confused, different opinions, and intermittent symptoms. Help please.

[merissa]

should I take vitamin D with kidney calcifications and stage 3 renal failure, endo said yes????

Gp felt no t3, but private endo ( lovely) willing to trial ( should I have another blood test before taking T3?

thanks had to go out reply later.

xx

[Hidden]

Have you any blood results you could post (with reference ranges) to indicate how your GP and endo have come to their respective conclusions about T3.

I cannot really comment on Vitamin D with kidney problems. I know that taking Vitamin D3 can elevate your calcium levels and calcium levels should be checked before supplementing but I don't know how all of this impacts on the kidneys and whether it is okay to take. Do you know that you have a Vitamin D deficiency?

I presume you still have a lot of hypo symptoms.

[Heloise]

vitamindwiki.com/Interview+...

You may find some answers here. I think if you take D3 combined with K2, it may not be a problem but there are a couple of links about kidneys.

[Jackie]

Hi Merissa,

I did reply on your question to me, a day or 2 ago. If you did not receive it, get back to me and I will repeat it.

Jackie

[Jackie]

Hi Merissa,

Just looked I cannot find it either, the wonders of technology! So, as far as I can remember., I said. If corrected calcium is in range, start with a small dose of vit D, if needed, retest both 3 months and increase D if all OK. this to be continued until D fine ,so long as corrected calcium in range. If not reverse the procedure. You may get to the stage ( like me0 where you can no longer take D. You,personally ,must continue with 3 monthly tests with both.life long.. My Nephrologist is keen for me to take D but I no longer can., ( Ca) He is one of the top ones in the country. He says that it must ideally be under and Endo as hormonal otherwise a GP, he and others say they must never dabble with vit D or advise on it, They can diagnose it being low . I have severe liver/kidney disease with lots of calcification and actual stones amongst other things, kidney function bad too.

I hope this helps. I cannot understand where my reply went. As you know I always reply unless in horrible hospital.

Best wishes,

Jackie

[merissa in reply to Jackie]

Thanks Jacki, when I take vitamin d my symptoms seem to be me worse, do you no why? I have stopped taking them? I have a dexta scan soon, I hope they scan the right areas. Xxx

[merissa]

Sorry me again, will taking vitamin d, be misleading on blood results, what I mean is, taking vitamin d, will make blood test normal, however when stopped and in the normal range, my D starts to deplete again. ?? Xxx

[Jackie in reply to merissa]

Hi Merissa,

I is possible something else is going on. What does the Endo say? They and rheumy are specialists in osteoporosis.Vit D it is normally taken for life, with the conditions re bloods I have said. If you get the level right then it means you do need the same dose permanently,some times even increasing it.Is that what you mean? As some people cannot digest vit D, which is different, hence injections if GP prepared to, mine was not.In that case, of course, the calcium rules etc still apply. Actually I was glad i could not have the injections in the end as usually 3 monthly, D takes that long to fully show in the blood. If you do that you are stuck with it until the D wears off.

Jackie

[merissa in reply to Jackie]

Thanks Jacki, so confused with all this, endo feels to carry on with d, even iron gone back low, dunno. I am so fed up jacki with all the confusion, test, going for scan on swelling over left clavicle and dexta scan. It seems I have a host of symptoms, some diagnosed some remain. GP not concerned over kidney failure, however even stage3 should of got me a referral to kidney specialist, I think k she waiting to stage 4 or 5, stage 3 should of been prevented. Totally pst off sorry. Rant over not sure what the next adventure is. Xxx

[Jackie in reply to merissa]

Hi merissa Is your corrected calcium still OK? Endo `s if good are marvellous as cover such a wide range of the body, seem to know it all much more so than any other speciality. What are your U`s and E`s like/ Especially the G, F, R ? Not a range, needs to be,above 60, higher the better. Mine is always much lower, if below 30 cause for concern. It is the best guide to renal failure ,although all of them are important.Were you warned not to have salt,in spite of the sodium level?Ask the Endo about seeing a Nephrologist however, they just seem to look at bloods, waste of time, BP and exam me, although bad pain, that is in except when in acute failure, then mine always seems to be away, I have to rely on my Hepatologist ( liver) who is much more proactive.Iron/ferritin you need to take for ever and often needs increasing, blood tests at least every 6 months, well in range. What is your B12 and Foliates like? They need to be high in range, autoimmune and hormonal. They can account for a lot,pennitous anaemia, which I cannot spell!If you want to send me a PM ,with all the problems, I will se if I can help.Having so much wrong myself is useful, only in this context!!

Jackie

[merissa in reply to Jackie]

Have you considered parathyroid, especially with kidney stones, low d and osteroprosis, classic symptoms I'm sure you already no. New research from me!! Your kidney specialist is he/ she nhs based or private? Xxx take care lovie

[Jackie in reply to merissa]

Hi , It is definitely not related to my disease it is polycystic kidney and liver disease, well known now, although, it was not known about some years ago. It is mostly from birth and lethal. However, if it does not kill you when young, if lucky you live with it.,at least until old. Main cause of renal failure, any age. My liver is much worse, actually.When my calcium first went very high,over range. Endo arranged all the tests and if Calcium and PTH high and vit D high for you ie changed, bloods done together am , GP`s do not seem to know that, I had yet another argument with them! Then you have a nuclear scan and CT of the Psarathyroid and a thyroid ultra sound. Just swollen and nodules which I could not have biopsied as too ill, any way I cannot have any treatment whatever. Have you needed the check?You still have not said is your correct calcium in range?

Jackie

[merissa]

Jaki, I will send you my test results via email after x factor. Thanks, think I have got your email address. Xx