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Vitamin B12 deficiency
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Doubling Dose For Hypothyroidism?
Hi, I know this is not the thyroid thread. I’m here because I’m B12 deficient, SI with hydroxocobalamim. But because it’s an autoimmune problem I sure a number of others are affected by hypothyroidism hence my desire to get thoughts and opinions (I’ll make the decision 🙂) on doubling my thyroxine dose
Hi, I know this is not the thyroid thread. I’m here because I’m B12 deficient, SI with hydroxocobalamim. But because it’s an autoimmune problem I sure a number of others are affected by hypothyroidism hence my desire to get thoughts and opinions (I’ll make the decision 🙂) on doubling my thyroxine dose
B12again
in
Pernicious Anaemia Society
6 months ago
USA Travel
I’m travelling to the US. Anything I should know about bringing in B12 SI supplies. And can I buy them there? Thanks.
I’m travelling to the US. Anything I should know about bringing in B12 SI supplies. And can I buy them there? Thanks.
MrsTuft
in
Pernicious Anaemia Society
6 months ago
Feeling worse
Hi all Hope everyone's had a good start to 2024. I was started on levothyroxine 25mcg on 19th December, after being on it for 2 weeks I did feel a very slight improvement, it only lasted a couple days, and have been feeling worse since. The levo was teva brand. I have collected my new month prescription
Hi all Hope everyone's had a good start to 2024. I was started on levothyroxine 25mcg on 19th December, after being on it for 2 weeks I did feel a very slight improvement, it only lasted a couple days, and have been feeling worse since. The levo was teva brand. I have collected my new month prescription
Cabbages123
in
Thyroid UK
6 months ago
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supplementary question ! Ubiquinol
sorry meant to also ask has anyone found taking Ubiquinol helps T4/T3 conversion? Thank you!
sorry meant to also ask has anyone found taking Ubiquinol helps T4/T3 conversion? Thank you!
Indigourchin
in
Thyroid UK
2 months ago
Vestibular Neuritis
Hi everyone, I woke up on New Year's Day with the room spinning around me. Very scary! Diagnosed as vestibular neuritis. My question is, I usually self inject weekly which I have continued to do. I don't know if I'm imagining it but the vertigo symptoms seem to greatly improve for a couple of days
Hi everyone, I woke up on New Year's Day with the room spinning around me. Very scary! Diagnosed as vestibular neuritis. My question is, I usually self inject weekly which I have continued to do. I don't know if I'm imagining it but the vertigo symptoms seem to greatly improve for a couple of days
Ipsofacto01
in
Pernicious Anaemia Society
6 months ago
update
well after getting my labs back from Dr. Cooper I have to say that I am a little disappointed in the fact that he said my feretin levels were good at 51. I have understood from you guys that it needs to be at least 100 so him saying that 51 is good disappoints me. That being said I received my results
well after getting my labs back from Dr. Cooper I have to say that I am a little disappointed in the fact that he said my feretin levels were good at 51. I have understood from you guys that it needs to be at least 100 so him saying that 51 is good disappoints me. That being said I received my results
6236
in
Restless Legs Syndrome
6 months ago
Health blips
Can I have another
vitamin
deficiency
? I inject
b12
every 3-5 days and try to take all the cofactor. Any suggestions would be much appreciated.
Can I have another
vitamin
deficiency
? I inject
b12
every 3-5 days and try to take all the cofactor. Any suggestions would be much appreciated.
Fluffy01
in
Pernicious Anaemia Society
1 year ago
How quickly would B12 Levels drop post injection?
Hello, I had 6 loading doses of B12 in September following a B12 level of <145 (test doesn’t specify below that cut off) I had some symptoms including muscle aches particularly my legs above my knees, anxiety, panic attacks, fatigue, dizziness and pins and needles on my left hand. No evidence of anaemia
Hello, I had 6 loading doses of B12 in September following a B12 level of <145 (test doesn’t specify below that cut off) I had some symptoms including muscle aches particularly my legs above my knees, anxiety, panic attacks, fatigue, dizziness and pins and needles on my left hand. No evidence of anaemia
Sparkleros
in
Pernicious Anaemia Society
6 months ago
Hello everyone 😊
Hello, I hope no one minds me expressing my fears. What it is I struggle like many to get the same brand of liothyronine or just get any thats available on the nhs at times and wait time at times has been months. Its stressful just going to the chemist and I'm made to feel that I'm difficult
Hello, I hope no one minds me expressing my fears. What it is I struggle like many to get the same brand of liothyronine or just get any thats available on the nhs at times and wait time at times has been months. Its stressful just going to the chemist and I'm made to feel that I'm difficult
Elizajoe102
in
Thyroid UK
6 months ago
updated iron results - best next steps?
Hey everyone, I had some great advice on here a couple of weeks ago. I just had a full blood test completed (given the RLS had gotten significantly worse recently) and my iron results came back low: Iron 14.3 umol/L (Range: 10 - 30) TIBC 54.2 umol/L (Range: 45 - 81) UIBC 39.9 umol/L (Range: 12 -
Hey everyone, I had some great advice on here a couple of weeks ago. I just had a full blood test completed (given the RLS had gotten significantly worse recently) and my iron results came back low: Iron 14.3 umol/L (Range: 10 - 30) TIBC 54.2 umol/L (Range: 45 - 81) UIBC 39.9 umol/L (Range: 12 -
BOWENATOR
in
Restless Legs Syndrome
2 months ago
vitamin b12 deficiency
Hello, I am writing to ask if any one following a plant based/vegan diet has been told their vitamin b12 is low. I get so confused as what the best way to eat for a kidney diet. I was hoping plantbased/vegan would be best but now it has led to a new issue. Just so confused. It is all getting to
Hello, I am writing to ask if any one following a plant based/vegan diet has been told their vitamin b12 is low. I get so confused as what the best way to eat for a kidney diet. I was hoping plantbased/vegan would be best but now it has led to a new issue. Just so confused. It is all getting to
Yankees28
in
Kidney Disease
2 years ago
Is 3 times enough? And inherit.
I've been si M,W & F for couple months now and beginning to think it's not enough. Not sure if this happens to anyone else, but I get very tired, and weak until I eat something. It's a night and day difference after I eat, then a few hours later that all repeats. Do you all think I may need to increase
I've been si M,W & F for couple months now and beginning to think it's not enough. Not sure if this happens to anyone else, but I get very tired, and weak until I eat something. It's a night and day difference after I eat, then a few hours later that all repeats. Do you all think I may need to increase
MrJustatip
in
Pernicious Anaemia Society
6 months ago
Help with b12 deficiency
I have neurofibromatosis 1 and now I have low b12 my nerves help just wondering if there is something can help
I have neurofibromatosis 1 and now I have low b12 my nerves help just wondering if there is something can help
Vegan10
in
Changing Faces
6 months ago
Hello and happy new year everyone!! Aching legs when I walk more then 50 yards (in a nutshell)!!
Hello All, It's been ages since I wrote a post. I have been relatively OK for a while and then went down hill middle of December with my annual COPD freakout chest infection - heavy duty antibiotics sorted that out but of course, as I have discovered, "old age don't come alone". I am 70 now and although
Hello All, It's been ages since I wrote a post. I have been relatively OK for a while and then went down hill middle of December with my annual COPD freakout chest infection - heavy duty antibiotics sorted that out but of course, as I have discovered, "old age don't come alone". I am 70 now and although
sheenah
in
Thyroid UK
6 months ago
Tablets v Injections
Hi, After a few years of monitoring my B12 levels are now low enough for my GP to offer treatment. I was expecting injections but have been prescribed tablets. Is anyone else on these ? I assumed from what I had read that injections were the primary option. Thanks
Hi, After a few years of monitoring my B12 levels are now low enough for my GP to offer treatment. I was expecting injections but have been prescribed tablets. Is anyone else on these ? I assumed from what I had read that injections were the primary option. Thanks
Redmusic
in
Pernicious Anaemia Society
6 months ago
Hello!
Hi there! Thanks for allowing me to join. I am new to this group & have not been diagnose with PA at this time but I certainly have the symptoms. I DO have a diagnosed B12 deficiency & despite nearly 5 months of SI of B12 & oral sublingual B12 I am not improving. I’m sure everyone here understands the
Hi there! Thanks for allowing me to join. I am new to this group & have not been diagnose with PA at this time but I certainly have the symptoms. I DO have a diagnosed B12 deficiency & despite nearly 5 months of SI of B12 & oral sublingual B12 I am not improving. I’m sure everyone here understands the
Hidden
in
Pernicious Anaemia Society
6 months ago
When to test?
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
edeuweed
in
Pernicious Anaemia Society
5 months ago
IBS and B12
good evening, I hope everyone is doing well I am wondering about the link between B12 deficiency and IBS. I have been getting bi weekly injections for almost 2.5 years now. Doing fairly well and the vast majority of my symptoms and nerve issues have subsided. I have no tested positive for PA but
good evening, I hope everyone is doing well I am wondering about the link between B12 deficiency and IBS. I have been getting bi weekly injections for almost 2.5 years now. Doing fairly well and the vast majority of my symptoms and nerve issues have subsided. I have no tested positive for PA but
Ctadds1
in
Pernicious Anaemia Society
6 months ago
Polyneuropathy.
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
NICE Guidelines Delay?
Does anyone have any information about the delay for the publication date of the new NICE B12 guidelines to be moved from next week to early March? I need the new guidelines to fight for reinstatement of my 8 weekly injections which were stopped when I changed to a new surgery which insists on testing
Does anyone have any information about the delay for the publication date of the new NICE B12 guidelines to be moved from next week to early March? I need the new guidelines to fight for reinstatement of my 8 weekly injections which were stopped when I changed to a new surgery which insists on testing
RoseFlowerDew
in
Pernicious Anaemia Society
6 months ago
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