I'm so sorry this is a long message but I'm really upset at the moment.
I went to see my GP today and she told me that my thyroid specialist (who is very well known on here) has written to her in words that more or less say I am not hypothyroid. I was gobsmacked at this and felt so foolish when she told me as if somehow I am a hypochondriac. I have had this thyroid specialist for seven months now (after ten years of being told my blood tests are normal despite being symptomatic)and he has always said I am definitely hypothyroid. I managed to get a copy of the latest letter he has written to my GP and I can understand why my GP is doubting I have an under active thyroid in view of what he has put.
It took me ages to get my GP on board and accept I had an underactive thyroid as she is one of the few GP's who accepts his opinion it would seem. Now I am back to square one and completely alone again.
He has also stated in his letter that I did not report any adverse effects on T4 to him when I actually reported a long list of them to him. He has also told my GP that I had asked to be put on NDT which is true because of all the adverse effects I was having on T4 but his letter looks now as if he was just going along with what I wanted.
I am so angry and have left a message for him to call me. I just need another prescription for NDT and then I have decided to find another thyroid specialist instead. I am forced to pay privately. Has anyone else ever changed their specialist from a well known one? It's bad enough trying to find a supportive GP without having to find a new specialist as well. I thought I was in safe hands but now I will have to find another specialist instead as I have lost all confidence in him.
Incidentally my GP also said she knows very little about being hypothyroid and as far as she is concerned you can only get myxoedema on your legs and arms!! (I have gone up five dress sizes and most of my myxoedema is around the central part of my body and on my face and neck. ) She spent a good part of the consultation comparing my legs with photos of legs with myxoedema on the internet !! God help us!! (or God help me!)