 19.5 (12.0-22,0)
FT3 4.5 (3.9-6.7)
Still no inprovement, so spent my hard earned cash going private to try Armour as I could not find anyone to precribe Armour on the NHS.
Eventually on 90mg Armour
TSH 0.06 (0.27-4.20)
FT4 14.3 (12.0-22.0)
FT3 4.5 (3.9-6.7)
I still have no improvement in my symptoms and have just been changed to 50mcg of Thyroxine.
My question is what is causing my persistnely very low in range FT4 and FT3 but suppressed TSH?
I paid to have a 24hr saliva cortisol test which was high on all four samples, is this relevant.
I have every single hypo symptom which are gradully getting worse, the most worrying are the constant lighheadednes, chronic fatigue, air hunger and painful joints and muscles.
I am really desperate to get my life back after 3 years of existing rather than living.
Any suggestions of what my next step shoudl be?
edited to remove yards of line breaks, Clutter