Feel like this is the only place I can say what's happening and how I feel. Kind of reaching the end of the road.
Endo just phoned to say all tests are normal - Selenium - well in range, prolactin normal, Lyme disease - negative(although he did say it doesn't mean a future test wouldn't show a positive). Strange thing is, I actually found a tick in the back of my car yesterday! How ironic. Wish I could afford to pay for a more accurate test.
He hasn't had the MRI report but had a quick look and all looks normal but will wait for the report.
He has also received my original blood test results from my Gp which says my TSH was in range and my FT4 was 10 range (10 -23). I was diagnosed borderline at the time.
He says he can't justify treating with normal ranges and will do one final test to determine if there's an issue. I have to come off all meds for at least 3 weeks an then have a TRH test!!! I want to cry but know it's the only way to tell how my thyroid is now working and get an accurate TRH test.
If all is normal it is up to my Gp to decide whether I can continue on thyroxine and liothyronine. I told him if I feel the way I used to, I will get the meds myself if I have to. He said he didn't want me to do that and would advise a second opinion and maybe look further at the CFs/Fibro diagnosis.
After this test I think that's it with the docs. I can't afford to pay for my own meds but will find a way to try T3 only and just deal with my own health.
I'm under a lot of pressure at the moment, stupidly trying to do something wit my life by starting a new business, so absolutely broke and stressed trying organise everything but was feeling very positive. Now I'm totally terrified that I'm going to end up bed ridden with normal bloody test results!