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End of IBrance …
After 6 months of consistently rising tumor markers and increasing back and leg pain, a recent flurry of scans and an MRI have finally brought us to the realization that the IBrance and Anastrozole combo is failing to control the bone Mets in my pelvis, sacrum and L5. I’m in the process of starting
After 6 months of consistently rising tumor markers and increasing back and leg pain, a recent flurry of scans and an MRI have finally brought us to the realization that the IBrance and Anastrozole combo is failing to control the bone Mets in my pelvis, sacrum and L5. I’m in the process of starting
Dragonfly2
in
SHARE Metastatic Breast Cancer
9 months ago
constant flu
my mom are now on doxil, she has almost all the time flu, 37-38:( she has antibiotics and small amount of stereoids but temp is anyway, that she try to go to blood test in middle of cyrcle but have no power and she took all her power to go up by steps back and now she has problem with her leg it is swollen
my mom are now on doxil, she has almost all the time flu, 37-38:( she has antibiotics and small amount of stereoids but temp is anyway, that she try to go to blood test in middle of cyrcle but have no power and she took all her power to go up by steps back and now she has problem with her leg it is swollen
Inguc_is
in
My Ovacome
10 months ago
Hope for the future
New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon could be responsible for the onset of primary biliary cholangitis (PBC). Research suggests that a recent understanding of cell movements may
New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon could be responsible for the onset of primary biliary cholangitis (PBC). Research suggests that a recent understanding of cell movements may
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
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Wednesday Words
The words this week I want to define are
alkaline phosphatase.
Alkaline phosphatase (ALP)
is an enzyme that is released by the bile ducts cells ( among other organs). The release of ALP is a marker of stress or injury. So the more injury or stress to the bile duct cells, the higher
The words this week I want to define are
alkaline phosphatase.
Alkaline phosphatase (ALP)
is an enzyme that is released by the bile ducts cells ( among other organs). The release of ALP is a marker of stress or injury. So the more injury or stress to the bile duct cells, the higher
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
pregabalin and iron
Hello, I have tried googling if there is any interaction between pregabalin and iron but can’t find anything. I take an iron tablet due to low iron (morning and it has not helped) but will switch to iron bisglycinate at night after reading posts here. I stop eating at 6:30pm so I can take my pregabalin
Hello, I have tried googling if there is any interaction between pregabalin and iron but can’t find anything. I take an iron tablet due to low iron (morning and it has not helped) but will switch to iron bisglycinate at night after reading posts here. I stop eating at 6:30pm so I can take my pregabalin
e365
in
Restless Legs Syndrome
8 months ago
Newly Diagnosed Panicking
Ive just had a pelvic ultrasound and was told I have 6 ovarian cysts on the left. Is that a lot? Consultant said ovaries are stuck together and looks like endo. Had Ca125 elevated at 53. Having had thyroid cancer at 26 im worried about ovarian cancer now. Waiting on MRI and gynae referrals. I've had
Ive just had a pelvic ultrasound and was told I have 6 ovarian cysts on the left. Is that a lot? Consultant said ovaries are stuck together and looks like endo. Had Ca125 elevated at 53. Having had thyroid cancer at 26 im worried about ovarian cancer now. Waiting on MRI and gynae referrals. I've had
DarkStar85
in
Endometriosis UK
10 months ago
My Pet Scan Results. Where does this put me? TIA
IMPRESSION: There has been some interval treatment response. There still remain multiple osseous metastatic lesions, however, the remaining are decreased in activity and some have resolved. There is also been treatment response in active retroperitoneal/retrocrural lymph nodes. Only a single upper abdominal
IMPRESSION: There has been some interval treatment response. There still remain multiple osseous metastatic lesions, however, the remaining are decreased in activity and some have resolved. There is also been treatment response in active retroperitoneal/retrocrural lymph nodes. Only a single upper abdominal
Blueribbon63
in
Advanced Prostate Cancer
10 months ago
stomach Cancer
hi everyone, I suffer with stomach issues. The usual gastritis/oesophagitis. Long story short. Looking for guidance really. My Mum had stomach cancer and then got another primary in her Oesophagus at the same time. Sadly gone. But I am getting full easy when I eat, pain in stomach, bringing food back
hi everyone, I suffer with stomach issues. The usual gastritis/oesophagitis. Long story short. Looking for guidance really. My Mum had stomach cancer and then got another primary in her Oesophagus at the same time. Sadly gone. But I am getting full easy when I eat, pain in stomach, bringing food back
Crinkles2020
in
Oesophageal & Gastric Cancer
8 months ago
ADT for almost 2 years
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Paulo1968
in
Advanced Prostate Cancer
10 months ago
1st Recurrence
Hi, we received the results of my mums recent scan last week and it showed that she has lesions on both of her lungs and her liver. They are numerous and all around 1cm in size. It was a shock although not unexpected as her CA125 had been rising over the last 6 months. She is due to start the same
Hi, we received the results of my mums recent scan last week and it showed that she has lesions on both of her lungs and her liver. They are numerous and all around 1cm in size. It was a shock although not unexpected as her CA125 had been rising over the last 6 months. She is due to start the same
Pitchperfec
in
My Ovacome
10 months ago
Vitamin/mineral deficiencies
Hi. I've had Pbc for 6 yrs now. Recently I've noticed that I am more fatigued than normal. I asked for my blood results over the last 10 yrs . I noticed a progressive decline in my ferritin levels over the last few yes. I had a vitamin b12 level done recently and it was just above the borderline/normal
Hi. I've had Pbc for 6 yrs now. Recently I've noticed that I am more fatigued than normal. I asked for my blood results over the last 10 yrs . I noticed a progressive decline in my ferritin levels over the last few yes. I had a vitamin b12 level done recently and it was just above the borderline/normal
Finn2021
in
PBC Foundation
8 months ago
Things I Like About ADT
I know that no one, like NO ONE, actually wants to be on ADT. There are a lot of downsides to it, and complaints about the fatigue, lack of sex drive, etc. are a common theme on this forum. I'm about a year out now from starting on Zoladex shots (a drug that works in the same way as Lupron), and I
I know that no one, like NO ONE, actually wants to be on ADT. There are a lot of downsides to it, and complaints about the fatigue, lack of sex drive, etc. are a common theme on this forum. I'm about a year out now from starting on Zoladex shots (a drug that works in the same way as Lupron), and I
32Percenter
in
Advanced Prostate Cancer
10 months ago
My IBS Team Sheet – 2. Haemorrhoids (How I manage)
I think that having experienced having Haemorrhoids about six years ago that led me to be diagnosed with IBS, the relationship between IBS and Haemorrhoids could be a bit of a Red Herring! To be fair, I have experienced having haemorrhoids once since my first diagnosis, but now that I exercise regular
I think that having experienced having Haemorrhoids about six years ago that led me to be diagnosed with IBS, the relationship between IBS and Haemorrhoids could be a bit of a Red Herring! To be fair, I have experienced having haemorrhoids once since my first diagnosis, but now that I exercise regular
MountainHare1
in
IBS Network
8 months ago
FYI: from the VA research information on Veterans
➤ Prostate cancer Prostate cancer is the most common malignancy affecting men in the United States. It is also the most commonly diagnosed solid tumor in VA. In 2016, VA and the Prostate Cancer Foundation established a partnership to promote prevention, screening, and research to find new treatments
➤ Prostate cancer Prostate cancer is the most common malignancy affecting men in the United States. It is also the most commonly diagnosed solid tumor in VA. In 2016, VA and the Prostate Cancer Foundation established a partnership to promote prevention, screening, and research to find new treatments
MouseAddams
in
Advanced Prostate Cancer
10 months ago
looking for positive stories….
Hi, following on from my last post I wondered if anyones prognosis has been wrong? I am not sure our moderators will allow my post but I am in a sad hole.. My chemo ( 3rd line carbo then cisplatin and Gemcitabine) has been stopped after 3 treatments due to toxicity. I was really unwell on it . Ct shows
Hi, following on from my last post I wondered if anyones prognosis has been wrong? I am not sure our moderators will allow my post but I am in a sad hole.. My chemo ( 3rd line carbo then cisplatin and Gemcitabine) has been stopped after 3 treatments due to toxicity. I was really unwell on it . Ct shows
Laz66
in
My Ovacome
10 months ago
Heterogeneity and genomic evolution of metastatic prostate cancer, bioRxiv Preprint, Posted September 04, 2023.
A fine example of evolutionary principles applied to metastatic PCa with the development of a method (Mscore) for risk assessment based on key gene mutations. (U of Texas and Chinese U collaboration.) * * * [i]
Abstract
[/i] [i]
Background
[/i][i] Metastasis is the primary cause of prostate
A fine example of evolutionary principles applied to metastatic PCa with the development of a method (Mscore) for risk assessment based on key gene mutations. (U of Texas and Chinese U collaboration.) * * * [i]
Abstract
[/i] [i]
Background
[/i][i] Metastasis is the primary cause of prostate
CaptnMojoe
in
Fight Prostate Cancer
10 months ago
Antiinflammatory medications with Jakafi
I've read that there is a moderate risk of bleeding after using ibuprofen with Jakafi. I'd appreciate hearing reactions from people on Jakafi who have taken ibuprofen and other anti-inflammatory medications. Which anti-inflammatory medications would minimize the risk of such interactions? Thanks, Steve
I've read that there is a moderate risk of bleeding after using ibuprofen with Jakafi. I'd appreciate hearing reactions from people on Jakafi who have taken ibuprofen and other anti-inflammatory medications. Which anti-inflammatory medications would minimize the risk of such interactions? Thanks, Steve
sbs_patient
in
MPN Voice
10 months ago
Hello. Low grade Serous
Hi everyone. I was diagnosed with low grade serous ovarian cancer in Sept 22, I’ve had 2 massive ops and chemo and now take Letrozole. My recent scans have been clear, which is the best news. I haven’t really reached out to many support groups but feel I need to as I feel pretty isolated with my experience
Hi everyone. I was diagnosed with low grade serous ovarian cancer in Sept 22, I’ve had 2 massive ops and chemo and now take Letrozole. My recent scans have been clear, which is the best news. I haven’t really reached out to many support groups but feel I need to as I feel pretty isolated with my experience
GoldieH
in
My Ovacome
10 months ago
restricted urinary flow
Finished IMRT/ SBRT radiation to lymph nodes last week. Since then Ive begun have early AM restricted urinary flow - Very narrow stream. Rad Onc suggested tamsulosin or ibuprophen. MO, tamsulosin. Any work around for the early AM problem that I could take overnight? Ibuprophen has to be taken all
Finished IMRT/ SBRT radiation to lymph nodes last week. Since then Ive begun have early AM restricted urinary flow - Very narrow stream. Rad Onc suggested tamsulosin or ibuprophen. MO, tamsulosin. Any work around for the early AM problem that I could take overnight? Ibuprophen has to be taken all
kainasar
in
Fight Prostate Cancer
8 months ago
Where do I go from here?
I've struggled with anxiety and panic attacks and depression since I was 4 years old. I thought I was doing better and then this week I started having unprovoked panic attacks again. I lost my ability to speak for 24 hours. It was terrifying. Should I look into IOP or PHP? Is outpatient just not enough
I've struggled with anxiety and panic attacks and depression since I was 4 years old. I thought I was doing better and then this week I started having unprovoked panic attacks again. I lost my ability to speak for 24 hours. It was terrifying. Should I look into IOP or PHP? Is outpatient just not enough
ChaoticEmu
in
Anxiety and Depression Support
6 months ago
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