Hi Everyone,
My dad was on obinutuzumab/venetoclax combination first-line treatment for CLL with aggressive features. The CLL is out of his blood, but lymphoma is now in his femur and kidney region. Our CLL specialist has shared with us it could be DLBCL or B-PLL; the bone biopsy will determine the diagnosis and treatment path. My dad's bone biopsy is on Wednesday with results to be shared with us on Friday.
I want to get a headstart on research, and this group is absolutely the best source of patient expertise out there. Would you please share with me you or your loved one's DLBCL or B-Cell PLL--specifically the journey to getting properly diagnosed (what features were present that led to the diagnosis) and the treatment paths taken? I know that both are aggressive, but is prognosis grim for both? I have very little knowledge, and I seek to educate myself with your help, which I am so deeply grateful for.
Once we know which cancer we are fighting, I plan to join the Facebook groups and search for old Health Unlocked threads, but I want to start the conversation now while I am on Spring "Break" to help my mind make sense of all of this.
I appreciate you all, and I am with you as we stay strong during this ordeal.
With Gratitude,
Christine
