very redundant sigmoid colon/transverse colon

[Nerissa]

hi I’ve experiencing nightmare of problems this last year start with constipation uti and numerous appointments with urologist and gynaecologist as past uterus removal due to fibroids and endometriosis. Off tomorrow to see bowel specialist as I have to sit in a very unusual way to go toilet also pain in pelvic area awful which nothing seems to work. I just came across this old report from 2007 last colonoscopy which they said never to repeat due to risk of so many loops and length of bowel. In the report says they only got as far as the sigmoid colon due to running out of longest tube available but the terms they use are very redundant sigmoid/ transverse colon. Has anyone else had this condition as I’m not researching which I know I shouldn’t and all seems to say it might have to be removed 😢

[Wonderwall3]

Hi NerissaI'm afraid I didn't get the exact same diagnosis but in my colonoscopy report, they said I had a long and very floppy colon. I asked the technician whether that would be the reason why I have so many problems with constipation and low gut motility, and he said 'absolutely'. It's an absolute nightmare isn't it? The only thing I can advise is to ensure you seek treatments to prevent constipation, as this may reduce your chances of any complications with your condition, such as Laxido, Normscol, Fibogel, plus make sure you are eating a diet rich in fibre, unless you have been specifically advised to follow a low fibre regimen. Have you been referred to Gastroenterology? I think you may need regular monitoring. Keep us posted.

[Linley]

Hi! My last colonoscopy report says I have a long loopy bowel and gave me no satisfaction into what really is causing my symptoms. That was it. I have found a Gastroenterologist who has listened to me and due to my past history of endometriosis is going to conduct CT scan & another colonoscopy a second opinion. I am seeking a few years of a peaceful and quiet tum. It's horrible it's it? I have heard of a redundant colon but that's all like Wonderwall3 please keep us updated. Good luck🍀

[edwangy]

I have the same, I had a very difficult colonoscopy, colon was very bendy and long. Constipation and pain has worsened since I had a hysterectomy 2 years ago. It causes the intestines to drop down into the void where the uterus was, causing them to change positon and seems to make the 'loops' and bends worse, this makes for a slow transit which causes reabsorbtion of fluid and hence pain and hard stools. I've just had a proctogramm and an MRI to see how my bowel is emptying and to check my spine as I also get pain in my thighs which I think is connected to constipation. I'm in constant pain don't sleep much

[Nerissa]

thanks everyone I’ve just come back from specialist. Unfortunately she thinks something might be getting blocked suggested either due to large polyps or endometriosis might have damaged the bowel so pushing it in parts. Because of my last colonoscopy being a problem as in possible perforating she wants to try forlax first. Then would have to be colonoscopy which might lead to removing parts of the bowel and reconnecting them by a surgeon or if there’s large polyps again would be surgery. If it’s the endometriosis then would try pushing out parts of the bowel if possible rather than cutting it. But I picked another uti last week and no one seems to know the cause only thing she suggested was if the bowel had any of these damaged loops or polyps they could be by the bladder therefore stopping it from working properly. So not the greatest results but just hope the medicine works for the next week and antibiotics for uti kick in. Thanks for all your support

[EOLHPC in reply to Nerissa]

yes, my collection of clinicians say my abdominal issues are complex due to overlapping comorbidities combining to cause intestinal pseudo obstruction affecting the bowel as much as the urinary tract : severe lower spine scoliosis with rotation, autoimmune conditions-related neuropathies, severe hEDS slow transit dysmotility contributing to chronic oesophagitis, gastritis, SIBO etc ,with extremely long looping sigmoid colon, endometriosis, antibody deficiency disease…it’s no picnic.

Thanks for posting …hope you’ll get the understanding & help you need…please keep us posted if poss 💞

[Nerissa in reply to EOLHPC]

thanks

[casares8]

In my last colonoscopy about 3yrs it said i had a highly dilated and loopy bowel and should avoid another colonoscopy. No one has really explained to me about it, my doctor did not make much comment and i have been waiting for a gastro appointment since? Have a telephone appointment in 2 wks, will ask then. In the meantime i have constipation, hard stools and i think slow transit. I can feel the stools stuck in my colon on the left side, and painful when they eventually pass. They also push a hernia out i have. The thing is if we are unable to have a colonoscopy, how do they ever discover and remove polyps? I had one last time

[Nerissa in reply to casares8]

I know that’s what I wonder too

[xjrs]

I was diagnosed with a redundant colon, during a colonoscopy that they couldn't complete due to all the loops. The gastro doing the procedure said that this is very common in IBS-C patients due to the length of time that food takes to pass through the extra long colon, whilst at the same time more water getting extracted from the stools which also exacerbates constipation. Everything I have read about it is that the need for surgery is not necessary or recommended. I manage mine with a very high fibre diet, 30 drops of ginger extract in a little water before bedtime to aid motility and Linaclotide which is for IBS-C with pain.

However, it seems that you have multiple conditions to deal with, which is a pain for you. I'm wondering if you could request a multi-disciplinary team to deal with all the issues since often symptoms overlap and it is silly being passed from pilar to post trying to deal with everything individually.

[Nerissa in reply to xjrs]

I know I wish they would join toy and make a plan I will ask when I go back next week. Thanks again for your reply