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Vanishing White Matter (VWM) disease
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Healthy liver to Cirrhosis
Hello, approximately two years ago I was submitted to hospital with Jaundice after a binge drinking session. I was given an Ultrasound, and told that my results were “clear” and that my liver was normal sized and regular in outline. I was released the next day and given a prescription of Thymine .
Hello, approximately two years ago I was submitted to hospital with Jaundice after a binge drinking session. I was given an Ultrasound, and told that my results were “clear” and that my liver was normal sized and regular in outline. I was released the next day and given a prescription of Thymine .
DJK78
in
British Liver Trust
5 months ago
Bechets
I am still very much at the beginning of my journey. I have suffered from mouth ulsers most of my life with no diagnosis or reason to why. It was when I was pregnant in 2020 that I started suffering with vaginal uslers to be told it was due to my pregnancy, they continued after my son was born to
I am still very much at the beginning of my journey. I have suffered from mouth ulsers most of my life with no diagnosis or reason to why. It was when I was pregnant in 2020 that I started suffering with vaginal uslers to be told it was due to my pregnancy, they continued after my son was born to
Mummyof7
in
Behçet's UK
5 months ago
Parkinson's Patients See Hope in Novel Stem Cell Repair Method
In work funded by The Michael J. Fox Foundation for Parkinson's Research (MJFF) and Science Foundation Ireland, published this week in the Journal of Neural Engineering, the team in the College of Medicine, Nursing and Health Sciences at University of Galway have shown that transplanting the immature
In work funded by The Michael J. Fox Foundation for Parkinson's Research (MJFF) and Science Foundation Ireland, published this week in the Journal of Neural Engineering, the team in the College of Medicine, Nursing and Health Sciences at University of Galway have shown that transplanting the immature
Farooqji
in
Cure Parkinson's
5 months ago
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Xtandi worked great
After radiation to prostate bed and to one pelvic metastasis, I was on xtandi and Lupton for three years and now have been on "vacation " for a year with PSA of 0.02 and testosterone at 4. No meds at all for last11 months!Had a heart attack in May '23 (which I attribute to covid shots) , doctors told
After radiation to prostate bed and to one pelvic metastasis, I was on xtandi and Lupton for three years and now have been on "vacation " for a year with PSA of 0.02 and testosterone at 4. No meds at all for last11 months!Had a heart attack in May '23 (which I attribute to covid shots) , doctors told
JAK2243
in
Advanced Prostate Cancer
5 months ago
PSA Bounce After Radiation Therapy
I am trying to understand PSA bounce or change in PSA levels after RT and have found two studies useful. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7465291/ https://www.nature.com/articles/s41391-021-00387-4 Some analysts distinguish between PSA bounce and biological recurrence, and see a possibility
I am trying to understand PSA bounce or change in PSA levels after RT and have found two studies useful. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7465291/ https://www.nature.com/articles/s41391-021-00387-4 Some analysts distinguish between PSA bounce and biological recurrence, and see a possibility
kainasar
in
Advanced Prostate Cancer
5 months ago
Ascites
Hi in June 2019 whilst on holiday in Italy my tummy swelled up a n d I felt unwell on return to England was taken to hospital when my tummy was drained and I was diagnosed with liver cirrhosisI have never been a big drinker so was very shocked since then I don't have a drink and very careful with salt
Hi in June 2019 whilst on holiday in Italy my tummy swelled up a n d I felt unwell on return to England was taken to hospital when my tummy was drained and I was diagnosed with liver cirrhosisI have never been a big drinker so was very shocked since then I don't have a drink and very careful with salt
Rookery31
in
British Liver Trust
5 months ago
The best advice I can or may ever give to anyone who has Parkinson's especially the newly diagnosed .
The Davis Phinney Foundation for Parkinson's in partnership with Parkinson's Canada has published the Canadian edition of the book "Every Victory Counts". It is my understanding that they have published this book in associations with several national Parkinson's groups and are making it available
The Davis Phinney Foundation for Parkinson's in partnership with Parkinson's Canada has published the Canadian edition of the book "Every Victory Counts". It is my understanding that they have published this book in associations with several national Parkinson's groups and are making it available
Gymsack
in
Cure Parkinson's
5 months ago
Prescription drug induced Fibrosis
Hi. Wondering if anyone on here has had the above diagnosis. The drug involved was Nitrofuratan. The Consultant has told me the scarring will not heal.
Hi. Wondering if anyone on here has had the above diagnosis. The drug involved was Nitrofuratan. The Consultant has told me the scarring will not heal.
Suekee2
in
British Liver Trust
5 months ago
Am I becoming castrate resistant on orgovix?
I moved again and hopefully this will be the last time. So, I have had to put together a new Medical team and meet my new MO this Tuesday. My bio is pretty up to date. I'm stage 4 and have some lymph node mets and some bone mets. It's been over a year since my last scan which showed improvement from
I moved again and hopefully this will be the last time. So, I have had to put together a new Medical team and meet my new MO this Tuesday. My bio is pretty up to date. I'm stage 4 and have some lymph node mets and some bone mets. It's been over a year since my last scan which showed improvement from
Startech
in
Advanced Prostate Cancer
5 months ago
Has anyone tried Piracetam for Parkinson's disease.
Hi, was diagnosed with Parkinson's August 2023. Taking one Levocarb CR 200/50 MG for tremor. Also using Coronet 4 light helmet therapy twice daily and symbyx 904 PD care laser on gut alternate days ,along with vibratory gloves alternate days with great results. Heard that Piracetam might help,wondering
Hi, was diagnosed with Parkinson's August 2023. Taking one Levocarb CR 200/50 MG for tremor. Also using Coronet 4 light helmet therapy twice daily and symbyx 904 PD care laser on gut alternate days ,along with vibratory gloves alternate days with great results. Heard that Piracetam might help,wondering
Logon206500
in
Cure Parkinson's
5 months ago
UPDATE
UPDATE Hi folks, I havnt been very active recently - mostly because things were going slowly, but well with my PCA. Ive just had my latest bloodwork which confirms a PCA increase with a doubling time of about 6 months. This is all very standard and to be expected - I am 4.3 years out from PSA of 1000
UPDATE Hi folks, I havnt been very active recently - mostly because things were going slowly, but well with my PCA. Ive just had my latest bloodwork which confirms a PCA increase with a doubling time of about 6 months. This is all very standard and to be expected - I am 4.3 years out from PSA of 1000
Stoneartist
in
Advanced Prostate Cancer
5 months ago
NUV-1511 drug-drug conjugate (DDC) to enter the clinical stage: phase 1
"Dosing the first patient with NUV-1511 marks a significant milestone for our proprietary DDC platform, from which we are developing potent oncology-focused chimeric small molecules designed to selectively deliver anti-cancer therapeutics to cancer cells, while mitigating effects on healthy non-target
"Dosing the first patient with NUV-1511 marks a significant milestone for our proprietary DDC platform, from which we are developing potent oncology-focused chimeric small molecules designed to selectively deliver anti-cancer therapeutics to cancer cells, while mitigating effects on healthy non-target
Maxone73
in
Advanced Prostate Cancer
5 months ago
Coarsened Hepatic Echotexture
This finding is from the newest elastography. I thought I was doing everything right. KPA in 2022 was 10.5 F2-F.3, now it's 5.5 F0-F0-F1. I quit drinking alcohol in 2020, went on Mediterranean diet, and walk 1-3 miles per day. The only vice I have is baked goods, cookies, cake, and candy. 2022
This finding is from the newest elastography. I thought I was doing everything right. KPA in 2022 was 10.5 F2-F.3, now it's 5.5 F0-F0-F1. I quit drinking alcohol in 2020, went on Mediterranean diet, and walk 1-3 miles per day. The only vice I have is baked goods, cookies, cake, and candy. 2022
Evelyn22
in
British Liver Trust
5 months ago
AS the Journey continues
Well, the Board did complete its investigation. Five doctors were reprimanded. The resident on duty the night of the loss is no longer allowed to practice. The ICU doctor is no longer an ICU doctor but is still practicing—three more doctors whose disciplinary hearing was held behind closed doors three
Well, the Board did complete its investigation. Five doctors were reprimanded. The resident on duty the night of the loss is no longer allowed to practice. The ICU doctor is no longer an ICU doctor but is still practicing—three more doctors whose disciplinary hearing was held behind closed doors three
ceward204
in
British Liver Trust
5 months ago
Synacthen Test
Hi, I received a letter from my Rheumatologist saying that my cortisol levels are normal following the Synacthen test 2 weeks ago. It says it is now safe to stop taking steroids. My question is, as i have been on steroids for over 5 years should i just stop or continue reducing. I am now taking 2.5mg
Hi, I received a letter from my Rheumatologist saying that my cortisol levels are normal following the Synacthen test 2 weeks ago. It says it is now safe to stop taking steroids. My question is, as i have been on steroids for over 5 years should i just stop or continue reducing. I am now taking 2.5mg
studiomaster
in
PMRGCAuk
5 months ago
Fiancé is in desperate need of a kidney
hi, My fiancé was born with a hereditary kidney disease. He’s been on dialysis for 3 years and is in dire need of a kidney. He’s been so positive and happy during this time , he even started a business this year all while being on dialysis. It’s been very inspiring to watch! I want to spread the
hi, My fiancé was born with a hereditary kidney disease. He’s been on dialysis for 3 years and is in dire need of a kidney. He’s been so positive and happy during this time , he even started a business this year all while being on dialysis. It’s been very inspiring to watch! I want to spread the
Nickywesley
in
Kidney Dialysis
5 months ago
Radiation after Docetaxel
My dad finished chemo Docetaxel in November 2023. In December his PSA was .61. In February it jumped to 2.3. He went for a PET scan. He went back to the doctor today his PSA jumped to 6. The scan showed that many of the metastasis in his bones shrunk are almost gone. There is one spot in his back that
My dad finished chemo Docetaxel in November 2023. In December his PSA was .61. In February it jumped to 2.3. He went for a PET scan. He went back to the doctor today his PSA jumped to 6. The scan showed that many of the metastasis in his bones shrunk are almost gone. There is one spot in his back that
Jshaw916
in
Advanced Prostate Cancer
5 months ago
We understand....
In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving liver transplant almost 19 years ago. In about 25% of those with liver transplants the PBC returns. We have to remember that our body still has the tendency to 'attack' it's own bile ducts and bile duct
In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving liver transplant almost 19 years ago. In about 25% of those with liver transplants the PBC returns. We have to remember that our body still has the tendency to 'attack' it's own bile ducts and bile duct
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
AbbVie’s Produodopa approved by SMC to treat Parkinson’s disease patients in Scotland
AbbVie’s Produodopa (foslevodopa-foscarbidopa) has been accepted by the Scottish Medicines Consortium (SMC) for use within NHS Scotland to treat advanced levodopa-responsive Parkinson’s disease (PD). PD patients with severe motor fluctuations and hyperkinesia or dyskinesia when previous available combinations
AbbVie’s Produodopa (foslevodopa-foscarbidopa) has been accepted by the Scottish Medicines Consortium (SMC) for use within NHS Scotland to treat advanced levodopa-responsive Parkinson’s disease (PD). PD patients with severe motor fluctuations and hyperkinesia or dyskinesia when previous available combinations
Farooqji
in
Cure Parkinson's
5 months ago
Wednesday's 'Word'
[u][i]
NAFLD -
[/i][/u] Non alcoholic fatty liver disease. This is very common, characterized by deposits of fat in the liver cells. When these deposits cause inflammation and fat cells build up, it is known as [u][i]
NASH
[/i][/u] or non alcoholic steatohepatitis. It is often very common
[u][i]
NAFLD -
[/i][/u] Non alcoholic fatty liver disease. This is very common, characterized by deposits of fat in the liver cells. When these deposits cause inflammation and fat cells build up, it is known as [u][i]
NASH
[/i][/u] or non alcoholic steatohepatitis. It is often very common
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
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