Hello all, new here. I have had symptoms of IbS on and off for a few years. Used to have IBS C and then last year developed IBS D as well which to be honest i preferred the C which was bad enough. Last year I ended up in A and E after straining from IBS C caused me to haemorrage from my urethra.
I was given a colonoscopy, described as challenging by the Doc performing it, he took an hour to do, could not get down last part of colon. Noted I had excessive bowel looping and probably had fixed pelvic adhesions from previous gynao surgery including a total hysterectomy. Was given HRT to deal with the urethra problem and given a diagnosis of IBS, told everything was normal. Given Meberevine, didn't work, switched to Alverine Citrate, didn't work, now buy buscopan but have to double up on the dosage.
Now this year, my health has just gone into free fall. Almost everyday I have D, usually it is solid D if that makes any sense. The pain is horrific, I usually spend two hours in the bathroom just screaming and shaking with pain, literally unable to move.
The pain is at the very bottom of my stomach, not just cramps but contractions. I also have the most awful back and hip pain and after the cramps have stopped I have terrible soreness across my stomach and back and hip pain which makes it hard to walk.
I dread having a BM as I can wake up fine but the minute I have a BM that is a trigger. I usually get the D of an evening and morning. I always know when the d is about to start as my heart starts to race, like what happens when you are scared.
I tried Fodmap diet, gluten free, lacto free, eat virtually no dairy, have not ate bran or whole wheat products for over a year, have tried every probiotic, ate gluten free oats until they came out my ears, cut out fruit virtually and veg.
In the last 10 days I have lost 12IB in weight. I am literally terrified of food. I look at food and instantly feel scared and just see pain. Medical profession are uninterested, it's just IBS.
My diet for the last few weeks has been the same everyday. It is two bananas, three gluten free, allergy free grilled chicken nuggets and one nakd bar. ( google if you don't know what it is). I have 8 glasses of water and two cups of tea.
Despite this diet my D is worse than ever. How can I even produce so much when I am barely eating? My mental health has gone downhill as well. Since early this year because of this IbS I have barely been able to leave the house, spend all day between bed and bathroom.
I am now seriously considering I have only one option left. I have actively started making plans to stop the pain, I just cannot live like this anymore, I cannot even remember what it is like to be without pain. I just seem to be crying constantly and have told my one family member I have that he needs to start preparing for me not being here.
He just responds by saying there are people worse off and I need to try harder. I can't try anymore. Doctors say IbS doesn't kill you, it's not even an illness, but it is and it does.
I had mental health problems many years ago and have found that the medical profession are very dismissive of anyone with mental health issues presenting with a physical illness. I once had to have emergency gynao surgery because the words attention seeker were written on my notes and my health problem was dismissed.
I also have scars from self harm from my younger days more than 8 years ago. I get so tired of being forced to explain in hospital why I am scarred. I have even been refused medical treatment until I explain why I am scarred. I cannot afford to go private and my docs will not test for allergies or anything else. Colonoscopy is the standard and that is it. I even had to fight for that as it was initially refused.
I first had a sigmoidoscopy and that was utterly humiliating. The prep didn't work and the doc wrote on my notes it failed because I wasn't clean and hadn't prepped properly. They just didn't believe I had done everything I was told to, I even starved myself for a week to prepare.
Last year during my colonoscopy the nurse kept on and on asking intrusive questions about my scarring on my arms, not something i wanted to explain to stranger when I have a pipe in my rear.
I have been completely written off by the NHS in regard to my IBS, one doc told me to get a hobby to take my mind off it, bit hard to do when you seem to spend much of the day lying on a bathroom floor unable to move because of the pain.
Sorry to be so boring but I have no one else to talk to.