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Venetoclax
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Remission after Venetoclax?
Just got off
Venetoclax
.. followed the Murano Trial. Now three weeks after being off medicine neck and armpits are a little sore. Don’t notice any lymph nodes yet. But a little paranoid. Have people found symptoms to come back this quickly? Thanks. Mav
Just got off
Venetoclax
.. followed the Murano Trial. Now three weeks after being off medicine neck and armpits are a little sore. Don’t notice any lymph nodes yet. But a little paranoid. Have people found symptoms to come back this quickly? Thanks. Mav
Mav74
in
CLL Support
4 years ago
COVID-19 Vaccinations Opinion from Dr. R. Furman MD (cross posted from CLLSLL@groups.io with his permission )
I am also recommending the same for the PI3K inhibitors and
venetoclax
. Anti-CD20 monoclonal antibodies would be different, and it might make sense to defer vaccination until after therapy is completed if there is an option. - I hope this helps everyone.
I am also recommending the same for the PI3K inhibitors and
venetoclax
. Anti-CD20 monoclonal antibodies would be different, and it might make sense to defer vaccination until after therapy is completed if there is an option. - I hope this helps everyone.
lankisterguy
Volunteer
in
CLL Support
4 years ago
Looking for a fifth line of CLL treatment
I’m 55 and on my fourth line of treatment in 4 years: BR, Ibrutinib,
Venetoclax
, Acalabrutinib. And it looks like I’ll need a fifth soon. The acalabrutinib keeps the CLL in check but gives me neutropenia. Stopping acalacbrutinib for a week raised my ANC from 0.6 to 2.0.
I’m 55 and on my fourth line of treatment in 4 years: BR, Ibrutinib,
Venetoclax
, Acalabrutinib. And it looks like I’ll need a fifth soon. The acalabrutinib keeps the CLL in check but gives me neutropenia. Stopping acalacbrutinib for a week raised my ANC from 0.6 to 2.0.
john-doe
in
CLL Support
4 years ago
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Venetoclax and Seville oranges
I know people on
venetoclax
can’t eat Seville oranges or marmalade made with them. Stupid question coming up - does this mean other oranges are ok? (And if so, why only Seville oranges?) Many thanks Beryl
I know people on
venetoclax
can’t eat Seville oranges or marmalade made with them. Stupid question coming up - does this mean other oranges are ok? (And if so, why only Seville oranges?) Many thanks Beryl
Fowey2009
in
CLL Support
4 years ago
Venetoclax
It looks very likely I will switch from taking Ibrutinib to taking
Venetoclax
. While
Venetoclax
is a tablet, if I start it, apparently each week for the first 5 weeks, I will need to spend 48 hours in the hospital. This is to allow the medical staff to monitor my reaction to the
Venetoclax
.
It looks very likely I will switch from taking Ibrutinib to taking
Venetoclax
. While
Venetoclax
is a tablet, if I start it, apparently each week for the first 5 weeks, I will need to spend 48 hours in the hospital. This is to allow the medical staff to monitor my reaction to the
Venetoclax
.
Dym230109
in
CLL Support
4 years ago
Increasing LDH
Joined a trial of obinituzimab, ibrutinib, and
venetoclax
. I’m on cycle 13 and numbers in general have been doing well. HOWEVER, my LDH has steadily increased month after month linearly and now is at 400. My doc was thinking transformation and ordered a PET scan - no tumors.
Joined a trial of obinituzimab, ibrutinib, and
venetoclax
. I’m on cycle 13 and numbers in general have been doing well. HOWEVER, my LDH has steadily increased month after month linearly and now is at 400. My doc was thinking transformation and ordered a PET scan - no tumors.
RSSpoke
in
CLL Support
4 years ago
Obinutuzumab and Venetoclax cleared for use in UK
If I read this right, it seems that this is the new go-to combination in the UK? I think I read somewhere that this is also sometimes combined with ibrutinib or acalabrutinib? https://www.dailymail.co.uk/health/article-8973227/Thousands-leukaemia-sufferers-spared-chemotherapy-thanks-new-two-one-treatment.html
If I read this right, it seems that this is the new go-to combination in the UK? I think I read somewhere that this is also sometimes combined with ibrutinib or acalabrutinib? https://www.dailymail.co.uk/health/article-8973227/Thousands-leukaemia-sufferers-spared-chemotherapy-thanks-new-two-one-treatment.html
Research123
in
CLL Support
4 years ago
Acalabrutinib Plus Obinutuzumab Prolongs Progression Free Survival Compared to Other Targeted Agents in Chronic Lymphocytic Leukaemia (CLL)
[i]First-line acalabrutinib plus obinutuzumab prolongs progression-free survival (PFS) compared to ibrutinib-obinutuzumab and
venetoclax
-obinutuzumab for patients with chronic lymphocytic leukemia (CLL), according to a study published in Clinical Lymphoma, Myeloma, & Leukemia (2020 Oct 29;S2152-2650(
[i]First-line acalabrutinib plus obinutuzumab prolongs progression-free survival (PFS) compared to ibrutinib-obinutuzumab and
venetoclax
-obinutuzumab for patients with chronic lymphocytic leukemia (CLL), according to a study published in Clinical Lymphoma, Myeloma, & Leukemia (2020 Oct 29;S2152-2650(
AussieNeil
Partner
in
CLL Support
4 years ago
NICE approves venetoclax with obinutuzumab for patients with untreated CLL
This is good news; initially these patients were not being considered in the NICE appraisal, as there was less clinical trial data available about
venetoclax
and obinutuzumab in this population.
This is good news; initially these patients were not being considered in the NICE appraisal, as there was less clinical trial data available about
venetoclax
and obinutuzumab in this population.
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Cured !!
Morning All .This is my first day for two years I have not had to take Ibrutanib and
Venetoclax
,,I have been cured !🤞it last but we must think positive .It will (hopefully )be nice not to have the sicky days and no more cramp which has been pretty bad on times ,I wonder if my curls will go ! ?
Morning All .This is my first day for two years I have not had to take Ibrutanib and
Venetoclax
,,I have been cured !🤞it last but we must think positive .It will (hopefully )be nice not to have the sicky days and no more cramp which has been pretty bad on times ,I wonder if my curls will go ! ?
Workers
in
CLL Support
4 years ago
On Venetoclax for 3 weeks, no issues
I'm on Gazyva +
Venetoclax
. Very slight issue with the first Gazyva infusion (just some flushing which was relieved by pausing the infusion for 30 minutes). No problem with subsequent infusions (to date). Began the
Venetoclax
ramp up 3 weeks ago with no issues.
I'm on Gazyva +
Venetoclax
. Very slight issue with the first Gazyva infusion (just some flushing which was relieved by pausing the infusion for 30 minutes). No problem with subsequent infusions (to date). Began the
Venetoclax
ramp up 3 weeks ago with no issues.
ronsolo306
in
CLL Support
4 years ago
Treatment time... today!
I decided on Obino and
Venetoclax
, which will be started in a couple of weeks. Dr Lamanna likes the first infusion to be in the hospital, where she can monitor for TLS and hydrate me like crazy. Lots of emotions happening, but I know I’m in excellent hands. All prayers welcome!
I decided on Obino and
Venetoclax
, which will be started in a couple of weeks. Dr Lamanna likes the first infusion to be in the hospital, where she can monitor for TLS and hydrate me like crazy. Lots of emotions happening, but I know I’m in excellent hands. All prayers welcome!
NaturalWaze
in
CLL Support
4 years ago
Biopsy results
He is under
Venetoclax
treatment. Next week will have a bone marrow biopsy. Due to COVID-19 situation, I can't be present in his doctor's appointment. Can you guys tell me what else it could be? I'm scared, like many of you, I'm sure. Thanks for this support.
He is under
Venetoclax
treatment. Next week will have a bone marrow biopsy. Due to COVID-19 situation, I can't be present in his doctor's appointment. Can you guys tell me what else it could be? I'm scared, like many of you, I'm sure. Thanks for this support.
Gile
in
CLL Support
4 years ago
Venetoclax before Gazyva
My specialist opted to begin with
Venetoclax
as this is part of a successful German study (is what I was told). 2 weeks ago I started
Venetoclax
20mg with 3 nights in hospital. I had a sudden spike in potassium (5.7) which was swiftly corrected with insulin.
My specialist opted to begin with
Venetoclax
as this is part of a successful German study (is what I was told). 2 weeks ago I started
Venetoclax
20mg with 3 nights in hospital. I had a sudden spike in potassium (5.7) which was swiftly corrected with insulin.
Philipoc
in
CLL Support
4 years ago
AVO Trial update
I had CT scans and bloodwork last Tuesday for comparison before starting
Venetoclax
! My nodes are almost completely gone! At least not visible. Bloodwork looked completely normal! I started
Venetoclax
last Wednesday 20mg. I’ve tolerated it very well other than very very frequent urination!
I had CT scans and bloodwork last Tuesday for comparison before starting
Venetoclax
! My nodes are almost completely gone! At least not visible. Bloodwork looked completely normal! I started
Venetoclax
last Wednesday 20mg. I’ve tolerated it very well other than very very frequent urination!
Tton46
in
CLL Support
4 years ago
Does Venetoclax Cross the Blood/Brain Barrier?
Just curious. ... Look, I can Google as well as the next person, but I don’t always know how to interpret what I find. As is the case with my question here. Some sources I found say yes, some say “we dunno,” leaving me back where I started: knowledgeless. Help?
Just curious. ... Look, I can Google as well as the next person, but I don’t always know how to interpret what I find. As is the case with my question here. Some sources I found say yes, some say “we dunno,” leaving me back where I started: knowledgeless. Help?
DRM18
in
CLL Support
4 years ago
Dental Treatment on Venetoclax
I had a dental check up this morning as a back molar has crumbled - dentist will be able to do a filling. He also advised a scale and polish which I am more wary of as this can damage the gums leading to infection. He is fully aware of my CLL and medication and says he will be very gentle when near my
I had a dental check up this morning as a back molar has crumbled - dentist will be able to do a filling. He also advised a scale and polish which I am more wary of as this can damage the gums leading to infection. He is fully aware of my CLL and medication and says he will be very gentle when near my
Jooby59
in
CLL Support
4 years ago
Results after 3 months on Venetoclax, with questions?
After suffering a major case of hemolytic anemia in July, I was put on
Venetoclax
and actually had stellar results for three months, until about a week ago now.
After suffering a major case of hemolytic anemia in July, I was put on
Venetoclax
and actually had stellar results for three months, until about a week ago now.
KevinCLLITP
in
CLL Support
4 years ago
Results of Phase II Study of Combination Obinutuzumab, Ibrutinib, and Venetoclax in Treatment-Naïve and Relapsed or Refractory CLL
I think the most surprising thing in this report is that not everyone responds - [i]"The overall response rate at that time was 84% in treatment-naïve patients and 88% in relapsed or refractory patients."[/i] A short report here: https://ascopubs.org/doi/full/10.1200/JCO.20.00491 Jackie
I think the most surprising thing in this report is that not everyone responds - [i]"The overall response rate at that time was 84% in treatment-naïve patients and 88% in relapsed or refractory patients."[/i] A short report here: https://ascopubs.org/doi/full/10.1200/JCO.20.00491 Jackie
Jm954
Administrator
in
CLL Support
4 years ago
Adding Venetoclax to Ibrutinib
Any thoughts about adding
Venetoclax
to ibrutinib. Been on ibrutinib since May 2020, with a beautiful response. Thinking about my future and if it would be beneficial to discuss adding
Venetoclax
with my MD. I sense he would say not at this time, since I have done so well in the ibrutinib.
Any thoughts about adding
Venetoclax
to ibrutinib. Been on ibrutinib since May 2020, with a beautiful response. Thinking about my future and if it would be beneficial to discuss adding
Venetoclax
with my MD. I sense he would say not at this time, since I have done so well in the ibrutinib.
Davidcara
in
CLL Support
4 years ago
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