Can you insist on a pituitary test when your steroid levels are low but you haven't got Addison's?

[Holcamjoe1]

My 9 yr old daughter is ill on a daily basis with adrenal insufficiency symptoms but nobody will do anything for her because she hasn't got Addisons, I'm at my wits end, she has sickness dizziness neck pain chest pain headache abdominal pain always feels tired cold condition worsens during exercise and after illness but endocrine insist there is nothing wrong even though her blood steroids are low.

[shaws Administrator]

I think it is beyond belief that there is no-one who can help your very young daughter.

Can your doctor refer her to Great Ormond Street Hospital for Children? These are details of how to get referred.

gosh.nhs.uk/parents-and-vis...

This is another link and the symptoms sound similar to your daughter's.

netdoctor.co.uk/diseases/fa...