So my saga began 8 months ago when I noticed a small lump in my thyroid. I was referred to an Endo. My bloods were all within normal range apart from my TSH which was very low and below range. My Endo doesn't seem that concerned about that though. I have also had antibodies tested and they came back as 40 (ie withitn accepted range)
An intiial ultrasound revealed that I have two smaller nodules on the other side too and a small goiter.
Anyway, so far i have had three Fine Needle Aspirations in my largest nodule (around 2cm in size). The first FNA result was a 1, the second was a 3a (some atypical cells but still low chance of malignancy.) My Thy3a was based on some atypical follicular cells with irregular nuclei. My last FNA was 1c - which seems to mean inconclusive but cystic components present.
My Endo, who is also a surgeon, seems to be of the opinion that I should have a hemithyroidectomy as it's the only way to know for sure. Even though about 80% of people in my situation with a 3a result will still have a benign nodule and thus have unnecessary surgery.
I have been looking at the Veracyte Afirma test which is for people in my situation (with indeterminate FNA 3 results) but unless I find thousands of pounds, this test is not currently available in the NHS or, as far as I am aware, Europe.
I just can't believe that 2/3 of my FNA have been '1's - has anyone else had similar test results? If so what happened and what did you decide?
On my ultrasounds, two different radiologists said that they couldn't see anything that gave them cause for concern. No micro-calcifications (fairly strong indications for malignancy) were seen by them (although that just because they aren't there, doesn't mean that there may not be cancer present).
I'm in such a quandry as my Endo said that assuming my nodule does prove to be benign after a proper biopsy following a hemithyroidectomy, only 10% of people would need to have long term medication and there is about a 3% chance of damage to my vocal chords.
Weighing up all these stats is driving me insane!
My lump seems to me, to be about the same size as it was 6 month ago.
Would love to hear others thoughts...