Hi everyone , I have hashimotos and having problems when I take thyroxine and even tried t3 and still the same .

[Connor10]

I keep getting pain on the left side of my head towards the top , has anyone got an idea of what could be causing it .im wondering if it could be a problem with the pitutuary gland ,when I came off the tablets the pain went away ,any advice would be great Thankyou

[angelharley]

I also have Hashi's and T3 gave me awful headaches every day. Levo made me feel lathargic, tired and piled on the pounds. I've now been on Nature Throid for 6 mths and have lost 2 stone and feel loads better. I think I need to reduce the amount as I had a blood test last week and the Dr said I need to reduce my meds. He stll thinks I'm on Levo...need to puck up the courage and tell him I've changed to NDT.

[Banjogirl in reply to angelharley]

Hi angelharley. Just saw yr post. If you feel well and not hyper dont reduce your meds ! Yr tsh will be 0.0 -- approx I bet, with a high ft3 reading. This is normal when taking meds containing t3. Tell yr doc how well you feel. Dont be persuaded to change. You have the right to look after your own health.

[Jackie in reply to angelharley]

Hi See my answer on the main question. Also with armour do make sure your T4 and FT3 level are still OK.,in range.

Best wishes,

Jackie

[Aurealis]

The pituitary gland is central I believe and has no nerve endings so don't think it can cause pain. I sometimes have a feeling of pressure in my head following increase in dose or too high a dose - I don't think its blood pressure, sorry I can't help

[Jackie]

Hi it is not near the Pituitary gland. In any case this always shows, initially by low tSH. When you took T3 what was your FT3 level? it could either have been too high in range for you or over range. if not, then you feel you need some. Start taking just 5 mg. a day for the first week, what ever dose prescribed. gradually go up to the prescribed dose. This often stops side effecgs. Also once on the full dose, 4-6 weeks later you need tSH, T4 and FT3 done again, as you may need to reduce the t4, levo?

Best wishes,

Jackie

[marmaris in reply to Jackie]

Hi Jackie I'm still not feeling any better on Levo 100mcgs and T3 cynomel 12.5. Feel I have got nowhere after 19 years.

[Jackie in reply to marmaris]

Hi,You are on a very low dose of t3.What are your TSH T4 and FT3? +vital ranges? Are you under an endo?It certainly sounds like thyroid,however never safe to just assume it is,. If endo and bloods do no suggest anything, it would be safer to see your GP with a view of having a referral to a specialist in ENT or even maybe a neurologist. if it is bad enough to really bother you, it is important to find the cause.Only you can decide that,but it sounds to me that the first thing to rule out is the thyroid.if not under a good Eno, find one, and then ask for a referral. their specialty is the widest of any consultant. but it does need to be someone good.A lot of us, me too, need our T4 in top third of range but FT3 near the top of range, never over.

I hope that is some help.

Best wishes,

Jackie

migraine has varied presentations, and is autoimmune and hormonal too.

[marmaris in reply to Jackie]

My latest T3 was around 6 in top range, yet Paul Robinson said this is not high. I know that doctor Lowe also said his was high, but several times you have mentionned not over. TSH now 0.21 but if you remember had gone up to 29 after stopping Levo and taking only T3 (but higher dosage), mine did the opposite to what everyone says that on T3 only TSH will be very suppressed?

[Jackie in reply to marmaris]

Sorry, I misunderstood. A bad few days! I cannot remember why you stopped T4, levo? I know, apart from being told that if my FT3 is over range, it makes my heart dreadful. ,very low is the same.This I believe is a well established fact, why lots of docs against it. The best is a combination of T4 and T3. Did this not work for you? If not usually the second choice is armour T3 and the content in armour etc does, as i am sure you know lower the TSH result.. I have to take armour and Ft3, funny bloods etc, it does make my TSH immeasurable, not pituitary gland, ruled out. I have rows with some ignorant cardios but I know what is best for me, long route!My FT3 is below range or the bottom of range ,otherwise.

My personal opinion is that the body needs the T4 and the t3 and certainly when it became available it made a huge difference to me.

Why did you stop levo? Was it not working? if so probably because not converting enough, only the blood tests show you that.I have logs of bloods for thyroid, TSH, T4 and FT3, not to go by just alone but vital as a guide.

Sorry if being thick, but do get back to me.

Jackie

[Jackie in reply to marmaris]

Hi Again, Just thought are you sure all the other things, especially Vit D are OK?Diabetes?Iron/ferritin well in range, B12 high in range?if the treatment is right for you, you should feel better, may be a few blips but generally fine.

Jackie

[Connor10]

Hi thanks for the info .im currently self dosing with cytomol and have cut out levo completely as I have very bad lightheaded ness when I'm on that .im only on a small dose of t3 at moment but will gradually increase and see how I feel . My specialist tried me on a small dose of t3 and I was on 100mg thyroxine aswell and felt terrible .so staying on t3 only at moment and see how I go with that .Do you know how much t3 I would need to be on if I was on 100mg of thyroxine .

Thankyou,

Jean

[marmaris in reply to Connor10]

Hi Connor10 this is the same as me on T4 100mcgs Levo and 12.5 T3 Cynomel. All aches and pains back, noticed that when got back on Levo. Hate it all and really had enough so tired of feeling low and depressed.

[Jackie in reply to Connor10]

Hi It all depends on results for TSH, T4 and Free T3. Important always before changing any meds and then again after 6 weeks on prescribed dose.You may find then that they need adjusting, especially the T4 ( on both), then another test 6 weeks, continue until stable. Even then after a year or two thyroid can deteriorate.

Best wishes,

Jackie

[GRConwy]

I've have Hashi's as well, Levo caused me to have a dull pain in the top of my head, generally know amongst those with hypo T as a Levo headache, my GP didn't have a clue. T3 gave me an initial headache, but did go after a week or so. 100mcgm of Levo equates to about 25mcgm of T3, about 4 times stronger, that's my understanding. I'm on T3 only and self medicating and doing very well on it.

[Connor10]

Hi thanks everyone for the info ,it's been a bit of a nightmare the past few years ,with not much help from my specialist who I went to see when my Ft3 was 3.5 and Ft4 was 10.3 .i told him my T3 was at bottom of range and that's when he added a small dose of t3 and the pain in the top of my head and dizziness was ten times worse .i went back and he wasn't interested and just said to stay on thyroxine .so I decided to try the T3 on its own and am only on small dose at moment and will gradually increase .the pain seems to have eased more and so has the dizziness .im also taking iron tablets and vit d ,b12 ,magnesium as vit d was low and ferritin was only 12.5 .i will try and get the tsh ,ft4 and ft3 blood test done in a few months to get an idea if I'm taking the correct amount .Its weird I've been on thyroxine since I was 25 and I'm now 41 and I felt fine on it up to a few years ago when I started to feel very dizzy and lightheaded and earache .and other symptons .