Does anyone know a Private Endocrinologist in Yorkshire who is willing to treat with NDT or T3? Thanks so much.Please private message me.

[Jabulani]

[Clutter]

Jabulani,

email [e-mail] for her list of endos who will treat with NDT.and T3.

[Jabulani in reply to Clutter]

Thanks Clutter

[Popeye27]

My Endo in Bradford prescribes T3 for me...it was a struggle but I persuaded him...he doesn't know much about Graves' disease though...he said a fortnight ago that because my thyroid was removed my antibodies have nothing to attack....I put him right though...my eyes are still been attacked ...along with the rest of my body...TRAB and TPO still high , just been tested ,shame that we have to educate our overpaid Endos...

[Hidden in reply to Popeye27]

Hi popeye, I also have Graves but no nothing about the antibodies.Are TRAB and TPO the ones that are raised with Graves then? All I was told was that I had Graves antibodies.I asked if they were high and just told you either have them or you font and you have!

[Popeye27 in reply to Hidden]

TRAB are graves........TPO shows you have inflammation caused by antibodies...some websites say it shows Hashi's.....so I'm not certain about the TPO....but in The UK usually they only test TPO...why I'll never know.....I go on top Us sites. ...they do lots more reseach...I've joined about 20 support groups..I speak to people all over the world ...it's awesome...

[Hidden in reply to Popeye27]

Thanks Popeye

[Clutter in reply to Hidden]

Thyroid Receptor antibodies (TRab) is Graves, Pippin, and Thyroid Peroxidase antibodies (TPOab) is Hashimoto's. I think it's unusual to have both but it does happen. I know Graves can attack other organs after thyroidectomy/RAI but thought Hashi's went dormant without a thyroid to attack but am wondering if that is the case in this post healthunlocked.com/thyroidu.......

[Hidden in reply to Clutter]

Thanks clutter

[helvella Administrator in reply to Clutter]

Actually, Clutter, I don't think it at all unusual.

Antithyroid Antibodies

Determination of antibody titers provides supporting evidence for Graves’ disease. More than 95% of patients have positive assays for TPO (microsomal antigen), and about 50% have positive anti-thyroglobulin antibody assays. In thyroiditis the prevalence of positive TG antibody assays is higher. Positive assays prove that autoimmunity is present, but they do not prove thyrotoxicosis. However, patients with causes of thyrotoxicosis other than Graves’ disease usually have negative assays. During therapy with antithyroid drugs the titers characteristically go down, and this change persists during remission. Titers tend to become more elevated after RAI treatment.

Antibodies to TSH-Receptor

Thyrotrophin receptor antibody assays (TRAb) have become readily available, and a positive result strongly supports the diagnosis of Graves’ disease(11.1). Determination of TRAb is not required for the diagnosis, but the implied specificity of a positive test provides security in diagnosis, and for this reason the assay is now widely used. The assay is valuable as another supporting fact in establishing the cause of exophthalmos, in the absence of thyrotoxicosis, and high maternal levels predict fetal or neonatal thyrotoxicosis. Measurement of TRAb (TSH-R binding antibodies), any antibody that binds to the TSH-R, is generally available.Assays for Thyroid Stimulating Antibodies (TSAb,TSI) are less available, but are more specific for the diagnosis. Using current tests, both are positive in about 90% of patients with Graves disease who are thyrotoxic. “Second generation” assays becoming available use monoclonal anti-TSH-R antibodies and biosynthetic TSH-R in coated tube assays, are reported to reach 99% specificity and sensitivity(11.11,11.12,16). Although rarely required, serial assays are of interest in following a patient’s course during antithyroid drug therapy, and a decrease predicts probable remission(11.2).

thyroidmanager.org/chapter/...

Rod

[Clutter in reply to Popeye27]

Popeye,

Do you think this poster may have Graves and Hashimoto's causing her TSH to swing after thyroidectomy? healthunlocked.com/thyroidu.......

[Popeye27 in reply to Clutter]

She may have both...my TT was a year ago...my latest blood tests showed both tests as high...my Endo stupidity said 'oh that's no problem now that your thyroid has been removed they have nothing to attack '. !!!...I said ' oh...is that so....LOOK at my eyes you fool...they are far worse...so is my health....he gave me more T3... Although he said my test results were 'normal nothing to worry about'. .....IDIOT...I was very hypo...good job I know how to read my results....xxx Graves Disease Warrior ((( hugs ))) xxx

[stephensmith]

Endo at Harrogate. Louise has details