So I'm a first time poster, long time sufferer. I've had IBS-D for nearly 15 years, So it's been a long time. I suffer from nausea, abdominal pain, bloating, cramp, chronic fatigue & diarrhea. On a good day I'll bowel movements within single digits, maybe. My symptoms are horrific & pretty much 24/7.
I'm really starting to struggle with the mental battle that comes with this horrible disease. I work full time, battling all of the medical issues constantly throughout the day whilst also managing my workload. I tend to fall onto the sofa or lay in bed after work & as well as the entire weekend, then repeat. I live alone, often have to cancel plans with friends & family, and it's very difficult for me to go on dates or build any kind of relationships. I would like to get a pet but I don't feel as if I have the physical capability to take care of an animal.
I've had the following negative tests: Colonoscopy, endoscopy, abdominal ultrasound, Bile Acid Malabsorption, SIBO hydrogen breath test, lactose intolerance, glute intolerance, stool tests & blood tests.
I've also tried elimination, low fodmap, elemental, vegetarian & vegan diets but none of them seem to help. I manage my diet now with no gluten, dairy, sugar, caffeine or alcohol.
I struggle with even the most simple tasks, I can't even walk to the supermarket without a high level of discomfort.
I previously run a support group for IBS, but not very many people attended & I seemed to be the only person who really suffered &I become too sick to run the groups alone so had to stop. I would like to attend another support group, but there isn't any in my area.
How do people deal with the loneliness that comes with this condition? I'm feeling very lost and don't have anyone who understands the daily struggles. I research online a lot but the only suggestions are to do things that I do not have the physical capacity to do, such as go outside for a walk, or go to a yoga class, or anything simple like that.
I'm not sure what I'm hoping to get from this post. Does anyone on here have the same issues or have any suggestions?