Hi I had a total thyroidectomy way back in October 1999 due to Amiodarone a drug designed by the devil to combat Atrial Fibrillation. To be fair in those days there were no treatments around and perhaps this was the only drug available then. I won't go into details as this post will take too long and put people off of reading it.
After six months on replacement T4 I found I got tired, depressed and all my muscles ached and I could not turn my neck, I had to voluntarily give up driving for two years . In those two years I lost my job and for the best part I just sleep ed all day. I would finally wake up, strangely around the last meal at 630 pm then I would eat and eat and then go to bed and wake up the same, the next day, exhausted.
after seeing all the drs I could see on the NHS, I was informed my TSH was ok and it was clinical depression.
Then going to a nHS Psychiatrist who says no, you have not clinical depression you have a bit of anxiety but not CD.
You see the consultant and you get told all your bloods are ok, go for a walk each day and you will feel better.
Thats what happened to me.
I have found that the NHs has four treatments only.
1.T4 measure your TSH
2 T4 measure your TSH
3 T4 measure your TSH
4 anti depressants.
having just joined the group there doesn't seem that much of a change in these years.
In my case, I was able to go to Joburg RSA and see a brilliant dr there who got me out of bed and back to work. the only thing is to feel well my TSH is depressed. Now I have an uphill struggle to get my GP to see me and try and get thryroixne on the NHS. I have had times where one of the GP in my practise, has banged on his desk telling me its dangerous to have a suppressed TSH but `i have no alternative, my heart rate is not fast , I am not losing weight and i have no tremors in my hands. But its no good the NHS wants a readable TSH.
I had to go the private route and now my funds have run out so with what I have learned I am using my education and self treatment and I am getting by.
If there are any body on this board with no thyroid can you get in touch with me to talk about their treatments.