Apologies in advance; this is going to be a bit long-winded and only tangentially related to my Hashi's.
I went to my dentist last year with an oddly inflamed upper lip. Inside my lip was sticking to my gums and it was a bit sort of chafed like your skin would be elsewhere if it was rubbing. I found myself pushing it with my tongue to release it and had to drink a lot of water at bedtime when it seemed to be at its worst. On two occasions it swelled up for no apparent reason.
It was like this for about a month and in conjunction with a gynae issue (basically among other things I was getting the gynae version of what was going on in my mouth and no one seemed to know what it was) I thought I should at least ask if the dentist had any ideas.
Dentist suggested Sjogren's and suggested a referral. Because she's private, it cost £65 to be referred to a metropolitan teaching hospital even though it was an nhs referral. In the referral dentist mentioned possible Sjogren's.
I had the appt and the consultant wrote back to her that he was testing, among other things, anti-Ro/SSA and anti-La/SSB. It took over a month and lots of phone calls before they sent the results and it seemed that the Sjogren's issue was laid to rest. Phew, glad that's out of the way, etc.
Now I'm looking at all my blood tests from the last year in preparation to start seeing a new doctor. Mainly I don't want the doc to duplicate any tests I've already had or retread any territory which has already been excluded. I can't find the anti-Ro/anti-La to exclude Sjogren's (or I know that's not how it works but at least to indicate that the tests were negative). Dentist sends me email copies of all results from the consultant. Tests not there.
If I'm 100% honest I'd do anything to avoid getting in touch with this consultant. He is held securely behind so many locked doors that it would drive you mental just trying to get in touch with the secretary. They are completely unhelpful and I feel I've done my time with them already.
Having said that, I do feel that the dentist should finish what they started. Now I'm trying to chivvy along the dentist to find out where the missing test results are and if they were even done in the first place. Dentist's receptionist is saying, 'Hmm, we have rung and consultant needs everything in writing (on paper, not email), you might as well just write and ask for them yourself.' She estimates it may take longer than three months to get any reply from the consultant - ??????
So the brass tacks are:
1) Please tell me who should be doing the dirty work here and don't tell me it's me. Why didn't the dentist note the absence of tests for the very thing she sent me there for? Or did the results come in and were misplaced?
2) What can I do to lay claim to my test results? How is it fair that it may take three months to get them? And everyone is holding their hands up?
3) Any ideas how I can get this done and remain friends with the dentist? I can't bear to alienate them and have to find another dentist.
I'm so cross about this I'm sure it's taking days off my life. xx