Mouth Ulcer: Hi does anybody else get mouth... - IBS Network

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Mouth Ulcer

Polly123456 profile image
12 Replies

Hi does anybody else get mouth ulcers, I just seem to get more and more

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Polly123456 profile image
Polly123456
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12 Replies
kath_80 profile image
kath_80

yeah, for over a year now, the dentist was giving me different mouth washes, but in the end said go to the doctor and ask for swabs to be taken of my mouth. After 6 attempts of gel anti biotics and tablet anti biotics, it still has not cleared, so I have had more swabs taken to see what type it is and kill it with a harder course of medication. My mouth is so sore and painful, it's been a long time getting better, worth asking for swabs to be taken at you doctors.

Polly123456 profile image
Polly123456 in reply to kath_80

Thanks Kath, I am so fed up with everything at the moment, I seem to lurch from one thing to the next.

kath_80 profile image
kath_80

I totally understand over the year i've been admitted to hospital around 12 times. The last time was food poisoning, due to the medication for my stomach stopping stomach acid which then makes me prone to catching infections. I may have diabetes now, blood pressure is way to high, and the infection in my mouth just won't go. There always seem to be something, like you say, I am 33 years old and feel I am a mess. I am on a waiting list which is something like 9 months to start the FODmap diet. My stomach seems to be getting better, but it seems many things come with it. I know it's not life threatening and Yes many people worse off than me, but after a few years you get fed up with your life being on hold. All the best x

in reply to kath_80

Are you up for doing FODMAPs without a deititian's help? I started it several months before the NHS got behind it and was so glad I did as it worked briliantly for me. It's a bit daunting to start with (so much to remember), but it's not rocket science and I can tell you where to get the proper info from if you want to give it a go.

Pagan

kath_80 profile image
kath_80 in reply to

Yes Please, no harm in starting yourself and why do nothing whilst waiting. Many Thanks x

in reply to kath_80

The diet was (and is still being) developed at Monash University in Australia, so its website is the best place to start at monash.edu.au – just put FODMAP into the search box on its homepage and you'll get there. If you have an iPhone there’s an app you can download from there, which will also be available for android in September, and a booklet you can send for.

An American dietitian called Patsy Catsos has written an excellent book about FODMAPs called 'IBS - Free At Last' (available from Amazon) which follows the Australian model very closely and contains all the info you need to get going. She also has advice on which food additives to avoid which is really useful.

I didn't find the NHS guidelines for the diet either as strict or as good as Monash's and stuck with what they said along with Patsy's book which became my bible.

When you first read about FODMAPs, you'll wonder what on earth you're actually left with to eat, but you do get used to it. The diet isn't meant to be a life sentence; what it does is to cut out all the food groups which contain the most likely suspects, making it easier to work out what suits you and what doesn't. I found that there were several 'safe' FODMAP foods which weren't safe for me at all, but these were easily identifiable as my menu was so small.

Once you get a real improvement in your symptoms, you then start to reintroduce the different food groups back into your diet one at a time to see which affects you and in which way. After 8 months, I can now eat from all the food groups with very few problems and have identified all my triggers.

I was amazed when I got a result from FODMAPs within 4 days although it can take several weeks for other people, so don't give up if you don't have an immediate result.

Pagan

PatV profile image
PatV in reply to

me too. as long as I carry it everywhere I go and whenever I shop, I can avoid a lot of pain. I was in the process of getting a dietician but then my mother aged 93 had a stroke and I had to fly twice in the last month. It's just hard to follow when you're on the road and under tremendous stress. give it a go!

Polly123456 profile image
Polly123456 in reply to kath_80

Hi Kath, I have had IBS and gastritis for years, back to periscopes up and down again soon. Started epilepsy 6 years ago, severe depression (I wonder why) had mini strokes last year and big op to sort that, so fed up to the teeth. You are a baby to me I am nearly 60. Gosh that sounds old when you write it. Read it quickly. Plus now I have to go for that incapacity medical. As you say we go from one thing to the next. But chin up we will get there, I dont fancy the alternative but some days are soooo hard xx

kath_80 profile image
kath_80 in reply to Polly123456

Yes they are hard at times, but always look to tomorrow as a new day and a new day always brings hope.

My health is terrible, I used to be fit but gradually putting on weight and the medication I am on is making it worse, the doctor was shocked at the 18 items I am prescribed and I think it is not fair, as I don't know what is working and what is not.

I am off work due to depression and this health issue and now my blood pressure and now if I can have children or not, all in all i am finding it tough. I wish I was working, but i seem to be sleeping a lot the last few days, due to a massive headache, now the doctor is worried about my blood pressure where I have to go back and see him next week, due to it being in 200's. I just wish this could all go away. I am getting so angry with life, where as I wouldn't give an opinion before, but I feel like a loose cannon at the moment. No wonder it is high! OOOOH DEAR!!!

Polly123456 profile image
Polly123456 in reply to kath_80

I also had fertility problems so I know the heartbreak that brings. I also suffer 2 to 3 day headaches which I am sure are related to depression even though my doctor said its muscles going into spasm behind my eye. I keep threatening to go to a vet instead. My old doctor laughed at that the new one went in a huff. I think being tired does not help recently have been having bad nights with gastritis swallowing gaviscon at a hell of a rate ending up in the recliner half the night as lying down makes it worse. So my poor husband suffers a very bad tempered wife. We will get there its tough but we will win xx

kath_80 profile image
kath_80

I feel for you. I am short tempered at the moment, really bad thoughts and feeling low. I was a very happy person before all this. The doctors I feel have kept my life on hold as they keep sending me home with Anxiety. The last case was food poisoning. Due to A+E thinking outside the box and testing for it. Honestly The nights are the worst and I feel so low. I have talking therapy every week. It's really tough, which makes me even more stressed at the moment. People think it is helpful to do this, but it really is stressing me.

Polly123456 profile image
Polly123456 in reply to kath_80

I was having therapy and it was really stressing me out my doctor who was fantastic, sadly she has now left, told me to stop as the therapist was pushing me to hard to fast. It was just an added pressure. By all means write a diary, but for you nobody else. Then I got all neurotic about people reading it as I caught my friend next door. Be the same as me if you have a good day enjoy it, bad day keep telling yourself there will be a good day, then we muddle through. But dont push yourself it makes it all worse. Just had a call for me to see the consultant 15th August about colitis and camera down. Hope he can do something before we go on holiday 2nd of Sept but think that is pushing it. Not really looking forward to holiday but pretending to for hubbys sake. Have they told you what infertility problems are ? Try to keep strong xx

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