Can't even enjoy a day out anymore

[RedTeddy]

Fed up! Fed up! Screeeeam!!! Sorry for moaning but I can't moan anywhere else lol.

After 3 nights of no sleep I went out today on a pre arranged day out with my friend, I mean this is something you should be looking forward to not dreading. It's amazing how doing your hair and make-up and putting nice clothes on can give people the impression that all is well, if I dressed how I felt I'd be in a halloween costume - thinking in the lines of a zombie, a very ugly bloated one.

But still not to burden anyone else I put a smile on and carried on. I got through a couple of hours walking around the shops then went and sat in a cafe, the pain radiating up through my pelvis through my hips and stomach, whiggling around in chair trying to get comfy slowing loosing track of the conversation as the pain became all consuming. Secretly thinking what time is it, surely it must be time to go home, I need to be alone, just me and my pain...

Luckily I was driving so made the excuse we set off to beat the traffic. The nausea set in, I lowered the car window gasping for breath, thinking just hold it together, not long to go now. I dropped my friend off, smiling and waving from the car. I drove round the corner from her street and burst into tears, I had to pull over to compose myself. I made it home, went straight into a hot shower, stood there head in hands crying, the hot water washing my tears away. When will this pain ever end? When will I ever enjoy anything again? When will I ever get a good nights sleep? I can only hope when I have my laparoscopy in 3 weeks time I get some answers. In the meantime I will embrace and make friends with my inner zombie xxx

[KMLxx]

I really feel your pain! I am sorry you are experiencing this too, it’s horrible. We deserve some answers and to enjoy our lives. Good luck! Xxx

[RedTeddy in reply to KMLxx]

We certainly do, thank you KMLxx

[bookeater]

So sorry about how you're feeling.I'm away with my friend I am sat in the bedroom sipping hot water as the meal I had has made me nauseous. I always make sure I have my own room! It's 3 years nearly since the IBS started due to food poisoning.

[RedTeddy in reply to bookeater]

I feel your pain bookeater I've been getting nausea quite a bit lately on top of everything else. I don't blame you for wanting your own room, I would too. Sounds like you've been suffering a long time. I hope thing's improve for you soon x

[bookeater in reply to RedTeddy]

I have Had a bad day but hopefully tomorrow will be calmer.

[Oscar091]

Hi just read your post. Sounds exactly like me I put a face on every day with my family when I feel like I’m dying inside. Really horrible living in stomach pain it’s awful. Amber xx

[RedTeddy in reply to Oscar091]

Hi Amber, it is horrible isn't it! I try not to moan to everyone especially when I go out as I think nobody will want to ask me again! I know my family and friends are understanding but they have their limits, and to be honest I don't always feel like sharing. I've even tried smiling in front of the mirror to make sure it looks genuine! I'm hoping one day it will be, take care x

[Oscar091]

Hi thank you for replying. I understand everything you said about family and friends well I just feel like I’m moaning every day. Mornings are the worst time of day can’t get out of bed till 11 am with no energy at all. You try and have a good day. Take care Amber x

[Cortes3]

Hi there ! I really do feel for you and really know what your going through I am exactly the same I've never been on holiday for 6 years dont go out at night just go up the shops which are 5 mins walk I sometimes feel like I'm going to faint I take glucose tablets with me take deep breaths ! 7 times I went for BM yesterday felt washed out this morning I do have nausea tablets from the doctor! I ended up up our local hospital 3 weeks ago in terrible pain doctor sent me ! they gave me ultra sound found what I already knew so that's that . This all can give you such anxiety which makes ones tummy worse anyway .Dont give up there was a programme on TV about IBS and that if you suffer from diarrhoea that ondensatron can help that's an anti sickness drug maybe it can help you .hugs .

[RedTeddy in reply to Cortes3]

Hi Cortes3, I'm sorry you're suffering so much, it's awful you feel like you can't go anywhere. It's rubbish isn't it, I just seem to go from one thing to another each day is completely different 🙄 and so is each night. At the moment I'm struggling to sleep, I listen to an App which helps initially then that's it, boom wide awake with no prospect of sleep! Then the acid reflux starts then chest pains. If I get 5 minutes a day when I just feel settled it's a miracle. I'm doing whatever I can to cope with the pain but until I get some real answers from the specialists I feel like I'm swimming in a bog, slowly being pulled under. But somehow I have to find a branch each day and keep pulling myself out. Try and stay as positive as you can, think or do anything that lifts your spirits no matter how small. I hope things improve for you 😊