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Private GP visit
I saw I private GP today as I felt with more time to go through my symptoms and tests I might get somewhere. But she is of the opinion that my B12, ferritin and folate levels were all fine and nothing to worry about. They are within range. I asked about my symptoms, but she didn’t feel they warranted
I saw I private GP today as I felt with more time to go through my symptoms and tests I might get somewhere. But she is of the opinion that my B12, ferritin and folate levels were all fine and nothing to worry about. They are within range. I asked about my symptoms, but she didn’t feel they warranted
Chickens44
in
Pernicious Anaemia Society
2 months ago
Test Result Feedback
Any feedback on below bloods? On 600mcg levothyroxine total per week. Am working on the iron at the moment. Vit B12 and D are fine. Trying to de-stress where I can. TSH 0.52 mIU/L (0.4 - 4) 3.3% Free T4 (fT4) 15.6 pmol/L (9 - 25) 41.3% Free T3 (fT3) 5.7 pmol/L (3.5 - 6.5) 73.3% T4:T3 Ratio 2.737
Any feedback on below bloods? On 600mcg levothyroxine total per week. Am working on the iron at the moment. Vit B12 and D are fine. Trying to de-stress where I can. TSH 0.52 mIU/L (0.4 - 4) 3.3% Free T4 (fT4) 15.6 pmol/L (9 - 25) 41.3% Free T3 (fT3) 5.7 pmol/L (3.5 - 6.5) 73.3% T4:T3 Ratio 2.737
Curious123
in
Thyroid UK
2 months ago
Duloxetine and/or Pyridoxine
Hello Everyone, I’m on 5th line chemo , so well experienced at this game. It’ll be 9 years this year. I think I know the answer and I’m going to seek advice from my nurse specialist and have an appointment with my consultant soon, but I’d like to know if anyone has experience of either of the above
Hello Everyone, I’m on 5th line chemo , so well experienced at this game. It’ll be 9 years this year. I think I know the answer and I’m going to seek advice from my nurse specialist and have an appointment with my consultant soon, but I’d like to know if anyone has experience of either of the above
Irisisme
in
My Ovacome
2 months ago
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B12 jabs and tablets giving me palpitations. Anyone else have trouble
Hi, I now find if I take a sublingual B12 tablet of 1000ug I experience palpitations. I have reduced to 500, and then 250ug same problem but slightly less severe. The symptoms came on soon after taking the tablets and lasted a few hours. I swapped back onto my injections Hevert B12 Depot Hydroxocobalaminacetate
Hi, I now find if I take a sublingual B12 tablet of 1000ug I experience palpitations. I have reduced to 500, and then 250ug same problem but slightly less severe. The symptoms came on soon after taking the tablets and lasted a few hours. I swapped back onto my injections Hevert B12 Depot Hydroxocobalaminacetate
john159
in
Pernicious Anaemia Society
2 months ago
Preparing for Parathyroid test. B vits etc?
Hi guys. Can anyone tell me if I need to stop taking all my vitamins or just b vits before having a para thyroid blood test?.. And for how long.. Will 3 days be OK? Doc agreed to do test as my calcium and phosphate are raised... Still waiting for call from endo... ! 🙄
Hi guys. Can anyone tell me if I need to stop taking all my vitamins or just b vits before having a para thyroid blood test?.. And for how long.. Will 3 days be OK? Doc agreed to do test as my calcium and phosphate are raised... Still waiting for call from endo... ! 🙄
MrsClanger
in
Thyroid UK
5 months ago
Would be grateful for your thoughts on my blood results before endo apt please, still feeling exhausted and weak. Thank you
Hello, I’ve had an underactive thyroid for 8 years after having my first child, looks like Hashimotos. Currently taking 100mcg levothyroxine and 15mcg liothyronine (10mcg on waking and 5 around 3pm). Also on HRT patches as am mid 40s and perimenopausal. I’m gluten free, have had SIBO in the past.
Hello, I’ve had an underactive thyroid for 8 years after having my first child, looks like Hashimotos. Currently taking 100mcg levothyroxine and 15mcg liothyronine (10mcg on waking and 5 around 3pm). Also on HRT patches as am mid 40s and perimenopausal. I’m gluten free, have had SIBO in the past.
Hopetoheal22
in
Thyroid UK
2 months ago
Unrelated PMR question, but asking for a desperate friend in need …
A friend of mine is bewildered about what is going on with his wife’s health. He doesn’t know where to go from here, so I told him I would ask for help from you. She has recovered from breast and throat/neck cancer, unrelated to each other, but has undergone chemo/radio and now has the all clear.
A friend of mine is bewildered about what is going on with his wife’s health. He doesn’t know where to go from here, so I told him I would ask for help from you. She has recovered from breast and throat/neck cancer, unrelated to each other, but has undergone chemo/radio and now has the all clear.
LemonZest11
in
PMRGCAuk
2 months ago
Supplements still necessary?
Good morning allI have run out of my methylfolate supplements I have been on B12 injections for a few years now and been taking supplements too. Just wanted to know if its necessary to keep taking the supplements, it just gets so expensive with the cost of living. I take B1,B2 & methylfolate. Any advice
Good morning allI have run out of my methylfolate supplements I have been on B12 injections for a few years now and been taking supplements too. Just wanted to know if its necessary to keep taking the supplements, it just gets so expensive with the cost of living. I take B1,B2 & methylfolate. Any advice
Aumshantii
in
Pernicious Anaemia Society
2 months ago
Is it needed and safe for my mom to supplement with folate or B12?
Hi all! I haven't posted before but I've been reading for a few months and find everything really helpful. My mom has had both chemotherapy and radiation this last year, and now has many overlapping symptoms with b12 and folate deficiencies (fatigue, mild neuropathy for years, mild memory loss/confusion
Hi all! I haven't posted before but I've been reading for a few months and find everything really helpful. My mom has had both chemotherapy and radiation this last year, and now has many overlapping symptoms with b12 and folate deficiencies (fatigue, mild neuropathy for years, mild memory loss/confusion
Jr499
in
Pernicious Anaemia Society
3 months ago
b1 vitamins
what has been your experience with taking B1 supplements? Dosage and frequency?
what has been your experience with taking B1 supplements? Dosage and frequency?
Teacher111
in
Cure Parkinson's
2 months ago
Turmeric and a Flare and Drama + Thoughts
Turmeric and so on….. Flare up … Drama Hello everyone…. I have had some success (I think - quite strongly) with varying Turmeric shots and soluble lozenges . Some are way too expensive but I found some on Amazon that were really inexpensive and had a delivery of a few shots of Turmeric from Tesco
Turmeric and so on….. Flare up … Drama Hello everyone…. I have had some success (I think - quite strongly) with varying Turmeric shots and soluble lozenges . Some are way too expensive but I found some on Amazon that were really inexpensive and had a delivery of a few shots of Turmeric from Tesco
Hidden
in
PMRGCAuk
2 months ago
B12 suppliers to UK
I’ve just tried to order B12 depot from verdandapo through amazon pay but they won’t ship to my Uk address. Where are people ordering from at the moment? Thanks
I’ve just tried to order B12 depot from verdandapo through amazon pay but they won’t ship to my Uk address. Where are people ordering from at the moment? Thanks
FlorencePocket-Owl
in
Pernicious Anaemia Society
2 months ago
Swollen tongue and teeth impressions on tongue
I am suffering with a very sore swollen tongue and I'm sure ages ago there was a post about this but I can't find it. Am I right in thinking that B12 may be the issue or increase in meds to rectify this? I am currently on Erfa one and quarter grains 6am and half grain 3pm and alternate days one and half
I am suffering with a very sore swollen tongue and I'm sure ages ago there was a post about this but I can't find it. Am I right in thinking that B12 may be the issue or increase in meds to rectify this? I am currently on Erfa one and quarter grains 6am and half grain 3pm and alternate days one and half
lostherpocket
in
Thyroid UK
2 months ago
TSH up after Synthroid increase
Hi all, I am wondering if anyone has had an increased TSH, lower FT3 & FT4 when increasing Synthroid dose. Some context (apologies if too much, if more needed please let me know) I was diagnosed with hashimoto's in December 2020, labs as follows (range in brackets): TSH 10.29 (.32-5.04 pmol/L) FT3
Hi all, I am wondering if anyone has had an increased TSH, lower FT3 & FT4 when increasing Synthroid dose. Some context (apologies if too much, if more needed please let me know) I was diagnosed with hashimoto's in December 2020, labs as follows (range in brackets): TSH 10.29 (.32-5.04 pmol/L) FT3
ttreefrog
in
Thyroid UK
11 months ago
good morning, question on iron supplement when I start injection
well for now I'm on liquid b12 methyl 720 per day and next week my injections come in the mail ans I know Im needing Iron supplements but I'm not sure how much to take. Im not sure on how much injection I will be on yet.
well for now I'm on liquid b12 methyl 720 per day and next week my injections come in the mail ans I know Im needing Iron supplements but I'm not sure how much to take. Im not sure on how much injection I will be on yet.
JesusMercy60
in
Pernicious Anaemia Society
2 months ago
‘I couldn’t walk’: GP’s personal story of vitamin B6 toxicity
‘A review of the patient’s vitamin B6 intake is recommended, paying close attention to potential sources such as multivitamins and magnesium and zinc products, particularly when taken in combination,’ https://www1.racgp.org.au/newsgp/clinical/i-couldn-t-walk-gp-s-personal-story-of-vitamin-b6
‘A review of the patient’s vitamin B6 intake is recommended, paying close attention to potential sources such as multivitamins and magnesium and zinc products, particularly when taken in combination,’ https://www1.racgp.org.au/newsgp/clinical/i-couldn-t-walk-gp-s-personal-story-of-vitamin-b6
Farooqji
in
Cure Parkinson's
2 months ago
Benfotiamin
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral neuropathy returns. Benfotiamin
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral neuropathy returns. Benfotiamin
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
New to PA and need info and support
Hi, for nearly 10 years I have been returning blood tests with low b12 levels, recently these have been 140 / 155 / 170 and 2 weeks ago 165. I continued to advise GP that there was an issue. In 2018 I had 6 loading doses but no follow up treatments. Throughout 2023 I reported tiredness and more concerningly
Hi, for nearly 10 years I have been returning blood tests with low b12 levels, recently these have been 140 / 155 / 170 and 2 weeks ago 165. I continued to advise GP that there was an issue. In 2018 I had 6 loading doses but no follow up treatments. Throughout 2023 I reported tiredness and more concerningly
Sailing63
in
Pernicious Anaemia Society
2 months ago
Blood test results in full. Can anyone find a cause in there for my continued fatigue etc?
I still have the same symptoms, although some have improved a bit, but not gone, by any means. Still housebound. I list below Blood test results. Can anyone suggest an issue that may cause my symptoms because my GP says no action, normal. Serum 25 - HO Vit D3 level 135nmol/L 50-174
I still have the same symptoms, although some have improved a bit, but not gone, by any means. Still housebound. I list below Blood test results. Can anyone suggest an issue that may cause my symptoms because my GP says no action, normal. Serum 25 - HO Vit D3 level 135nmol/L 50-174
DandyButch
in
Thyroid UK
2 months ago
folate injection Australia
does anyone know how to get the above in Australia?
does anyone know how to get the above in Australia?
Inquiringmind12
in
Pernicious Anaemia Society
2 months ago
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