I have been on T4 alone for 7 years with no improvement in symptoms, so eventually, 4 weeks ago I started on T3 - 15mcg (on NHS) with reduced T4 (from 150mcg to 125mcg T4). After 10 days I felt really bad again and emailed my endo (private) who didn't reply. So I increased my T3 to 20mcg a day and reduced my T4 to 100mcg. I immediately felt better again, although not as good as when I first started on T3. But after 9 days I started feeling unwell again, and this continues.
Now, I think that I should now increase my T3 and reduce my levo again (having posted before on here and got advice), but I have spoken with my endo on the phone (he eventually rang me several days later) and he was a little miffed (to say the least) that I had increased my T3 from 15 to 20mcg and decreased my levo to 100mcg, on my own, and has told me not to increase it again until my blood test result are back - blood test on 21 May (6 weeks from first starting T3).
What should I do as I now feel very unwell again? Do I increase T3 (and if so by how much and decrease T4 and if so by how much) anyway and hope blood tests don't look odd and how would I explain to him that I had increased my dose again without his say so? If so, how do I get the extra T3 that I need on top of my prescription (do I buy it and if so where from? My doctor wouldn't prescribe T3 without an endo's say so). Should I try and bring the blood test forward a little, although the endo knows when it is? Have I read somewhere on here that the blood tests when taking T3 are not very accurate anyway or did I dream that? Or do I just persevere until the blood test on 21 May?
I would be very grateful for any advice/thoughts anyone can offer.