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Presentation by Dr Yusuf (JP) Saleeb on LDN, Long Covid, and Chronic Lyme Disease
Plus your chance to ask your questions. on Tuesday 7th November at 4pm ET or 9pm UK. The recording will be available the following week. Register now https://form.ldnresearchtrust.org/232812335487964
Plus your chance to ask your questions. on Tuesday 7th November at 4pm ET or 9pm UK. The recording will be available the following week. Register now https://form.ldnresearchtrust.org/232812335487964
Shewulf
Administrator
in
LDN Research Trust
11 months ago
November Webinar
We hope you will join us and ask your questions during the November Live Webinar with Dr Yusuf (JP) Saleeby with a presentation on LDN, Long Covid and Lyme Disease Update. Register here https://form.ldnresearchtrust.org/232812335487964 for a $5 donation.
We hope you will join us and ask your questions during the November Live Webinar with Dr Yusuf (JP) Saleeby with a presentation on LDN, Long Covid and Lyme Disease Update. Register here https://form.ldnresearchtrust.org/232812335487964 for a $5 donation.
Shewulf
Administrator
in
LDN Research Trust
11 months ago
Tetanus booster while on prednisone?
Has anyone had the tetanus booster (I'm due for a 10-year one) while on prednisone? Am I correct in understanding that we should not have "live" vaccines? And I can't find any information that mentions if it's live or not. Thank you so much for any insights!
Has anyone had the tetanus booster (I'm due for a 10-year one) while on prednisone? Am I correct in understanding that we should not have "live" vaccines? And I can't find any information that mentions if it's live or not. Thank you so much for any insights!
Spartans1
in
PMRGCAuk
1 year ago
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Shingles jab
I may be the last person to know this, but.......having been told to avoid the shingles jab as it contained a live virus, I've just been told that the NHS no longer use live virus vaccines, so it's safe for MPN patients. I have now had my first shotđ
I may be the last person to know this, but.......having been told to avoid the shingles jab as it contained a live virus, I've just been told that the NHS no longer use live virus vaccines, so it's safe for MPN patients. I have now had my first shotđ
Ovingite
in
MPN Voice
1 year ago
Shingles vaccine
Hi, has anyone had the shingles vaccine, I have had shingles 5 times over the years and have been advised to have the vaccine, bit worried about possible reaction?Thanx
Hi, has anyone had the shingles vaccine, I have had shingles 5 times over the years and have been advised to have the vaccine, bit worried about possible reaction?Thanx
Den73
in
PMRGCAuk
1 year ago
Shingles vaccine?
I unknowingly (until after) had shingles in March 2023 which I believe, triggered first episode of Afib. Now thinking about having the vaccine, concerned that it will trigger Afib. What are people's experiences of having the vaccine? Do I need it yet. Maybe still have antibodies in my system? Will
I unknowingly (until after) had shingles in March 2023 which I believe, triggered first episode of Afib. Now thinking about having the vaccine, concerned that it will trigger Afib. What are people's experiences of having the vaccine? Do I need it yet. Maybe still have antibodies in my system? Will
sunlovah
in
Atrial Fibrillation Support
1 year ago
GCA flare
Diagnosed April 2018 with PMR. Three months later GCA. I am currently on 3mgs prednisolone. Over the last two days have scalp pain on right side only ⊠no jaw pain. It feels a bit like I am getting a cold sore but no cold sore showing up. Could it be a GCA flare? Thank you to everyone who replies.
Diagnosed April 2018 with PMR. Three months later GCA. I am currently on 3mgs prednisolone. Over the last two days have scalp pain on right side only ⊠no jaw pain. It feels a bit like I am getting a cold sore but no cold sore showing up. Could it be a GCA flare? Thank you to everyone who replies.
Reddev
in
PMRGCAuk
1 year ago
tetanus booster and Covid vaccine
Hello I had a tetanus booster yesterday and I asked my GP if it was ok to get Covid vaccine next Thursday. He said he didnât know and to check with primary care. When I saw the nurse she said itâs fine as both are inactivated. Does anyone know about this ? I tried finding out but havenât managed to
Hello I had a tetanus booster yesterday and I asked my GP if it was ok to get Covid vaccine next Thursday. He said he didnât know and to check with primary care. When I saw the nurse she said itâs fine as both are inactivated. Does anyone know about this ? I tried finding out but havenât managed to
Mozart150
in
NRAS
1 year ago
anti anxiety with Eliquis
I started having a fibs in 2007 after having Lyme disease and also possibly too much thyroid medication. Iâve managed it all these years and after I turned 65 2 1/2 years ago, the doctor started pressuring me to go on blood thinner because of stroke risk. my score is only a two and itâs a gray area for
I started having a fibs in 2007 after having Lyme disease and also possibly too much thyroid medication. Iâve managed it all these years and after I turned 65 2 1/2 years ago, the doctor started pressuring me to go on blood thinner because of stroke risk. my score is only a two and itâs a gray area for
Fblue
in
Atrial Fibrillation Support
1 year ago
Shingles vaccine
Has anyone on methotrexate and infliximab had the shingles vaccine ? Do you have to get it every year ?
Has anyone on methotrexate and infliximab had the shingles vaccine ? Do you have to get it every year ?
Grounsel
in
NRAS
1 year ago
Immunocompromised people aged 50+ are now eligible for the shingles vaccine
Immunocompromised people aged 50 and over are now eligible for the shingles vaccine. The vaccine reduces your chances of getting shingles and reduces the risk of complications if you still develop it. Read more on our website, including answers to some commonly asked questions, here: https://www.lupusuk.org.uk
Immunocompromised people aged 50 and over are now eligible for the shingles vaccine. The vaccine reduces your chances of getting shingles and reduces the risk of complications if you still develop it. Read more on our website, including answers to some commonly asked questions, here: https://www.lupusuk.org.uk
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
Out of Remission
Well, I got some not so good news today. I had my CLL check today and I'm out of remission. My WBC is now 14K. My platelets are 152. My doctor wants to start me on Zanabrutinib now. I know it seems silly when just getting out of remission and I'm not even close to a WBC of 30K yet, and I have no other
Well, I got some not so good news today. I had my CLL check today and I'm out of remission. My WBC is now 14K. My platelets are 152. My doctor wants to start me on Zanabrutinib now. I know it seems silly when just getting out of remission and I'm not even close to a WBC of 30K yet, and I have no other
MyCLLJourney
in
CLL Support
1 year ago
Lyme Disease
Hello, I hope everyone is feeling as well as possible. Can I ask about links between Lyme Disease and RA? What is actually known? My daughter was talking about ticks the other day (we are both walkers) when I said I had had (in my late teens) a bullseye mark from a tick on my leg, she said âwell that
Hello, I hope everyone is feeling as well as possible. Can I ask about links between Lyme Disease and RA? What is actually known? My daughter was talking about ticks the other day (we are both walkers) when I said I had had (in my late teens) a bullseye mark from a tick on my leg, she said âwell that
Lyndy
in
NRAS
1 year ago
shingles vaccine
no you can't have the shingles as it is a live vaccine. You don't get offered the shingles vaccine until you are 70
no you can't have the shingles as it is a live vaccine. You don't get offered the shingles vaccine until you are 70
bunnycaramel
in
NRAS
1 year ago
Shingles
I had shingles 7 years agoi am 69 and left me with the most terrible pain neurphatic pain is the worst i think no meds have helped me.i have RA lung fibrosis had cancer sjorgrens i think i canr expect more patologies.i recomend people to have the shingix vaccine because this pain is Agony!!
I had shingles 7 years agoi am 69 and left me with the most terrible pain neurphatic pain is the worst i think no meds have helped me.i have RA lung fibrosis had cancer sjorgrens i think i canr expect more patologies.i recomend people to have the shingix vaccine because this pain is Agony!!
Al1954
in
NRAS
1 year ago
Shingles Vaccine
I have RA and am currently taking hydroxychloroquin, methotrexate and amgevita. Iâm trying to work out whether at age 61 with a compromised immune system, I will qualify for the new shingrix (shingles non-live) vaccine on the NHS? Does anyone know?
I have RA and am currently taking hydroxychloroquin, methotrexate and amgevita. Iâm trying to work out whether at age 61 with a compromised immune system, I will qualify for the new shingrix (shingles non-live) vaccine on the NHS? Does anyone know?
CagneysMum
in
NRAS
1 year ago
Shingles Vaccine
Shingles Vaccine From September 2023 you will be eligible for vaccine from age 65. Advertised on TV yesterday Rose
Shingles Vaccine From September 2023 you will be eligible for vaccine from age 65. Advertised on TV yesterday Rose
Rose54
in
PMRGCAuk
1 year ago
Shingles vaccine
Just seen the BBC news health website. Shingles vaccines being offered to over 65âs ( was 70) and, even better, to vulnerable immune suppressed people over 55 from September 2023.
Just seen the BBC news health website. Shingles vaccines being offered to over 65âs ( was 70) and, even better, to vulnerable immune suppressed people over 55 from September 2023.
Amnesiac3637
in
NRAS
1 year ago
ulcers and boils ???
Hi Can anyone inform me please , do you get mouth ulcers , sores & boils up nose & a runny nose , as if youâve got a constant cold with PmR ? I go through boxes and boxes of tissues !
Hi Can anyone inform me please , do you get mouth ulcers , sores & boils up nose & a runny nose , as if youâve got a constant cold with PmR ? I go through boxes and boxes of tissues !
TedTheMaineCoon
in
PMRGCAuk
1 year ago
Follow up from my post about cellulitis
Sorry should have said that I am on 10 mg of Pred.
Sorry should have said that I am on 10 mg of Pred.
Dobermanlover
in
PMRGCAuk
1 year ago
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