Hello everyone. I have written most of this on a thread in reply to someone else newly diagnosed (cobbles), but I thought I should put my own thread up instead of usurping hers.
I went to the doctor 3 weeks ago, with chronic indigestion, to be given a blood test and found I've got hypothyroidism. My blood tests were:
TSH 240 (0.55-4.78)
Free T4 2.1 (11.5-22.7)
Free T3 1.5 (3.5-6.5)
When I looked it up, I found I had all the symptoms but they had all been hidden by my medical history of allergies, asthma and alopecia. I am British and live in Slovenia, and count myself lucky they are so on the ball here (they routinely test all three hormones, for a start!). I was sent to the endocrinologist the next day, and put on 25mg for 2 weeks, then 50mg for 2 weeks, then 75mg until I go back to the specialist in June. My own GP has asked for another blood test at around 3 weeks - that'll be the middle of this week.
The initial relief at having a diagnosis that explained all my vague and quite general symptoms gave way to an awareness of how very ill I was feeling. Both my own doctor and the endocrinologist impressed on me that although I would get better my results were very bad and I must rest - no physical exercise, in particular. I'm someone who takes regular exercise and in fact 2 days before my diagnosis I had ridden 22km (about 15 miles) on my new bike! I had to stop and rest on the way home and my husband came back to look for me - oh, I'm not very fit yet, I said! Knowing what I know now, I'm amazed I didn't collapse.
The first few days were ghastly - I felt so very ill and I was also terrified that because it had been left to get so bad - neither my doctor's nor my fault, my symptoms were so well disguised as other things - I had done some permanent damage. This still scares me in the black holes of the night - my digestive system was going so slowly it had practically stopped, and although it is better it's still not normal. On the other hand, some symptoms like my incredibly dry skin, which I'd put down to being just post-menopause, have already started to improve. Oh, I should say I'm 6 days in to the 50mg dose, 3 weeks post-diagnosis. I do already feel very considerably better than I did 2 weeks ago, but I am very up and down - I had a few bad days last week, because I think my body wanted a higher dose at around 10 days, but I waited the full 2 weeks as told. After 4 days at 50mg I felt much better so I assume the 50mg is starting to kick in - roll on 75mg!
I've done a lot of reading and have been appalled at all the horror stories on the internet from women who have been struggling to get a diagnosis for years, whose doctors won't even do proper testing. But then I realised that most people who write on forums by definition are having a bad time. At the moment, what I need to do is rest, get better, get some thyroxine back into my system, and then see where I'm at. I'm experiencing a lot of strange twinges and tingles which I assume at the moment is my body slowly waking up again (I now know what the zombie apocalypse is about - that cold, doughy, dead feeling in my body which I hadn't noticed because it happened so slowly! It feels amazing to be getting all my bits back and feeling warm to the edges!) - the answer to that, I think, is patience. There will be time for other checks if necessary when my blood tests are nearer normal.
Please don't reply with scary stuff! I am scared enough already. I would really like to hear that many people do get better...