LBC has been talking about T3 and cost

[shaws]

If anyone wants to phone or email LBC about this the number is 0345 60 60 973 and, of course, it is primarily about the cost but not about its purpose or withdrawal- this is text number 84850. You can email the presenter, at present Nick Ferrari. Being mindful that the presenter isn't aware what the purpose of it is. He found it difficult to pronounce liothyronine but that's not unusual,

[marigold22]

Apologies, but what is LBC ?

[Cooper27 in reply to marigold22]

It's a radio station based in London - you can listen via the LBC app or online.

[shaws Administrator in reply to Cooper27]

I think it has now extended it listening base but you can also listen on mobile:

lbc.co.uk/radio/how-to-list...

[shaws Administrator in reply to marigold22]

It is short for London's Biggest Conversation but I know it has extended it's listening area but not sure how far it extends.

[Cooper27 in reply to shaws]

Oh I thought it was "Leading Britain's Conversation" - maybe they changed names but kept the acronym when it went online?

[Silverlady5]

I saw something on news at ten last last night about liothyronine but wasn't paying full attention at the time. Are Concordia finally being taken to task over their extortionate charge for it?

[Cooper27 in reply to Silverlady5]

in.reuters.com/article/us-b...

They have been found in breach of competition laws, and face a large fine for it.

[shaws Administrator in reply to Cooper27]

I really dislike this phrase:-

"The NHS advised in July that the drug should not be routinely prescribed due to its significant costs and limited evidence that it was preferable to an alternative."

The NHS really do not like this to be prescribed despite many on this forum having a symptom-free life with it. So, in reality, it was a p-e-r-f-e-c-t excuse to withdraw it all together. Being mindful that there is another T3 plus a lactose free one available but as far as I know aren't licenced so could only be prescribed on a named-patient basis which doctors wont do.

They also withdrew it instantly without giving their T3 patients advance notice so many had to go cold-turkey and desperate search for replacements and not permitting the cheaper T3s to be prescribed. What kind of 'care' is this for those who don't recover on levothyroxine and being 'forced' into taking it or not. Many cannot afford to source outside of the NHS as they may be unable to work.

[Tanya-B]

It was on the BBC news yesterday They didn't say it was T 3 just a thyroid medication and that the cost had gone up 600% and that company is Concordia who had the monopoly on it. They are talking about fining the company.

You can google it.

[marigold22 in reply to Tanya-B]

The cost had risen 6,000% not 600%. They called it Liothyronine, which is T3, but didn't say it was also called T3. Concordia have been found provisionally to be guilty but the confirmation is coming sometime within the next week I think

[shaws Administrator in reply to Tanya-B]

Most of the reporters couldn't pronounce liothyronine properly so just said thyroid medication.

Not one person, outside of hypothyroidism, is aware that there are two thyroid hormones, i.e. levothyroxine (T4) and liothyronine (T3) - T3 being the only active hormone required in all of our receptor cells

[Tanya-B in reply to shaws]

I struggle to pronounce it 😩

[Silverlady5]

This surely has to be good news for all that are struggling to lead a normal life without the awful symptoms of bad conversion of t4 to t3. Thank you for your replies

[shaws Administrator in reply to Silverlady5]

How many people who don't have internet connection have daily struggles for years and years and always being told it is nothing to do with hypothyroidism as your results are in range and are normal.!