Only 6 months ago I was diagnosed with graves disease after a trip to emergency with high blood pressure, rapid heart rate (180), chest pain, nausea, weakness... Bloods confirmed high thyroid levels
I was monitored in emergency and given propranolol until my body calmed down. The next step was an iodine reuptake test, which along with the bloods confirmed graves.
I was put on 40mg a day of carbimazole and 160mg per day of propranolol
next bloods were on
Around this time I started to feel quite unwell, things like aches and coughs, sore throat that wouldn't go away. GP assumes white blood cells were not coping too well with the carbimazole so put me on 300mg of PTU daily, as well as an increase to 240mg propranolol to try and calm the still persistent palpitations, sweats etc..
I was at this point referred to an endo, I was given 40mg of temazepam nightly to assist with the shocking insomnia. I looked pale, dark eyes, extremely moody, still suffering from palpitations despite the propranolol. I was in a bad way physically and emotionally.
Until graves I was coming along well studying nursing, which I have had to discontinue due to the almost daily fainting, vomiting.. I'm just generally feeling like crap all the time!
Endo put me back on carbimazole after contacting pathology and my white cell count was in fact fine. I do not have the newest blood results but after resuming 40mg carbimazole, endo says no change in next bloods, after increasing to 60mg carbimazole a day, still no change.
I don't have any bulging as of yet but I'm feeling a lot of pressure behind my eyes, I had no problems with my vision before graves, now I'm dependant on glasses for driving and seeing at all in the dark. everything's getting blurry.
My skin is so dry I cant stand the feeling of anything, I cant explain it in any other way without saying It makes me feel crazy and want to rip my skin off. The feeling of my own bed makes me cringe and cry! I have to moisturise my hands and feet at least every half hour to get through the day.
I am in constant agony the last month with aches and pains in all my joints, particularly wrists and knees, a lot of back and shoulder pain etc. and have come across a lot of forums with people saying it has over time given them osteoporosis or osteopenia. Would it be worth requesting bone density scan?
I'll also put out there that I'm only 23, and a single mum to a 5 year old that I struggle to get out of bed to care for!
I guess I'm just looking for some reassurance that things will get better? I'm so frustrated and don't feel like I get any straight answers out of my GP or endo about what's to come, will it get better, will it get worse, will it be like this forever?