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Venetoclax
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My "N of 1" trial with Ibrutinib + Idelalisib + Venetoclax that lead to remission of Richter's in three weeks.
We have lowered the dosage of Ibrutinib and
Venetoclax
to try to help lower the toxicity. I started with 2x150mg Idelalisib + 280mg Ibrutinib + 200mg
Venetoclax
.
We have lowered the dosage of Ibrutinib and
Venetoclax
to try to help lower the toxicity. I started with 2x150mg Idelalisib + 280mg Ibrutinib + 200mg
Venetoclax
.
UniversallyPersonal
in
CLL Support
3 years ago
Diagnosed 9/20 and needing treatment already
The two options for treatment were: 1) Ibrutinib or 2) obinatumab and
venetoclax
. My questions are: 1) are those two treatment modalities the only ones available for me and 2) are they the best options for someone with my risk factors and 3) should I get a 2nd opinion? Thanks for your input.
The two options for treatment were: 1) Ibrutinib or 2) obinatumab and
venetoclax
. My questions are: 1) are those two treatment modalities the only ones available for me and 2) are they the best options for someone with my risk factors and 3) should I get a 2nd opinion? Thanks for your input.
Bajabarb
in
CLL Support
4 years ago
First line treatment failure. Transformation.
My father has been on the combination obinutuzamb/
venetoclax
first line treatment for CLL with aggressive features since March 2020, and had his one year CT scan yesterday. We were so hopeful that Plan 1 would be promising, yet the results are very troubling. -CT Results: 1.
My father has been on the combination obinutuzamb/
venetoclax
first line treatment for CLL with aggressive features since March 2020, and had his one year CT scan yesterday. We were so hopeful that Plan 1 would be promising, yet the results are very troubling. -CT Results: 1.
Phs2385
in
CLL Support
3 years ago
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How things have changed
Today we have the alternatives of FCR, monoclonal antibodies, -all the ...mab treatments - BTK inhibitors, Chlorambucil,
Venetoclax
and so on and most, if not all of us can look forward to much longer survival times and survival in good health.
Today we have the alternatives of FCR, monoclonal antibodies, -all the ...mab treatments - BTK inhibitors, Chlorambucil,
Venetoclax
and so on and most, if not all of us can look forward to much longer survival times and survival in good health.
SERVrider
in
CLL Support
4 years ago
venentoclax study comparison dr mata
compare
venetoclax
alone with
venetoclax
with cd20 enhancer
compare
venetoclax
alone with
venetoclax
with cd20 enhancer
msbypass4cll
in
CLL Support
4 years ago
DLBCL or B-PLL
Hi Everyone, My dad was on obinutuzumab/
venetoclax
combination first-line treatment for CLL with aggressive features. The CLL is out of his blood, but lymphoma is now in his femur and kidney region.
Hi Everyone, My dad was on obinutuzumab/
venetoclax
combination first-line treatment for CLL with aggressive features. The CLL is out of his blood, but lymphoma is now in his femur and kidney region.
Phs2385
in
Non Hodgkin's Lymphoma Friends
3 years ago
B-PLL or DLBCL
Hi Everyone, My dad was on obinutuzumab/
venetoclax
combination first-line treatment for CLL with aggressive features. The CLL is out of his blood, but lymphoma is now in his femur and kidney region.
Hi Everyone, My dad was on obinutuzumab/
venetoclax
combination first-line treatment for CLL with aggressive features. The CLL is out of his blood, but lymphoma is now in his femur and kidney region.
Phs2385
in
CLL America Support
3 years ago
B-PLL/DLBCL
Hi Everyone, My dad was on obinutuzumab/
venetoclax
combination first-line treatment for CLL with aggressive features. The CLL is out of his blood, but lymphoma is now in his femur and kidney region.
Hi Everyone, My dad was on obinutuzumab/
venetoclax
combination first-line treatment for CLL with aggressive features. The CLL is out of his blood, but lymphoma is now in his femur and kidney region.
Phs2385
in
CLL Support
3 years ago
Just a little update :)
I'm still at 400mg of
Venetoclax
daily, with zero known side effects. I do have some musculoskeletal pain that I didn't have before, which is listed as a potential effect, but my doctor thinks it's more related to home office working than the meds. Shrug.
I'm still at 400mg of
Venetoclax
daily, with zero known side effects. I do have some musculoskeletal pain that I didn't have before, which is listed as a potential effect, but my doctor thinks it's more related to home office working than the meds. Shrug.
jijic
in
CLL Support
4 years ago
any studies showing v+o (or other cd20affecting mab) gives superior outcomes to venetoclax alone?
venetoclax
for high risk cll-without enhancing drug
venetoclax
for high risk cll-without enhancing drug
msbypass4cll
in
CLL Support
4 years ago
Richter Transformation - Update
A curious fact is that all the people who have been diagnosed with Ricther, took at the time of the transformation
Venetoclax
80% and the rest Ibrutinib being 20% Pseudo Ricther and the rest Ricther.
A curious fact is that all the people who have been diagnosed with Ricther, took at the time of the transformation
Venetoclax
80% and the rest Ibrutinib being 20% Pseudo Ricther and the rest Ricther.
Priss69
in
CLL Support
4 years ago
Side effects of venetoclax combined with obinutuzumab
Hi, I live in the UK and am eligible for
venetoclax
combined with obinutuzumab as first line treatment. I have been on W&W for about 4 years and now as my glands and spleen have been growing (no B symptoms though) I have been offered this treatment. I am due to start in March.
Hi, I live in the UK and am eligible for
venetoclax
combined with obinutuzumab as first line treatment. I have been on W&W for about 4 years and now as my glands and spleen have been growing (no B symptoms though) I have been offered this treatment. I am due to start in March.
Leilalala
in
CLL Support
4 years ago
Good end to a bad year... My MRD Results are in!
Identifier: NCT04016805 Recruitment Status : Recruiting First Posted : July 11, 2019 Last Update Posted : December 2, 2020 Study to Assess the Efficacy and Safety of Ublituximab and Umbralisib in Subjects With Chronic Lymphocytic Leukemia (CLL) Currently Treated With Ibrutinib, Acalabrutinib or
Venetoclax
Identifier: NCT04016805 Recruitment Status : Recruiting First Posted : July 11, 2019 Last Update Posted : December 2, 2020 Study to Assess the Efficacy and Safety of Ublituximab and Umbralisib in Subjects With Chronic Lymphocytic Leukemia (CLL) Currently Treated With Ibrutinib, Acalabrutinib or
Venetoclax
MikeHoff
in
CLL Support
4 years ago
compromised immunity
As a CLL patient who recently completed
Venetoclax
monotherapy and stopped because all bloods were in the normal range, would I still be considered immunocompromised?
As a CLL patient who recently completed
Venetoclax
monotherapy and stopped because all bloods were in the normal range, would I still be considered immunocompromised?
ivy39
in
CLL Support
4 years ago
Has anyone been prescribed and started Acalabrutinib and venetoclax treatment in U.K. in 2020
I have been told I am ready to start treatment but it has been deferred because of the Covid 19 status in the UK hospital where I go to see my haematologist .. has anyone else experienced this ?
I have been told I am ready to start treatment but it has been deferred because of the Covid 19 status in the UK hospital where I go to see my haematologist .. has anyone else experienced this ?
Tupence
in
CLL Support
4 years ago
Dr. Fauci shares his recommendation that immunosuppressed patients with blood cancers, like us, get the vaccine, because some immunity is be
daily video I chose to focus on the four oral presentations on the latest clinical trial news about limited duration therapies, all of which included
venetoclax
.
daily video I chose to focus on the four oral presentations on the latest clinical trial news about limited duration therapies, all of which included
venetoclax
.
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Scottish Medicines Agency has decided in favour of Venetoclax plus Obintuzumab for some patients.
The SMC has accepted
venetoclax
in combination with obinutuzumab for use in certain patients.
The SMC has accepted
venetoclax
in combination with obinutuzumab for use in certain patients.
Jm954
Administrator
in
CLL Support
4 years ago
Revisiting Ibrutinib , but then no Venetoclax?
I would just get
Venetoclax
alone (no Rituximab) as this is recommended as the third line; whereas 2. if I take
Venetoclax
-Rituximab as a second line treatment and need to change, I can then go to Ibrutinib. This seems strange ... has anyone else been told this?
I would just get
Venetoclax
alone (no Rituximab) as this is recommended as the third line; whereas 2. if I take
Venetoclax
-Rituximab as a second line treatment and need to change, I can then go to Ibrutinib. This seems strange ... has anyone else been told this?
Me2AsWell
in
CLL Support
4 years ago
CLL Society ASH 2020 Day 4 Updates and Wrap-Up Less fun! No hugs. But we are leaving with a lot of treats!
Venetoclax
: The boomerang drug! It seems there is life after progression on
Venetoclax
, as it sometimes works again when given a second chance! We learned that CAR-T cells should soon have an important place in treating CLL.
Venetoclax
: The boomerang drug! It seems there is life after progression on
Venetoclax
, as it sometimes works again when given a second chance! We learned that CAR-T cells should soon have an important place in treating CLL.
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Obinutuzumab and Venetoclax
Just 2 days before my consultation, on this amazing platform, it had confirmed that Obinutuzumab and
Venetoclax
had been approved in UK as a frontline treatment. I started the obinutuzumab on Tuesday and they split the first dose into two days.
Just 2 days before my consultation, on this amazing platform, it had confirmed that Obinutuzumab and
Venetoclax
had been approved in UK as a frontline treatment. I started the obinutuzumab on Tuesday and they split the first dose into two days.
ALS27
in
CLL Support
4 years ago
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