Other than hormones is there a condition which causes symptoms to come and go? Everyday I have something- not always the same and in the summer- nothing
I'm convinced it's hormone related but Endo says I should look outside of that. Been discharged from Neuro and Cardio not sure what's left 😩
Do you have any lab results for your thyroid that you can post? Bit difficult to say whether it's our thyroid without those. How about nutritional deficiencies.
Hi Greygoose I put all recents up last week
And forgive my ignorance what are nutritional deficiencies?
Hi! Sorry, I am not the wise greygoose but hope I can explain. For you to have general wellbeing, you need sufficient amounts micronutrients - vitamins, minerals, amino acids etc.. With a healthy diet you get some of that but often not everything that you need. Or not the amounts you need. I assume you take supplements?
When your blood is tested then, depending on your complaints, the doc might want to check f.ex. iron, vit B12, vit D, folate, selenium and other deficiencies. These previously mentioned nutritional substances are very important for thyroid hormones to work properly so your body can get the max. benefits from it.
I very much doubt he will want to test them! But you might be able to twist his arm.
What is f.ex.iron?
For example. Sorry, English is my third language and with this constant brain fog my language and grammar skills are not what they used to be.
Ah ok! lol I thought it was a test I'd never heard of. We usually say e.g. It's latin for 'for example'. We use a lot of latin expressions in English. 
OK, so, your FT3 could be higher, it's only just mid range. I would say it's low enough to cause symptoms. Remember, endos only look at TSH, and your TSH is ok - for an endo, anyway. But it isn't the TSH that causes symptoms, it's low T3.
Having said that, you do have Hashis, and antibodies can cause symptoms. Although endos don't know that. And antibodies come and go, so...
Are you on a gluten free diet? Do you take selenium? Both of those could help lower antibodies? And it would help if you had a suppressed TSH. But, endos don't like that.
Your nutrients are good, by the way.
Thankyou, yes I'm gluten free and take selenium antibodies have come down dramatically they were in the hundreds 6 months back. I just have so many things going on I don't know where to start. I'm treating high cortisol but FT3 was sky high previously so what would cause it to go other way now- Hashis?
I don't know what to do for best was told to hold off T3 given how high it was but now it's quite low? I just need a diagnosis of something I'm so ill all the time- and no one can tell me why 😔
So, now try taking T3, if you've got some. It would be a good idea to suppress your TSH. Just to see how you feel, if nothing else.
And, all the things you've go going on are more than likely due to low T3 and antibodies.
Of course doctors can't tell you why, they have no idea - as strange as that might sound, but they just don't. Time to take charge of your own health, perhaps?
I need to do something I switched to NDT a year ago hoping it would be the miracle I craved then found out I have adrenal fatigue so can't raise. And literally feel like the walking dead
NDT is often the wrong thing for people with antibodies, because it triggers a response from them. Hashi's people are often much better on T4/T3, or T3 only. I know, been there, done that. But so many people - including my doctor - hypo up NDT as if it is a miracle, so you think it must be you that's doing something wrong. It isn't and you aren't. So, back to the synthetic!
I can't go back on Levo it made me so ill for 15 years
Yes, but did you try a T4/T3 combo?
Adding in a little T3 often makes a difference.
If you really don't want to do levo, then the only other option is T3 only.
So NDT plus T3 isn't recommended? I just worry adding T3 as a few months back FT3 was high
Well, it depends. Is it just synthetic T4 you can't tolerate, or is it all forms of T4?
If your conversion is very bad, NDT wouldn't be any good because it's mainly T4 with a little T3, so some of that T4 has to be converted to raise your FT3 levels.
It's all so individual. And, for the most part, it's trial and error to see what suits us best.
Greygoose, I was only on Levo the 15 years . Dx at 20 and told to take this 1 pill a day so I did I lived a normal life, ate what I wanted, binged drinked etc not realising how careful we had to be and how serious this disease was. Now I have all these complications and feel I've dying a slow painful death and no Endo is able to tell me why.
T3 I'm guessingis also synthetic?
Yes, T3 is also synthetic. But, sometimes, for some people, synthetic is the best option.
I don't think your living a normal life had anything to do with the way you feel now. Don't blame yourself. You have Hashi's. It's progressive disease. You probably have a lot less gland than you did 15 years ago.
I'm sure that, once you get on the right dose of the right thyroid hormone replacement for you, you will be able to live a normal life again. But, to find what is the right one and the right dose, we have to experiment.
You think I will get better despite all my issues? I still can't get answers as to why FT3 has gone from high to low? Or high IGF1 levels yet normal pituitary MRI or low PTH and high calcium. These things trouble me so much. I honestly feel so ill all the time I've often convinced myself it's something far sinister
Yes, I think so.
Your T3 has gone from high to low because you have Hashi's, and more and more of your gland is being destroyed all the time. That's the nature of Hashi's.
I can't help you on the IGF 1, all I know is that it's an indicator of HGH. But, I don't know why it's high.
For the PTH and calcium, post a new question. I'm sure someone is bound to know.
Totally confused by results & symptoms- please help
No diagnosis - treating symptoms only help please
please help 
