Been taking 50 mcg thyroxine since September. ... - Thyroid UK

Thyroid UK

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Been taking 50 mcg thyroxine since September. Bloods apparently now normal (oct) retest). Still have joint,bone pain and fatigue but last

Thyr0id profile image
6 Replies

Two weeks overheating especially at night. Am nearly 60. Only feel 60 per cent better. Comments, encouragement welcome. Thank you.

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Thyr0id
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6 Replies
puncturedbicycle profile image
puncturedbicycle

Well, my first thoughts are 1) that is a bit soon for a retest and 2) if you post your actual test results with ranges someone here will interpret them.

I only felt about 30% better on an 'ideal' dose of levo! You may very well need a higher dose but you won't know that unless you have your test results and many GPs will not recognise it.

Oh, and have you been tested for vit d? Deficiency can cause bone pain.

You have my sympathies though. I know what it's like. :-)

shaws profile image
shawsAdministrator

50mcg of levo is a starting dose and should have been increased (my personal view).

As puncturedbicycle says, get a print-out of your latest thyroid gland blood test results, with the ranges, (always get one for your own records) and post them for members to comment upon them.

Forget 'normal'. What's normal for you may not be for me and vice versa. If you haven't had a blood test for Vitamin B12, Vit D, iron., ferritin and folate ask for these to be done as well. Go to the date June 8, 2001 on this archived link to read (some links within may not work) and there are also more topics at the top of the page. Unfortunately, we have to read and learn about the thyroid gland in order for us to get better if the doctor doesn't know too much except go by the TSH result.

web.archive.org/web/2010103...

crimple profile image
crimple

Have you had a test for thyroid antibodies? I am hypo and suffered overheating at night before antibodies test was done and showed me well above range.

in reply to crimple

I am sleeping under a 4.5 tog duvet - and am frequently still too hot in bed. This is not normal. How did your antibodies and overheating come together? And what did you do about it?

Thyr0id profile image
Thyr0id

Thank you. Doc is lovely but he point blank refuses to give printout of results. He knows is know I am entitled, bit I have been reluctant to get cross. The receptionist has been well primed to say no too. I am going back next week. Doc's reason not to increase Levi even slightly was "risk of side effects". Have read Dr Toft and aspire to feeling 100 per cent. Thank you

puncturedbicycle profile image
puncturedbicycle in reply to Thyr0id

He may be nice to you in other ways (which we can't discount having experience with the ones who are overtly rude) but refusing to give you your test results means that he is less lovely than he'd like you to think.

Have you thought about writing a letter to the practice manager? At least then you can keep it simple and to the point and you don't have to have a face-to-face about it. Doc's refusal is uncooperative and out of order and apparently he knows it. If he will not treat you to bring you back to full health you may need a different doc.

I understand why you do not want a confrontation - I have been there myself - but by refusing you he is forcing you into a corner.

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