Latest test results, not sure what to do next. - Thyroid UK

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Latest test results, not sure what to do next.

Grey-Sky profile image
4 Replies

Hi,

Please see the recent test results above. I'm feeling mostly ok taking 75mg and 100mg Levothyroxine (Teva - changing brands seems to give me problems) on alternate days but still get days feeling cold and fogged up.

From the tests I see that D and B12 are both quite low though I take supplements for both.

Additionally my family have Gilberts syndrome as a common issue, though I've not been tested for this as my GP tells me it's not something that needs to be treated.

I've read on other posts that taking selenium can help with uptake of B12 and on another post that pernicious anemia can also be a factor to consider. From the NHS site, the description of symptoms for pernicious anemia reads very similar to that for Hypothyroid and so I took at look at getting a test done for this, however the cost being £250 put me off. I'm unsure what my next action should be.

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SlowDragon profile image
SlowDragonAdministrator

Was test done all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

And last dose ….was it 75mcg or 100mcg ?

How much vitamin D are you taking

What vitamin D exactly?

Same question for B12

Are you also taking vitamin B complex ?

Grey-Sky profile image
Grey-Sky in reply toSlowDragon

Hi & thanks for the quick response.

The blood test was taken at 07:00, 24 hrs since the dose of levothyroxine and after 2 pints of water and nothing else apart from a 2 mile morning walk and a few press-ups.

I'm not certain what the last dose before the test was qty was as I didn't make a note of that, however I could give a reasonably well informed guess that it was 100mg based on working back from today.

Vitamin D3 I take at 2.5ug twice a week as part of a calcium supplement- i've just realised that this is much less than recommended so I'll up this.

B12 I take as part of Vitamaze B complex (B12 @2.5ug/day)

SlowDragon profile image
SlowDragonAdministrator in reply toGrey-Sky

Low B12 symptoms

b12deficiency.info/signs-an...

methyl-life.com/blogs/defic...

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement as well as a separate vitamin B Complex 

Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.

If Vegetarian or vegan likely to need ongoing separate B12 few times a week

Highly effective B12 drops

natureprovides.com/products...

Or

B12 sublingual lozenges

uk.iherb.com/pr/jarrow-form...

cytoplan.co.uk/shop-by-prod...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate

healthunlocked.com/thyroidu...

Low folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

healthline.com/nutrition/fo...

B vitamins best taken after breakfast

Igennus B complex popular option. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

Post discussing different B complex

healthunlocked.com/thyroidu...

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) Thorne can be difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

helvella.blogspot.com/p/hel...

How other member saw how effective improving low B vitamins has been

healthunlocked.com/thyroidu...

SlowDragon profile image
SlowDragonAdministrator

vitamin D more likely to need around 1000iu per day

GP will often only prescribe to bring vitamin D levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But, improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly when supplementing

Can test via NHS private testing service

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7.

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

Vitamin D may prevent Autoimmune disease

newscientist.com/article/23...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Interesting article by Dr Malcolm Kendrick on magnesium

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

Too much Vitamin D is toxic

Test twice a year

healthunlocked.com/thyroidu...

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