Is it ibd : I have posted on here a few times... - IBS Network

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Is it ibd

Netbet22 profile image
11 Replies

I have posted on here a few times before i have ibs and bam but over the last few months my stomach pain has been getting worse like a twisting pain above belly button just to the right side before and after bowel movements my doctor has referred me for a ultrasound scan not till next month and she has also referred me back to gastro but waiting list is probably long , does anyone else experience this pain as am convinced there is more going on my doc did say that the pain could be inflammation so maybe looking at ibd , just sick of been back and forth to the doctors every other week about it all been going on for years any help please

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Netbet22 profile image
Netbet22
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11 Replies
Linley profile image
Linley

All us IBS sufferers have symptoms that can be unique to us the only symptom that seems to be constant is the pain. Your GP has been active in getting you a scan and referral to the Gastro. Once you know what's going on in your bowel or stomach you will feel less anxious. And yes, there probably is a long wait. I used some of our emergency savings pot to go privately but I realise not everyone has that option. Wish you good luck🍀

Netbet22 profile image
Netbet22 in reply toLinley

Thankyou i have thought about going private but its expensive

BabsyWabsy profile image
BabsyWabsy in reply toNetbet22

I was offered a consultation at a Nuffield hospital because it had a shorter waiting time than NHS hospitals. Paid for by NHS. ( Not ideal I know) It might be worth asking if this is an option.

Viklou profile image
Viklou

Have you done a stool sample to check for inflammation

Netbet22 profile image
Netbet22 in reply toViklou

Yes last november was 150 may this year was 171

Viklou profile image
Viklou in reply toNetbet22

Mines never hugely raised but I have small bowel crohn's which was picked up by pill cam

Frasina profile image
Frasina

You may well have some sort of IBD as well as IBS. I do and it is a grey area. if you can afford it see a gastroenterologist privately as a one off (but someone who works in the NHS too). They can and will get you tested quicker on the NHS if they think you need help sooner rather than later, especially as you have had issues for a long time and your pain is getting worse! The cost depends on area but around £250 on average for 30 min consultation. Your inflammation markers if it was calprotectin that was checked are up; normal is 50 but for those with IBD then 100 or below is okay. I had to go private in 2021 as I knew I had more than IBS yet my GP refused to send me to gastro (even though I was in constant pain and lost a stone in a month in weight...) Tests showed I have patchy pancolitis that is controlled (most of the time) with meds. Whatever you decide, I wish you well.

Netbet22 profile image
Netbet22

Thankyou for replys hopefully i get sorted and get to the bottom of whats going on

Viklou profile image
Viklou in reply toNetbet22

Took 6 years for them to listen to what I was saying and get a pill cam. Good luck xxx

Gallbladder?

Netbet22 profile image
Netbet22 in reply to

Got glallbladder removed 9 year ago

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