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Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
1 month ago
Latest Results for Advice
I thought I would have seen and felt a slight difference starting or Armour. What would be you advice regarding my results? I am under private endo and was started 7 weeks ago on 1/2 grains of Armour only, I was previously on 50 Levo. I had bloods drawn 2 days running one private by BH at 9am and the
I thought I would have seen and felt a slight difference starting or Armour. What would be you advice regarding my results? I am under private endo and was started 7 weeks ago on 1/2 grains of Armour only, I was previously on 50 Levo. I had bloods drawn 2 days running one private by BH at 9am and the
Albaangel
in
Thyroid UK
1 month ago
Latest blood results
Advice appreciated on latest results. Hi im on 100mg levothyroxine per day. Range T.S.H 1.21. 0.27-4.2 T3 2.5. 3.1-6.8 T4. 22.2. 12-22 THYROGLOBIN. 15.6. 0-115 THYROID ANTIBODIES <9 0-34 CRP
Advice appreciated on latest results. Hi im on 100mg levothyroxine per day. Range T.S.H 1.21. 0.27-4.2 T3 2.5. 3.1-6.8 T4. 22.2. 12-22 THYROGLOBIN. 15.6. 0-115 THYROID ANTIBODIES <9 0-34 CRP
Ganggywaller
in
Thyroid UK
1 month ago
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Goats milk kefir
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Chickens44
in
Pernicious Anaemia Society
1 month ago
Hypothyroidism and Pernicious Anaemia assistance please
Hello there, I am new to this site and am usually on the Pernicious Anaemia page but hope someone can give me advice please. I have been taking Levothyroxine since the late 1990's and have kept on 125mcg per day and been fine until the last few months. I have always struggled to convert T4 to T3 and
Hello there, I am new to this site and am usually on the Pernicious Anaemia page but hope someone can give me advice please. I have been taking Levothyroxine since the late 1990's and have kept on 125mcg per day and been fine until the last few months. I have always struggled to convert T4 to T3 and
yorkshiregirl4
in
Thyroid UK
1 month ago
High doses of B12
Can one overdose on B12? Can it be given in mega doses like B1? Is it advisable for PWP to take extra high doses of B12? My WWP recently had a blood test and her B12 levels were only slightly higher by about 10% of the recommended levels.
Can one overdose on B12? Can it be given in mega doses like B1? Is it advisable for PWP to take extra high doses of B12? My WWP recently had a blood test and her B12 levels were only slightly higher by about 10% of the recommended levels.
Rafiki2
in
Cure Parkinson's
1 month ago
My last post for a while, Thanks everyone!!!
I’d like to thank everyone for all the support though the years of my PD. I have come quite a aways. Your kindness and support helped me get through the hardest years of my life. I will check back from time to time if I come up with something that can help others. I have chosen to let go of my Parkinson
I’d like to thank everyone for all the support though the years of my PD. I have come quite a aways. Your kindness and support helped me get through the hardest years of my life. I will check back from time to time if I come up with something that can help others. I have chosen to let go of my Parkinson
38yroldmale
in
Cure Parkinson's
1 month ago
My Platelets go down during the warmer months...
Hello everyone, I am new here--diagnosed in 2018 with JAK2+ ET, platelets currently in the low 600's. Here is my question: every year since I was diagnosed my platelets are much better in my May and September labs and then are much higher in December and March. For example, I was at 506 in September
Hello everyone, I am new here--diagnosed in 2018 with JAK2+ ET, platelets currently in the low 600's. Here is my question: every year since I was diagnosed my platelets are much better in my May and September labs and then are much higher in December and March. For example, I was at 506 in September
Plateletsgonewild
in
MPN Voice
1 month ago
Chlorella
I have been told that chlorella is a good source of b12 but I am doubtful that in a daily dose of 10 chlorella tablets you would get sufficient b12? I would be grateful for any info/advice. Thanks Vonni
I have been told that chlorella is a good source of b12 but I am doubtful that in a daily dose of 10 chlorella tablets you would get sufficient b12? I would be grateful for any info/advice. Thanks Vonni
Vonni7
in
Pernicious Anaemia Society
1 month ago
New to the group - looking for some realistic advice on recovery time after loading doses
Hi all. I am new to the group and this delightful condition we all have! Similar story to many, blood tests showing low B12/folate/ferritin (although this hasn't been mentioned at all by my GP). Had 6 x loading doses followed by 5mg folic acid that I'm on for three months. I was told last week that since
Hi all. I am new to the group and this delightful condition we all have! Similar story to many, blood tests showing low B12/folate/ferritin (although this hasn't been mentioned at all by my GP). Had 6 x loading doses followed by 5mg folic acid that I'm on for three months. I was told last week that since
ClaireWF1346
in
Pernicious Anaemia Society
1 month ago
Question for you 🙏
Tried
vitamins
. Nada 👎. Feeling like I’m running out of options.
Tried
vitamins
. Nada 👎. Feeling like I’m running out of options.
SarahJane1471
in
Thyroid UK
1 year ago
Folate supplements with B12 injections
I am currently receiving loading doses (3 so far). I was low on B12 at 170 and low on folate (about 2) as well as macrocytic but not anaemic. Incidentally, I have low WBC but they are not sure if this is due to a bad infection a couple of months ago.I have been prescribed folate supplements but I didn't
I am currently receiving loading doses (3 so far). I was low on B12 at 170 and low on folate (about 2) as well as macrocytic but not anaemic. Incidentally, I have low WBC but they are not sure if this is due to a bad infection a couple of months ago.I have been prescribed folate supplements but I didn't
La2016
in
Pernicious Anaemia Society
1 month ago
diet and Tinnitus
Came across this study and thought it may be of interest to some on here. Relationship Between Diet and Tinnitus: Korea National Health and Nutrition Examination Survey Here is the article https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6102331/ below is the conclusion - Conclusion Reduced intake
Came across this study and thought it may be of interest to some on here. Relationship Between Diet and Tinnitus: Korea National Health and Nutrition Examination Survey Here is the article https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6102331/ below is the conclusion - Conclusion Reduced intake
AnotherLevel
in
Tinnitus UK
1 month ago
low levels despite frequent injections?
My b12 levels are still low despite 8 months of frequent injections. My doctor doesn’t know why and I have to see a hematologist. has this happened to anyone else? Any thoughts as to what it might be?
My b12 levels are still low despite 8 months of frequent injections. My doctor doesn’t know why and I have to see a hematologist. has this happened to anyone else? Any thoughts as to what it might be?
Merlotponty
in
Pernicious Anaemia Society
1 month ago
High TSH (which keeps rising over the years) and consistently high T4 for 7 years with no major symptoms.
Hi, Over the last 7 years, my TSH has kept rising from around 5.88 and now it is at 11.9. My T4 has stayed consistently high at between 19 and 20 throughout this time. My antibodies test are normal with nearly non-existent antibodies and my T3 was normal in the middle of the range. All my other blood
Hi, Over the last 7 years, my TSH has kept rising from around 5.88 and now it is at 11.9. My T4 has stayed consistently high at between 19 and 20 throughout this time. My antibodies test are normal with nearly non-existent antibodies and my T3 was normal in the middle of the range. All my other blood
kev269
in
Thyroid UK
1 month ago
Latest blood results
Hi everyone, sorry have not been here for some time , have had a lot of unresolved health issues, am fighting with NHS and have been for a long time now , am still battling Sarcoidosis and am not being listened to by doctors and gp , but as its autoimmune and not thyroid related , can't go into it here
Hi everyone, sorry have not been here for some time , have had a lot of unresolved health issues, am fighting with NHS and have been for a long time now , am still battling Sarcoidosis and am not being listened to by doctors and gp , but as its autoimmune and not thyroid related , can't go into it here
Sweetpea1157
in
Thyroid UK
1 month ago
levodopa or not levodopa
Hello nice people, I have been diagnosed 2 years ago, I have mild symptoms I believe, only left arm reduced movements and slowness of my all body movements. I have no pains , no nightmares, no constipation, no loss of smell and no to all other symptoms. I sleep 8 hours per night. My sister describes
Hello nice people, I have been diagnosed 2 years ago, I have mild symptoms I believe, only left arm reduced movements and slowness of my all body movements. I have no pains , no nightmares, no constipation, no loss of smell and no to all other symptoms. I sleep 8 hours per night. My sister describes
LorenzaS
in
Cure Parkinson's
1 month ago
Advice plesse t3 trial
Can anyone add any advice please. I have been on a trial of T3 thybon henning for seven weeks 5mcg twice daily 7am and 3pm. Plus 75mcg of T4 Accord at 7am.Ive been doing ok but still struggling with sleep, constipation and lack of energy. Bloods taken as advised by private endo morning before taking
Can anyone add any advice please. I have been on a trial of T3 thybon henning for seven weeks 5mcg twice daily 7am and 3pm. Plus 75mcg of T4 Accord at 7am.Ive been doing ok but still struggling with sleep, constipation and lack of energy. Bloods taken as advised by private endo morning before taking
Soaping
in
Thyroid UK
1 month ago
Do Drs get a bonus for prescribing certain drugs ?
Does anybody know if Gps get a hand out for prescribing statins ? There has been a lot of controversy in regard to this topic. Late yesterday afternoon I had a call from my surgery. It was a Dr I had never heard of or had I spoken to her before. She was suggesting I were put on statins! I asked for
Does anybody know if Gps get a hand out for prescribing statins ? There has been a lot of controversy in regard to this topic. Late yesterday afternoon I had a call from my surgery. It was a Dr I had never heard of or had I spoken to her before. She was suggesting I were put on statins! I asked for
Jillymo
in
Pernicious Anaemia Society
1 month ago
Blood Results
Hi, Following my last post, I have visited my GP due to ongoing palpitations. She was very sympathetic and did me a full run of blood tests. All came back ‘normal’ my TSH even slightly down to my last test. Bloods were taken at 9.15am as advised. I am not prescribed any thyroid medication and take 3000
Hi, Following my last post, I have visited my GP due to ongoing palpitations. She was very sympathetic and did me a full run of blood tests. All came back ‘normal’ my TSH even slightly down to my last test. Bloods were taken at 9.15am as advised. I am not prescribed any thyroid medication and take 3000
Johannab89
in
Thyroid UK
1 month ago
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