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Peripheral neuropathy
Hi to the CLL community , on cycle 8 of my V and O treatment and now on Venetoclax for the last 4 months. Have had the venetoclax reduced to 200mg for a few weeks to help with neutropenia, but over the last 3 weeks I have developed neuropathy particularly in my fingers which wakes me up at night as
Hi to the CLL community , on cycle 8 of my V and O treatment and now on Venetoclax for the last 4 months. Have had the venetoclax reduced to 200mg for a few weeks to help with neutropenia, but over the last 3 weeks I have developed neuropathy particularly in my fingers which wakes me up at night as
puppy43
in
CLL Support
5 months ago
INTRINSIC FACTOR ANTIBODY positive result
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
ReallyWondering
in
Pernicious Anaemia Society
5 months ago
B1 effect?:)
Hi everybody , I just started the B1 HCL yesterday with initial dose 200 mg thiamine in the morning and 200 mg evening.. Today I woke up and felt somehow stronger with better balance and strength in my legs and generally feeling better... I'm just wondering..is it possible to feel better so fast?
Hi everybody , I just started the B1 HCL yesterday with initial dose 200 mg thiamine in the morning and 200 mg evening.. Today I woke up and felt somehow stronger with better balance and strength in my legs and generally feeling better... I'm just wondering..is it possible to feel better so fast?
realk
in
Cure Parkinson's
5 months ago
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Blood test results: what to do next plus should I tell my endo?
Thanks everyone for your advice here over the last months. I’ve been on 125mcg Levothyroxine and 10mcg T3 for 7 weeks now (up from 100mcg three days and 125mcg four days) and did this blood test last week, following your protocol: TSH: 0.01 (0.27 - 4.2) FT3: 5.5 (3.1 - 6.8) FT4: 21.6 (12 - 22) Iron
Thanks everyone for your advice here over the last months. I’ve been on 125mcg Levothyroxine and 10mcg T3 for 7 weeks now (up from 100mcg three days and 125mcg four days) and did this blood test last week, following your protocol: TSH: 0.01 (0.27 - 4.2) FT3: 5.5 (3.1 - 6.8) FT4: 21.6 (12 - 22) Iron
WaystarRoyco
in
Thyroid UK
5 months ago
Private testing for B12 and MMA (UK)
Looking for some pointers from others. I have felt unwell since Jan 23. URQ pain, malaise, tingling on chest and in thumbs and fingers, cold extremeties, chest pain, shortness of breath , distinct and new varicose veins in ankles. Also poor fat absorption. I had thought maybe liver. But ultrasound and
Looking for some pointers from others. I have felt unwell since Jan 23. URQ pain, malaise, tingling on chest and in thumbs and fingers, cold extremeties, chest pain, shortness of breath , distinct and new varicose veins in ankles. Also poor fat absorption. I had thought maybe liver. But ultrasound and
Shoe2
in
Pernicious Anaemia Society
5 months ago
Dizziness
Has anyone experienced dizziness in between having B12.. I’m having up to 15 episodes of light headiness dizziness a day now having B12 every 8 weeks had 8 days ago but still getting dizzy how long does it take to get into system… had blood test all came back normal I’m thinking it could be neurological
Has anyone experienced dizziness in between having B12.. I’m having up to 15 episodes of light headiness dizziness a day now having B12 every 8 weeks had 8 days ago but still getting dizzy how long does it take to get into system… had blood test all came back normal I’m thinking it could be neurological
Catsmud
in
Pernicious Anaemia Society
5 months ago
Help with blood results
I recently posted here for advice on whether I need levothyroxine as I have been subclinical for 10 years and now my tsh seems to be creeping up the last few weeks from 4.88 to 5.59 and now 6.15 all in the space of 3/4 weeks. I wonder if it is linked to the introduction of testosterone, I started hrt
I recently posted here for advice on whether I need levothyroxine as I have been subclinical for 10 years and now my tsh seems to be creeping up the last few weeks from 4.88 to 5.59 and now 6.15 all in the space of 3/4 weeks. I wonder if it is linked to the introduction of testosterone, I started hrt
Rambler16
in
Thyroid UK
5 months ago
Possible underactive thyroid?
Hi everyone, I'm new here and would love some advice from people who actually know what they're talking about as I currently feel like I'm being fobbed off by everyone! I am 42 years old, and have struggled with symptoms that I have always considered to be thyroid related but every NHS test came back
Hi everyone, I'm new here and would love some advice from people who actually know what they're talking about as I currently feel like I'm being fobbed off by everyone! I am 42 years old, and have struggled with symptoms that I have always considered to be thyroid related but every NHS test came back
Gingerella8
in
Thyroid UK
5 months ago
VIT B12 BINDING CAPACITY, UNSAT(TRANSCOBALAMIN) LOW 528 L
IT B12 BINDING CAPACITY, UNSAT(TRANSCOBALAMIN) LOW - 528 L Reference Range: 650-1340 pg/mL I finally have a result that proves my B12 Deficiency that I have indicated has been quite recovered on EOD Hydro IM. The issue is that it went on back order everywhere, and I have been to minimal IM of Methyl
IT B12 BINDING CAPACITY, UNSAT(TRANSCOBALAMIN) LOW - 528 L Reference Range: 650-1340 pg/mL I finally have a result that proves my B12 Deficiency that I have indicated has been quite recovered on EOD Hydro IM. The issue is that it went on back order everywhere, and I have been to minimal IM of Methyl
LeaKolo
in
Pernicious Anaemia Society
5 months ago
TSH level increase after total thyroidectomy(8 years ago)
I am a 28-year-old man (90 kg). I had a total thyroidectomy 8 years ago due to papillary carcinoma. Recently, I had a knee surgery and during a subsequent blood test, my TSH level was checked and found to be 4.5. However, I had taken my medication (euthyrox 150mg) on the morning of this blood test. Therefore
I am a 28-year-old man (90 kg). I had a total thyroidectomy 8 years ago due to papillary carcinoma. Recently, I had a knee surgery and during a subsequent blood test, my TSH level was checked and found to be 4.5. However, I had taken my medication (euthyrox 150mg) on the morning of this blood test. Therefore
Renadom
in
Thyroid UK
5 months ago
my story
I started on cobalamin injections pre Covid then when lockdown arrived was put on Tablet form which remained until last July when a retired Doctor in our practice noticed I’d been requesting to be given B12 injections once more. I’d gone for a different reason but I felt so well by next day it convinced
I started on cobalamin injections pre Covid then when lockdown arrived was put on Tablet form which remained until last July when a retired Doctor in our practice noticed I’d been requesting to be given B12 injections once more. I’d gone for a different reason but I felt so well by next day it convinced
Beadbuddy
in
Pernicious Anaemia Society
5 months ago
Normal B12 levels?
63 yo female. Symptoms have been over a year of tingling/light pins and needles in feet, exhaustion, and memory issues, now lately ringing in ears, diagnosed with low B12 (63). Currently on weekly shots of Cyanocobalamin 1000 mcg/ml. After 6 weeks my B12 is at 537. What should it be? Also had a homocysteine
63 yo female. Symptoms have been over a year of tingling/light pins and needles in feet, exhaustion, and memory issues, now lately ringing in ears, diagnosed with low B12 (63). Currently on weekly shots of Cyanocobalamin 1000 mcg/ml. After 6 weeks my B12 is at 537. What should it be? Also had a homocysteine
ReallyWondering
in
Pernicious Anaemia Society
5 months ago
Could this be the beginning of something good for B12 in the UK ?
https://www.ukri.org/who-we-are/how-we-are-doing/research-outcomes-and-impact/bbsrc/better-b12-safer-and-sustainable-production/ Am imagining the day when we can purchase B12 phials in our local pharmacies ? Or will Big Pharma make a move ? Whilst living in Crete for 15 years I was able to buy 3 phials
https://www.ukri.org/who-we-are/how-we-are-doing/research-outcomes-and-impact/bbsrc/better-b12-safer-and-sustainable-production/ Am imagining the day when we can purchase B12 phials in our local pharmacies ? Or will Big Pharma make a move ? Whilst living in Crete for 15 years I was able to buy 3 phials
Marz
in
Pernicious Anaemia Society
5 months ago
Praise for GP surgery for once
Following a blood test, requested by my Cardiologist and copied to my GP, I received an sms from the surgery telling me that my "vitamin D level is slightly low so I have sent the prescription for tablets to help bring levels up to normal for this to your pharmacy. To say I was gobsmacked would be an
Following a blood test, requested by my Cardiologist and copied to my GP, I received an sms from the surgery telling me that my "vitamin D level is slightly low so I have sent the prescription for tablets to help bring levels up to normal for this to your pharmacy. To say I was gobsmacked would be an
Flivoless
in
PMRGCAuk
5 months ago
Frequency
Someone posted that some of us inject 2 to 3 times a day. I was going to comment some of us inject 4 times a day but never found that comment again. I personally did trials of 1.2,3,4 times a day. Other than the 4 times a day it was about getting more B12. Then it came to me that more frequent might
Someone posted that some of us inject 2 to 3 times a day. I was going to comment some of us inject 4 times a day but never found that comment again. I personally did trials of 1.2,3,4 times a day. Other than the 4 times a day it was about getting more B12. Then it came to me that more frequent might
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Vitamin K Advice
I am running out of K2 capsules. I started with Vitabay drops, then Vitabay Tablets. Both were discontinued, so I moved on to Vegavero capsules. Now they seem to be unavailable. I was told I needed the all trans form (can't remember what that means!). Can anyone recommend anything with not too many
I am running out of K2 capsules. I started with Vitabay drops, then Vitabay Tablets. Both were discontinued, so I moved on to Vegavero capsules. Now they seem to be unavailable. I was told I needed the all trans form (can't remember what that means!). Can anyone recommend anything with not too many
carnation
in
Thyroid UK
5 months ago
B1 therapy side effects
Hi, I am 55 years old male diagnosed with PD about 5 years ago. Started B1 therapy couple of days ago in consultation with my Neurologist. He suggested 100 mg Thiamine oral tablets 3 times a day for 10 days and taper down after 10 days. However severe side effects like feverish, body aches, headache
Hi, I am 55 years old male diagnosed with PD about 5 years ago. Started B1 therapy couple of days ago in consultation with my Neurologist. He suggested 100 mg Thiamine oral tablets 3 times a day for 10 days and taper down after 10 days. However severe side effects like feverish, body aches, headache
ashok200
in
Cure Parkinson's
5 months ago
TTFD promotes voluntary activity through dopaminergic activation
Thiamine tetrahydrofurfuryl disulfide promotes voluntary activity through dopaminergic activation in the medial prefrontal cortex
https://www.nature.com/articles/s41598-018-28462-2
Thiamine tetrahydrofurfuryl disulfide promotes voluntary activity through dopaminergic activation in the medial prefrontal cortex
https://www.nature.com/articles/s41598-018-28462-2
Gcf51
in
Cure Parkinson's
5 months ago
Re-reading Martyn Hooper
Hi Guys I have had such an extraordinary week chatting with you on this forum that my head is buzzing with PA questions! I am having a PA review and research day today. I am revisiting "[i]What you need to know about PERNICIOUS ANAEMIA AND B12 DEFICIENCY[/i]" by our wonderful Martyn Hooper. The following
Hi Guys I have had such an extraordinary week chatting with you on this forum that my head is buzzing with PA questions! I am having a PA review and research day today. I am revisiting "[i]What you need to know about PERNICIOUS ANAEMIA AND B12 DEFICIENCY[/i]" by our wonderful Martyn Hooper. The following
Wwwdot
in
Pernicious Anaemia Society
5 months ago
Funny Mix?
Hi Folks For over two years i have been searching for a diagnosis to my long held symptoms, hence my arrival here. I have been living with classic low thyroid symptoms for many years i fear. I am basically half dead half of the time, and mostly dead the rest. Anyways - above is a Nuffield
Hi Folks For over two years i have been searching for a diagnosis to my long held symptoms, hence my arrival here. I have been living with classic low thyroid symptoms for many years i fear. I am basically half dead half of the time, and mostly dead the rest. Anyways - above is a Nuffield
Treesong2023
in
Thyroid UK
5 months ago
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