hi all , my name is Alison ,and I have been a member here for a while ,learning from you all about my hypothyroidism .
This is NOT to frighten anyone , but to sound a warning note when we think that everyting is down to being Hypo.
I was diagnosed hypothyroid in may 2012 , following an ultrasound scan on a lump at the side of my neck . a goiter with nodules was found and blood tests were done . the lump was ok . reason for checking that was lobular breast cancer in 2005 and 2010 .
tsh was 32.5 range .4-4.5
t4 was 8 range cant remember .
dignosis at ENT dept Stafford hospital
started on 25mcg levo then 50mgs 8 weeks later .
GP as much use as chocolate teapot of course . Felt okish but still loads of symptoms and decided to try Armour . gradually increased dose to 2 grains over time . had some great days and weeks last summer .
In Oct Nov started to have to sit down in middle of zumba class , got breathless walking in to work . Xmas , made a right hash of dinner and couldnt co-ordinate family and activities .
Gone downhill from there really . Assumed as we all do that it was hypo t , and tried changing doses , heart rate started to increase as well . Reduced dosage but made no difference . All this taking time over jan/feb . I have been under chronic stress since 2005 with redundancy of my husband , stressfull work ,trying to move house , mother in law moving in and plans to change new bungalow so my Mum can move in .
Anyway March April has been a nightmare as my health decreased so much that in the end I was in bed most of the day . High heart rate , worst at night ,pounding /tinnitus in head .
I can only get to see a duty doc at GPs or give 3 weeks notice of being ill .
Long story shortish , at worst frightening stage , saw duty doc who took bloods for full blood count .
Ended up in Hospital Heamotology . I have Pre-leukemia . It may have been masked by the hypo symptoms and I did"t realise that my frequent colds needing antibiotics this year were significant . ben here now in isolation ward since 11th April . I have had 2 bone marrow tests [1st didnt work ] heart , kidney , liver and bone scans . Enough platelets and transfussions to fill a small person .
Now Im sitting here feeling okish again but I have to stay here for the next month at least for the most aggressive type of chemo devised . Then do it all over again in a few weeks . Will only be able to go home if I am well enough and low enough risks of getting infections .
worst case senario , I could be here for 4 months .
Apparently this is likely caused by Radiotherapy in 2005 which was the standard treatment then [they dont do that now].
PLEASE PLEASE PLEASE . If you are not getting well and the Doctor says "its not youre thyroid . Make them check absolutely everything else .
All my actual symptoms were caused by anaemia , which can be linked to hypo .
BUT DONT MAKE ASSUMPTIONS AS I DID >
Wishing you all recovery , and a good life