I started on 75mcg levo on 10 June. I noticed improvements from the very first dose and felt so good that I decided to take a chance and increase to 100mcg after six weeks. I felt even better and even started to lose some weight. I’d lost a stone and bought a bike by the time I got tested after six weeks on 75mcg and five weeks on 100mcg.
TSH <0.02 (0.35-6)
FT4 28.3 (9-26)
No FT3 was done but at the time I had an average temperature of 36.1 and fairly serious problems with constipation despite getting plenty of exercise, my 5 a day and drinking plenty of water, so no signs at all of being hyper.
I discussed these results with my GP and we agreed that I would drop to 75/100 alternately. I did this and after four weeks I had to stop riding the bike. I was starting to feel tired, achy, my sleep was disturbed – the usual things. My DH said my mood was down and I could see that my hair was falling out again. Also, despite not changing the way I was eating, I have not lost a single pound since I dropped to 75/100.
I decided to take a chance and see what would happen if I went back up to 100mcg. I did that two weeks ago and now feel worse than ever. Exhausted, dizzy, vaguely nauseous, ‘down’, lethargic, anxious, my fingernails are breaking again, my hair is still falling out and there is, inevitably, no weight loss, even though I am back on the bike. The weirdest symptom is that I have very sore breasts, not related to PMS (I am post menopausal). My average basal temperature is still 36.1.
I’m going to get tested soon, but I wondered whether anyone had any idea what might be happening here? I’m OK with the suppressed TSH, my TSH has never been reliable, which is one of the reasons it has taken nine years to get to this point, but why would my FT4 be so high? Is it all settling down now and I actually need an increase? I just don’t know.
What I do know, is that after spending the last ten years fighting the medical establishment, I didn‘t expect to feel quite this bad now.
PS: D, B12, folate and ferritin are all optimal and I have passed the adrenal fatigue questionnaire with flying colours.