Vitamin D not linked to calcium dip post thyroidectomy...

[Clutter]

dailyrx.com/vitamin-d-level...

[LouiseRoberts]

Thanks for posting...

L

x

[deniD]

After tt In 2007 l found adcal had been added to my repeat prescription, despite loosing 2 parathyroid glands and been on a calcium drip after surgery l wasn't spoke to regarding the adcal, my gp could not find in my notes why I had been prescribed adcal so it was removed....... I now have severe vutamin d deficiency at <7.5 and low calcium, Coincidence?

[Clutter in reply to deniD]

It's common to have a calcium dip blip after TT but it usually rights itself within days, as in my case. Parathyroids may have been touched or something during thyroid surgery. I was prescribed calcium but didn't go back to the hospital to collect it as I was too fatigued for the long journey and a subsequent blood test showed calcium as fine.

Parathyroidectomy is a different thing and calcium should be monitored.

I think your GP surgery was negligent. They could have checked with the endo or specialist who originally prescribed adcal for the why and wherefore, or they could have done a vitD and calcium blood test before stopping the prescription.

I was vitD <10 in November and a loading dose 40,000iu daily for a week and 2 months 2,000iu daily have brought it up to 116. I feel a lot better for it too.

[deniD]

That's reassuring you feel better !!! How long did it take? The gp just looked through computer and couldnt see anything do removed the adcal from my prescription! It was almost 7 years ago....I remember when I left hospital I was given tablets to put in water for a few days , my vitamin d is < 7.5 I've been given cholecalciferol 20000u three. Times a week for 3 months..... I've had calcium checked a few year ago was told it was fine... As far as I'm aware never had vitamin d checked ever! X

[Clutter in reply to deniD]

I don't think I had until I blagged trainee GP into testing vitD, ferritin, B12 & folate.

Skin plumped out & colour improved after about 4 weeks, felt better after about 6 weeks, particularly mood which improved massively. Stopped having hissy fits and smashing things

I haven't had vitD or B12 since 20 Jan. Had leg cramps and knee & hip joint pain so awaiting delivery of vitD and taken 2000mcg B12 which arrived this morning (cross I selected expensive delivery option in error, grrr).

[deniD]

Oh good for you! I got done bloods done cos l knew l wasn't right!! Best money I've spent!!! My b12 etc were in range lower end though 279 range 191/613

Folate 5.2 range 4.6/18.7

Iron 19.0 range 11.0/32.0

Ferritin 59.5 range 13/150

I'm just learning bout vit d so the rest I know little of and wouldn't if even knew bout vitamin d if it wasn't for this site! X

[Clutter in reply to deniD]

B12 should be high in range. I'd recommend Jarrow's sublingual methylcobalamin.

Ferritin & iron could be higher. Spatone in fruit juice plus 500mg/1000mg vitC are good for this.

I got vitC from Asda and B12 from Amazon. Spatone is widely available and also on Amazon.

[deniD]

I wonder why docs dint realize this? I'm wondering if l should wait abit longer before adding other things? I'm feeling sorry fir these who can't buy these extra things to feel better ! It's a disgrace! X

[Clutter]

It's a good idea to interval supplements, mainly so you can determine the culprit if you have adverse effects except for iron + vitC, magnesium + zinc and if you haven't been tested B12 + Folic Acid.

[deniD]

Thanks think be good idea!! Folate was 5.2 range 4.6/18.7.... I'm really surprised at the big difference between bottom of range and top of range!!! X

[Clutter in reply to deniD]

Yes, no wonder so many people feel unwell when they're bumping along the bottom.

I think you can get a B complex + B12 +folate all in one on Amazon but not sure the B12 element will raise you much. If you get magnesium don't get oxide (which I got) it's hard to absorb, try citrate and make sure to take zinc with it.

[deniD]

I don't know what my magnesium is at it wasn't tested! X

[Clutter]

Nor mine, but it is likely that we're all mag deficient thanks to depletion in soil. Serum isn't a good measure & metabolic testing is expensive. If you over medicate you'll get diarrhoea, a good enough guide for me!

This is a very good thread re vits and minerals and if you scroll down to near the end I posted something on magnesium and zinc healthunlocked.com/thyroidu...