Major fed up!!!

Hi all, have been experiencing episodes of sinus tachycardia, all docs have been useless, no one has suggested testing for T3 or vitamin levels, I was not aware of these tests until recently...have been to A&E and recently had to have an ambulance, I have no thyroid at all! am on 125mcg levothyroxine...these episodes come on at work...I then Have to take the next shift off...am also off work as I now have shingles...have asked my oncologist if my bloods can be tested again!! No reply as yet...I know I should go bk to doctors but you can't get an appointment very quickly!!! Am awaiting 24ecg which has only recently been suggested, any help/advice please

[Clutter]

Are you seeing the oncologist because you had thyroid cancer? How long ago did you have thyroidectomy? Can you post your last thyroid function blood results with lab ref ranges?

[Hidden]

Hi..yes see oncologist once a year, each time I tell her how rubbish I feel!! Had thyroid removed 10years ago..TSH reads 1.18. And FT4 20.6, I generally get told my readings are fine!

[Clutter in reply to Hidden]

Ah, I was wondering why your TSH wasn't suppressed, that explains, thank you.

Your results do look fine but as long as you've still got symptoms they aren't optimal. An increase to 150mcg might help but I suspect your FT3 is low and you probably need some T3. Thyroidless people don't always do well on Levothyroxine only and the addition of T3 can make a big difference. eje-online.org/content/161/...

Deficient or low ferritin, vitamin D, B12 and folate can cause tachychardia and shortness of breath and symptoms very similar to hypo symptoms. Ask your GP to test and have a thyroid function test at the same time.

[Hidden]

Thank you very much for your help, much appreciated!

[Clutter in reply to Hidden]

Sesbo,

Labs often refuse to test FT3 unless TSH is suppressed. You can order a private FT3 test from Blue Horizon or Genova via thyroiduk.org

If your oncologist won't prescribe T3 it is available without prescription on the internet if you are confident to self medicate. I think you should await the results of your ambulatory ecgs before self-medicating though.

[Hidden]

Thank you again! I have written all that down

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MMmm...scary thought!!! Would explain why I feel so rubbish most of the time???

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Blood test results as above just for T4 20.6 and TSH 1.18

[CharlS28]

I have inapropriate sinus tachycardia however I have Graves and mine started when I became hyper rather than hypo. I have had extensive scans done and apparently there is nothing wrong with my heart at all. I have been informed by my cardiologist that it is not a dangerous condition & to excercise which has been helping. They can remove the sinus but often this will then mean the heart is extremely slow so they don't recommend it.

I know this probably isn't much help to you but just wanted to share as I found as soon as I stopped thinking and panicking about it all the time I didn't notice it as much and manage to just live with it.

[Hidden in reply to CharlS28]

Hello, thank you so very much for your kind words...today is a bad day, my heart rate high on waking, still going mad, am awaiting consultants phone call...am getting very distressed about all this and lack of interest from docs, so I do appreciate your kindness, I hope too that you are coping well.

[CharlS28 in reply to Hidden]

It is terrifying, I used to wake in the night with my heart racing and was convinced I was going to die. I had a long battle with my GP to get me in to see a Cardiologist and when I finally did he was great, I had loads of tests and scans to rule everything out. I have my fingers crossed for you that you can see someone soon and put your mind at rest. x