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Vanishing White Matter (VWM) disease
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advice on synacthen test
for anyone who has been following my story they will know I’ve been having medication issues and I am now taking T3 only. Still having issues with weight gain. Spoke to my endocrinologist last week and she has agreed the increase to 40mcg. This was after she had suggested trying a small dose of levothyroxine
for anyone who has been following my story they will know I’ve been having medication issues and I am now taking T3 only. Still having issues with weight gain. Spoke to my endocrinologist last week and she has agreed the increase to 40mcg. This was after she had suggested trying a small dose of levothyroxine
ScriptMaz
in
Thyroid UK
3 months ago
Update, small cell
Hi everyone, It's been a while since I posted but check in time to time. I'm not really sure of the purpose of this update is except we don't have a lot of family so I'm hoping writing it down will help. Please be sensitive as I'm struggling. I really can't hear about should of dones. My husband was
Hi everyone, It's been a while since I posted but check in time to time. I'm not really sure of the purpose of this update is except we don't have a lot of family so I'm hoping writing it down will help. Please be sensitive as I'm struggling. I really can't hear about should of dones. My husband was
Fdccs
in
Advanced Prostate Cancer
3 months ago
spider nevi?
Hello I have recently been pregnant and I am now breastfeeding my third child. I used to drink too much alcohol but I don't anymore. For some time now I have had a rash, in the face mostly. is it a spider nevi? can't see a central point but small veins. am of course worried that my past sins may have
Hello I have recently been pregnant and I am now breastfeeding my third child. I used to drink too much alcohol but I don't anymore. For some time now I have had a rash, in the face mostly. is it a spider nevi? can't see a central point but small veins. am of course worried that my past sins may have
Spider2
in
British Liver Trust
3 months ago
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pale stool after yellow diarrhea
I’ve been high anxiety googling why pale stool for a couple days now following bout of yellowish diarrhea. anyone had this symptom? going to quit alcohol for good (I’ve gone years at times other 10 months, others a few…) baffling why I put myself through this worry and multiple times now. After a few
I’ve been high anxiety googling why pale stool for a couple days now following bout of yellowish diarrhea. anyone had this symptom? going to quit alcohol for good (I’ve gone years at times other 10 months, others a few…) baffling why I put myself through this worry and multiple times now. After a few
Mtseagirl
in
British Liver Trust
3 months ago
refusing treatment how fast do people decline?
hubby has ARLD he was on the transplant list but took himself off due to PTSD. He is not drunk alcohol for two years since he was first hospitalised with decompensated liver he has no acides or varies for the last 18 months. he has had HE the whole time and is treated for this. he was doing okay. He
hubby has ARLD he was on the transplant list but took himself off due to PTSD. He is not drunk alcohol for two years since he was first hospitalised with decompensated liver he has no acides or varies for the last 18 months. he has had HE the whole time and is treated for this. he was doing okay. He
Bluescarf123
in
British Liver Trust
3 months ago
In vivo/vitro: Dickkopf-1 (DKK1) drives growth and metastases in castration-resistant prostate cancer
...does "kopf" mean head? because I could switch to call my cancer dickkopf in that case! Anyway, thanks to CRISPR we have discovered another pathway...they have discovered another pathway! https://communities.springernature.com/posts/dickkopf-1-dkk1-drives-growth-and-metastases-in-castration-resistant-prostate-cancer
...does "kopf" mean head? because I could switch to call my cancer dickkopf in that case! Anyway, thanks to CRISPR we have discovered another pathway...they have discovered another pathway! https://communities.springernature.com/posts/dickkopf-1-dkk1-drives-growth-and-metastases-in-castration-resistant-prostate-cancer
Maxone73
in
Advanced Prostate Cancer
3 months ago
Next step
Just finished up with chemo. Went from 139 psa @ dx to 1.66. I didn't make it to the non detectable team. Not sure what to think as many here with higher psa's have gone down lower. I'm currently still on Orgovyx and Nubeqa. Should I ask for more rounds of chemo as I've done 6 ? Will my PSA possibly
Just finished up with chemo. Went from 139 psa @ dx to 1.66. I didn't make it to the non detectable team. Not sure what to think as many here with higher psa's have gone down lower. I'm currently still on Orgovyx and Nubeqa. Should I ask for more rounds of chemo as I've done 6 ? Will my PSA possibly
APK3
in
Advanced Prostate Cancer
3 months ago
Found a Reliable Place to Buy Enzalutamide Prostate Cancer Medication at Low Price
I found a trustworthy place to purchase Enzalutamide, a medication for prostate cancer, at a fair price. I bought it from Oddway International, an Indian pharmaceutical distributor. They were really helpful and answered all my questions patiently. The medicine arrived on time and at a price I could afford
I found a trustworthy place to purchase Enzalutamide, a medication for prostate cancer, at a fair price. I bought it from Oddway International, an Indian pharmaceutical distributor. They were really helpful and answered all my questions patiently. The medicine arrived on time and at a price I could afford
davidjroberts
in
Fight Prostate Cancer
3 months ago
High temperature
Hi everyone,I am a bit lost about what is happening and doctors do not seem to give clear answers. My mum has been on Dialysis for a few years and suddenly recently she started having a high temperature after dialysis which disappears the day after but comes back after another dialysis again. She has
Hi everyone,I am a bit lost about what is happening and doctors do not seem to give clear answers. My mum has been on Dialysis for a few years and suddenly recently she started having a high temperature after dialysis which disappears the day after but comes back after another dialysis again. She has
OggieSh
in
Kidney Dialysis
3 months ago
Abdominal burning pain
Do people suffer with burning pain, a bit like IBS pain, but more constant and burning anywhere across the abdomen. I am still awaiting tests to confirm PA, but I know I have a very high pH, so almost no stomach acid, which is obviously causing the pain. I eat a varied diet, not much in the way of processed
Do people suffer with burning pain, a bit like IBS pain, but more constant and burning anywhere across the abdomen. I am still awaiting tests to confirm PA, but I know I have a very high pH, so almost no stomach acid, which is obviously causing the pain. I eat a varied diet, not much in the way of processed
Chickens44
in
Pernicious Anaemia Society
3 months ago
My up and down PSA levels.
On this journey I have had an up and down PSA level. My first indication was of 107 . With various drugs and 25 sessions of radiation,PSA was down to .075. That was November 23.December 23...PSA 18 Consultant told me my prostate had metastasize in to my lung. PSA rose to 117...started chemo March 23.
On this journey I have had an up and down PSA level. My first indication was of 107 . With various drugs and 25 sessions of radiation,PSA was down to .075. That was November 23.December 23...PSA 18 Consultant told me my prostate had metastasize in to my lung. PSA rose to 117...started chemo March 23.
PDH2024
in
Advanced Prostate Cancer
3 months ago
Dialysis or transplantation
Hallo everyone. I want to start form little story. According to my nephrologist I have CKD because of genetical legacy. And it seems to be true. My sister had a similar diagnosis. In her's 23 she went to PD. It was in middle 2000's, local dialysis treatment was not so developed as now. She needed
Hallo everyone. I want to start form little story. According to my nephrologist I have CKD because of genetical legacy. And it seems to be true. My sister had a similar diagnosis. In her's 23 she went to PD. It was in middle 2000's, local dialysis treatment was not so developed as now. She needed
TomMilds
in
Kidney Dialysis
3 months ago
Reiki
does anyone know if Reiki works on liver disease , especially for cirrhosis which I’ve been diagnosed with 😩? I have read Reiki does but was hoping to get it clarified. Does Crohn’s affect the liver too?? Thank you all.
does anyone know if Reiki works on liver disease , especially for cirrhosis which I’ve been diagnosed with 😩? I have read Reiki does but was hoping to get it clarified. Does Crohn’s affect the liver too?? Thank you all.
Maggie153
in
British Liver Trust
3 months ago
Getting head around what to expect
I like to have facts. In times of stress I think Facts are our friend. Better to be prepared, mentally, physically, financially, with support systems, etc.. so looking for any insights as to what I should expect and prepare my husband, myself and my kids/family for in the weeks and months, years ahead
I like to have facts. In times of stress I think Facts are our friend. Better to be prepared, mentally, physically, financially, with support systems, etc.. so looking for any insights as to what I should expect and prepare my husband, myself and my kids/family for in the weeks and months, years ahead
Melzer2169
in
Advanced Prostate Cancer
3 months ago
Decompensated liver
good morning, following on from my post a few weeks ago about my brother, a couple of weeks after I posted he was admitted into hospital again with fluid in the lungs, kept on critical care for a couple of weeks on a chest drain, It was decided by the doctors that the chest drain was serving no purpose
good morning, following on from my post a few weeks ago about my brother, a couple of weeks after I posted he was admitted into hospital again with fluid in the lungs, kept on critical care for a couple of weeks on a chest drain, It was decided by the doctors that the chest drain was serving no purpose
tomgill
in
British Liver Trust
3 months ago
Dopamine
I just read that dopamine is made in the adrenals I had not heard this in the past so I am wondering what does this all mean? So maybe there is dopamine being made but the cells can't use it properly? "Dopamine, epinephrine and norepinephrine are the main catecholamines (a label based on having part
I just read that dopamine is made in the adrenals I had not heard this in the past so I am wondering what does this all mean? So maybe there is dopamine being made but the cells can't use it properly? "Dopamine, epinephrine and norepinephrine are the main catecholamines (a label based on having part
Boscoejean
in
Cure Parkinson's
3 months ago
Pulmonary Complications Post Lutetium-177-PSMA-617 Therapy in Metastatic Castration-Resistant Prostate Cancer #Pluvicto
We present the case of a patient with heavily pretreated metastatic castration-resistant prostate cancer (mCRPC) who underwent treatment with lutetium Lu-177 vipivotide tetraxetan (also known as 177Lu-PSMA-617) due to progressive disease despite multiple lines of therapy, including chemotherapy, hormonal
We present the case of a patient with heavily pretreated metastatic castration-resistant prostate cancer (mCRPC) who underwent treatment with lutetium Lu-177 vipivotide tetraxetan (also known as 177Lu-PSMA-617) due to progressive disease despite multiple lines of therapy, including chemotherapy, hormonal
God_Loves_Me
in
Advanced Prostate Cancer
3 months ago
MRI Scan was pure hell.
Hi, First post since my introduction post, (Still a bit nervous) Hope I've put it in the right place. And I am doing it right. Sorry if I'm/it's not. Am I even allowed to post things like this. Is this a pointless post. I'm just back from getting my whole pine & head MRI 😩 Hopefully get results
Hi, First post since my introduction post, (Still a bit nervous) Hope I've put it in the right place. And I am doing it right. Sorry if I'm/it's not. Am I even allowed to post things like this. Is this a pointless post. I'm just back from getting my whole pine & head MRI 😩 Hopefully get results
saxcat
in
Fibromyalgia Action UK
3 months ago
High stomach pH
I have just done a second gut microbiome test. The first one I did in August last year showed I had a score of 7.2, which indicated I have little stomach acid. The one I have just done has come back higher at 8.1 (ideal range should be 5.8 - 6.5). Does anyone else have this? Is is a good indication
I have just done a second gut microbiome test. The first one I did in August last year showed I had a score of 7.2, which indicated I have little stomach acid. The one I have just done has come back higher at 8.1 (ideal range should be 5.8 - 6.5). Does anyone else have this? Is is a good indication
Chickens44
in
Pernicious Anaemia Society
3 months ago
possible hep c infection
I wonder if anyone can advise me please. My wonderful 76 year old mum was given a blood transfusion after the birth of me 48 years ago. Over the years her blood test has shown slightly elevated bilirubin but no further action was taken, I think we hoped it would be Gilbert’s syndrome. I know she knows
I wonder if anyone can advise me please. My wonderful 76 year old mum was given a blood transfusion after the birth of me 48 years ago. Over the years her blood test has shown slightly elevated bilirubin but no further action was taken, I think we hoped it would be Gilbert’s syndrome. I know she knows
Worrylou
in
British Liver Trust
3 months ago
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