Reply from previous private Endo conultation

[HelenR23]

Hi , just a follow up from my unsuccessful consultation with a private Endo.If anyone had read my outcome from my consultation you know I was very sad about it. He has written to my Doctor stating my thyroid was ok and it was anxiety. Obviously I have severe anxiety which has limited my life for 4months now so I had to email a reply to him. I told him I was unhappy he had written to my GP stating it was just anxiety and that all my levels were in range. I made sure he knew I wasn't happy about that outcome but I understand that anxiety is playing a big role in all of this but I was looking for help, not just for anxiety but for general poor health.

Anyway, I've had a reply from his secretary saying he still thought my thyroid test was fine but if I wanted to try T3 he would write me a prescription!!!!

Does he feel guilty that I spent £350 on two phone chats with him? I bloody hope so.

Now I need to find a chemist who can do my prescription once it comes through. I'm still going to wait a while for vitamins to kick in and get another thyroid test done in the next couple of weeks. Not sure of the cost of T3 from a private prescription but I'm sure I will find that out.

I know it's not an instant cure for chronic anxiety which basically is ruining my life but it might just improve my health a bit in order to fight back.!

[SlowDragon Administrator]

Many endocrinologist are clueless on what prescription should say re dose size or number of tablets

cheapest option by far for T3 on private prescription is Thybon Henning 20mcg tablets at approx 50-60p per tablet

Typical dose of T3 is 2 or 3 x 5mcg dose

Starting on just 5mcg initially

Cut 20mcg tablets into 1/4’s to get 5mcg dose

You want prescription to read

Liothyronine 20mcg Thybon Henning x 100 tablets

Roseway Labs very helpful

List of options here

Ring/email for best price

thyroiduk.org/if-you-are-hy...

[HelenR23 in reply to SlowDragon]

That's good to know thankyou. I don't know what he will prescribe but I darent ask him for any specific brand in case he gets funny with me. I'm not sure if he is posting a prescription or how this all works but I will wait for a further reply from him because I said yes I wanted to try it. I've checked on here for places to send my prescription. Lots to choose from on the list.

[SlowDragon Administrator in reply to HelenR23]

Either wait and see what he sends….and then get it changed if not correct

Or

Email and request you would like 20mcg dose tablets and prescription x 100 tablets as this is by far most economically option

You might choose to add, that this what is normally prescribed for the many hundreds of U.K. patients currently forced to get thyroid treatment privately

[HelenR23 in reply to SlowDragon]

I shall email him now while I've got the guts!!

[SlowDragon Administrator in reply to HelenR23]

And really well done for standing up for yourself

👏👏👏 😀👍

[HelenR23 in reply to SlowDragon]

I've emailed him and asked for 100 x 20 MCG tablets. !!!!

[1tuppence in reply to HelenR23]

Did you state Thybon Henning? If not send a follow up email asap Well done you.

[HelenR23 in reply to 1tuppence]

No I didn't but I asked for 20mcg x 100 tablets. Didn't want to push my luck !

[SeasideSusie Remembering]

HelenR23

ThyroidUK's list of pharmacies where you will find details of who will dispense your private prescription for T3:

thyroiduk.org/if-you-are-hy...

If your prescription states

Thybon Henning 20mcg

100 tablets

(or multiples of 100)

then you should be able to get them for around £60 for 100 tablets ( SlowDragon may have more up to date information on price) so try

Roseway Labs

Smartway

Chemist 4 U

[Sparklingsunshine]

Well, its a result in a way lol. Fingers crossed for you and really hoping it's the start of better health and happiness. Good for you for telling that Endo you were disappointed and standing up for yourself.

[HelenR23 in reply to Sparklingsunshine]

Well I had nothing to lose. It's not like me to ever complain but laying here week after week I've got to sort my self out instead of wallowing in anxiety! I'm pleased I did it though 🙂

[GlowCoach Administrator]

Can’t believe what I’m reading. What a bizarre but happy turn of events. Did he say what dose or just he’d prescribe?

Also, blimming good for you! Not going to be easy moving on from an initial bad start but worth working at if he is actually going to prescribe. Doctors are far too blinded by anxiety as a symptom and this needs to change!

So happy for you! 💐

[HelenR23 in reply to GlowCoach]

Thankyou. I'm surprised he offered so not sure what to expect so will post here when I actually get the prescription!!

[HandS]

I used to see an Endo privately but any prescription or test he ordered was given to me via NHS. I only paid for the consultation. It may be worth asking his office if they can issue you a standard green NHS script / which you can get fulfilled at any chemist . There is nothing to stop him agreeing to this.

Nothing to lose in asking the question ?

Good luck - and I’m sorry for your shocking treatment. I see an NHS Endo who prescribes T3 now but GP surgery still won’t prescribe it for me .