I have been on T3 (140mcg daily) for some years now. I have steadily increased until I am at what I feel to be optimum dosage. I periodically check my bp, pulse and temperature.
My GPs dislike this treatment but have gone along with it as I can spout technical stuff when required and assure them that I monitor myself.
This morning I received a letter from my GP who quotes a whole lot of stuff about T3 causing strokes and osteoporosis. (The GPs insisted that I have a dexa scan and heart scan - both fine. (I am 56.)) He then goes through a whole lot of stuff about T3 being alternative treatment and not endorsed by endocrinologists and recommends that I stop all thryoid treatment. According to the surgery I do not have hypothyroidism as my diagnosis was on the basis of a private urine test - tsh tests were "within range".
Quote: "I accept entirely that there may be 'side effects' from your reducing or stopping this treatment. This may include increasing weight and decrease of energy levels. However, we would not feel it clinically justifiable to continue any form of thyroid hormone therapy to treat these."
Is he mad? Before diagnosis and treatment, I was awake for barely 6 hours per day. I put on 3 stones in weight while on on a continual diet. I could not function and lost huge amounts of money in my business because my brain did not work and I could not cope.
I cannot tolerate T4 and am sick when re-introducing it - at a GPs insistence.
As a part-time worker and with a husband not employed at present I would struggle to meet the cost of T3 privately.
This GP has offered to meet me should I so wish. I'm not sure that it would make any difference but I would like to know what I can throw at him, apart from some rotten eggs, which would make any difference to someone so entrenched.
I think that I will request my medical records.
Any suggestions gratefully received. Also - how much is T3 privately? I have an idea that it is around £20 for 28 20mcg tabs.
I am now going to trawl round for a GP who might prescribe T3.