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Vanishing White Matter (VWM) disease
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Benfotiamine In The Mix For PD Again?
The following new animal study (December 2023) suggests that the fat soluble form of vitamin B1, Benfotiamine, may also be suitable for PD : https://www.sciencedirect.com/science/article/abs/pii/S0014299923007483?via%3Dihub Here is a relevant study quote :
' The results demonstrated that treatment
The following new animal study (December 2023) suggests that the fat soluble form of vitamin B1, Benfotiamine, may also be suitable for PD : https://www.sciencedirect.com/science/article/abs/pii/S0014299923007483?via%3Dihub Here is a relevant study quote :
' The results demonstrated that treatment
chartist
in
Cure Parkinson's
7 months ago
New diagnosis
Hi there, I got I'll from glandular fever in my late teens and have been given different diagnosis over the years and now I have been told I have rheumatoid arthritis. I'm hopefully going to start sulfasalazine and just wondered has this been successful for people? I've been so fatigued for so long,
Hi there, I got I'll from glandular fever in my late teens and have been given different diagnosis over the years and now I have been told I have rheumatoid arthritis. I'm hopefully going to start sulfasalazine and just wondered has this been successful for people? I've been so fatigued for so long,
DogsMakeLifeGood
in
NRAS
4 months ago
TSH 37 - taking Levothyroxine 200mg
hi I was hoping to get some help / advice I have suffered with underactive thyroid for around 4/5 years Started on 75mg Levothyroxine had regular repeat tests over the years and doctor has just increased my Levothyroxine dose each time as my TSH has not reduced my latest result was a TSH of 37
hi I was hoping to get some help / advice I have suffered with underactive thyroid for around 4/5 years Started on 75mg Levothyroxine had regular repeat tests over the years and doctor has just increased my Levothyroxine dose each time as my TSH has not reduced my latest result was a TSH of 37
Jadewhitcombe
in
Thyroid UK
4 months ago
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COVID
I just tested positive for COVID for the first time. I am 67 with Afib/flutter, Inappropriate SinnTschycardia,, I take 25 mg of Metoprolol and -25 mg of klonopin for anxiety. I take 81 mg of aspirin. I have the Atriclip that occluded my left atrial appendage, as I had a near fatal hemorrhage with Eliquis
I just tested positive for COVID for the first time. I am 67 with Afib/flutter, Inappropriate SinnTschycardia,, I take 25 mg of Metoprolol and -25 mg of klonopin for anxiety. I take 81 mg of aspirin. I have the Atriclip that occluded my left atrial appendage, as I had a near fatal hemorrhage with Eliquis
KatzFib
in
Atrial Fibrillation Support
3 months ago
Looking for feedback regarding Asymptomatic Afib
I'm fairly new to this forum and I already feel at home. It's very refreshing to find an online community whose members are so kind, understanding and generous. By way of introduction, I'm a 69-year-old male living in Connecticut. My Afib history is as follows: Diagnosed with Afib by PCP - 8/9/
I'm fairly new to this forum and I already feel at home. It's very refreshing to find an online community whose members are so kind, understanding and generous. By way of introduction, I'm a 69-year-old male living in Connecticut. My Afib history is as follows: Diagnosed with Afib by PCP - 8/9/
DrBook
in
Atrial Fibrillation Support
3 months ago
Belimumab treatment
Hi I have lurked on this site for years but now after reoccurring pericarditis my treatment for lupus will change. I need advice and have questions I've been in Plaqunail and methotrexate for years and tapering off prendsisone at the moment. The pericarditis comes back when I taper off the steriod
Hi I have lurked on this site for years but now after reoccurring pericarditis my treatment for lupus will change. I need advice and have questions I've been in Plaqunail and methotrexate for years and tapering off prendsisone at the moment. The pericarditis comes back when I taper off the steriod
Spacecadet73
in
LUPUS UK
4 months ago
Serum cortisol test results
Hello all, Further to my saliva cortisol test (link to post below), I requested a serum cortisol test at my GPs (8.45am, yesterday): Serum cortisol level 381 nmol/L >350 nmol/L makes adrenal insufficiency unlikely Is this in keeping with my less-than-optimal-and-occasionally-below-range saliva results
Hello all, Further to my saliva cortisol test (link to post below), I requested a serum cortisol test at my GPs (8.45am, yesterday): Serum cortisol level 381 nmol/L >350 nmol/L makes adrenal insufficiency unlikely Is this in keeping with my less-than-optimal-and-occasionally-below-range saliva results
J972
in
Thyroid UK
7 months ago
When to do certain blood tests and why.
Just coming up on my 6 month anniversary of radiation and my 2 months prior to radiation and 4 months post Lupron while on radiation. So I have been off Lupron for 2 months. I had my annual physical yesterday and my GP had ordered complete blood panel with thyroid and PSA. There were no issues with blood
Just coming up on my 6 month anniversary of radiation and my 2 months prior to radiation and 4 months post Lupron while on radiation. So I have been off Lupron for 2 months. I had my annual physical yesterday and my GP had ordered complete blood panel with thyroid and PSA. There were no issues with blood
Mgtd
in
Advanced Prostate Cancer
7 months ago
Interesting article about curing autoimmune diseases
You don't get to view very many free articles, but the Epoch Times had this to say about potentially curing autoimmune diseases. https://www.theepochtimes.com/health/can-autoimmune-disease-be-cured-scientists-say-we-may-be-close-5579207
You don't get to view very many free articles, but the Epoch Times had this to say about potentially curing autoimmune diseases. https://www.theepochtimes.com/health/can-autoimmune-disease-be-cured-scientists-say-we-may-be-close-5579207
CatsandCars
in
My MSAA Community
4 months ago
REMINDER - This Saturday 2nd March - St Georges Hospital from 9.30am - Medical lecture and Q+A with Dr Kaul!
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture on Saturday 2nd March, from 9.30am. Our agenda for the morning as follows: 09.30 Arrival + refreshments
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture on Saturday 2nd March, from 9.30am. Our agenda for the morning as follows: 09.30 Arrival + refreshments
michaellasmith
Administrator
in
LUPUS UK
4 months ago
Focus group with Kuma Health - 8th March 10.30am until 12pm!
We at Kuma Health are passionate about improving the lives of people with lupus. We're designing new tools and resources to make lupus care easier and more effective, and we need your voice! Join our focus group to share your experiences and help us: • Understand the challenges you face daily • Get
We at Kuma Health are passionate about improving the lives of people with lupus. We're designing new tools and resources to make lupus care easier and more effective, and we need your voice! Join our focus group to share your experiences and help us: • Understand the challenges you face daily • Get
michaellasmith
Administrator
in
LUPUS UK
4 months ago
intrinsic factor test
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
Painttube
in
Pernicious Anaemia Society
7 months ago
Currently in phase 1 but promising: Bispecific Antibody Programs and IL-12 Cytokine, XmAb662
early results are positive on solid tumors, including prostate https://www.pharmaceutical-technology.com/data-insights/xmab-662-xencor-metastatic-castration-resistant-prostate-cancer-mcrpc-likelihood-of-approval-2/ Thanks mhamle01 !!
early results are positive on solid tumors, including prostate https://www.pharmaceutical-technology.com/data-insights/xmab-662-xencor-metastatic-castration-resistant-prostate-cancer-mcrpc-likelihood-of-approval-2/ Thanks mhamle01 !!
Maxone73
in
Advanced Prostate Cancer
7 months ago
Have the new guide-lines on B12 deficiency/ Pernicious Anaemia been published yet?
They have been so delayed. .
They have been so delayed. .
wedgewood
in
Pernicious Anaemia Society
4 months ago
weight loss wehovy and AF medication
Started to post and it’s got very long and I mentioned this in that post but I thought I’d make a separate post. I am in atrial fibrillation in the other post. I talk about my age of my weight but this is a specific thing I’m back in atrial fibrillation after 12 weeks of being in normal rhythm. After
Started to post and it’s got very long and I mentioned this in that post but I thought I’d make a separate post. I am in atrial fibrillation in the other post. I talk about my age of my weight but this is a specific thing I’m back in atrial fibrillation after 12 weeks of being in normal rhythm. After
Mightnot
in
Atrial Fibrillation Support
3 months ago
Half moons on fingers
Hey guys, I have an underactive thyroid and know the importance of getting vitamin levela checked Is it true that lack of or small half moons can be a sign of deficiencies? Just took a photo or my fingers, what do people think? If zoomed in, can just about see half moon on some
Hey guys, I have an underactive thyroid and know the importance of getting vitamin levela checked Is it true that lack of or small half moons can be a sign of deficiencies? Just took a photo or my fingers, what do people think? If zoomed in, can just about see half moon on some
yewotc23
in
Thyroid UK
4 months ago
Scans other than PSMA for PC
My husband’s PSA continues to rise yet his PSMA scans are all clear. His last PSMA was late October with a PSA of 4.7 His PSA today was 6.5 It seems I have noted on this forum some other type scans should be done besides PSMA. His ALK PHOSPHATE is 85 (normal) Calcium levels all normal. Thanks
My husband’s PSA continues to rise yet his PSMA scans are all clear. His last PSMA was late October with a PSA of 4.7 His PSA today was 6.5 It seems I have noted on this forum some other type scans should be done besides PSMA. His ALK PHOSPHATE is 85 (normal) Calcium levels all normal. Thanks
JolleySprings
in
Advanced Prostate Cancer
7 months ago
Advice needed on thyroxine management
I am hoping someone can advise me about my thyroxine dose. Here's a little background: In September 2023, I was underweight and having trouble gaining weight and suffering from anxiety. I had been on 75mcg of levothyroxine daily for an underactive thyroid. I had recently developed pins and needles
I am hoping someone can advise me about my thyroxine dose. Here's a little background: In September 2023, I was underweight and having trouble gaining weight and suffering from anxiety. I had been on 75mcg of levothyroxine daily for an underactive thyroid. I had recently developed pins and needles
SarrahMay
in
Thyroid UK
4 months ago
Should I be concerned about a PSA of 0.53 after SBRT treatment for one spot.
After 18 months of undetectable PSA (after ADT & 44 IMRT treatments) , my PSA started to rise this summer and was 2.66 at it's highest. My RO send me for a PSMA- Pet scan and he found one spot on T-10. 5 treatment with SBRT in Oct - Nov and now on Dec 6th my PSA was tested to
0.53.
Should
After 18 months of undetectable PSA (after ADT & 44 IMRT treatments) , my PSA started to rise this summer and was 2.66 at it's highest. My RO send me for a PSMA- Pet scan and he found one spot on T-10. 5 treatment with SBRT in Oct - Nov and now on Dec 6th my PSA was tested to
0.53.
Should
VCinTx
in
Advanced Prostate Cancer
7 months ago
Lopressor
After unsuccessful Cardioversion to convert back into NSR was diagnosed with permanent afib taken off of Multaq. Lopressor increased from 25 to 100 am and 50 pm. Also on Eliquis. Vision is blurred and very unsteady gait. Hr around 100-115 (was 60 when in NSR) Can I cut back on Lopressor and see
After unsuccessful Cardioversion to convert back into NSR was diagnosed with permanent afib taken off of Multaq. Lopressor increased from 25 to 100 am and 50 pm. Also on Eliquis. Vision is blurred and very unsteady gait. Hr around 100-115 (was 60 when in NSR) Can I cut back on Lopressor and see
farewelltoarms
in
Atrial Fibrillation Support
3 months ago
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