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Experiences with
Urso
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Got my Rheumatologist results...
(Probably weather related) I've got 2 more weeks of prednisone to go before they put me on whatever jives with my
URSO
and won't hurt my liver further. I'm bummed out. Another progressive AI disease.
(Probably weather related) I've got 2 more weeks of prednisone to go before they put me on whatever jives with my
URSO
and won't hurt my liver further. I'm bummed out. Another progressive AI disease.
Ktltel
in
PBC Foundation
7 years ago
Organic Apple Cider Vinegar
I take 500mg of
Urso
daily. My specialist was very pleased on my recent visit, saying whatever I'm doing , too keep it up. I do stay clear of too much fatty food and alcohol. But what I do take about 3 times a day is a teaspoon of Organic Apple Cider Vinegar in a glass of water.
I take 500mg of
Urso
daily. My specialist was very pleased on my recent visit, saying whatever I'm doing , too keep it up. I do stay clear of too much fatty food and alcohol. But what I do take about 3 times a day is a teaspoon of Organic Apple Cider Vinegar in a glass of water.
sandgroundergirl
in
PBC Foundation
7 years ago
Steroid versus immunosuppressant
And put on
URSO
, about 4 years ago my specialist thought that I had AIH overlap and put me on prednisone a liver biopsy was not conclusive and after a couple of years he recommended Immunosuppressant which made me really ill and took 5 weeks before I felt better my ALT and ALP levels yo yo.
And put on
URSO
, about 4 years ago my specialist thought that I had AIH overlap and put me on prednisone a liver biopsy was not conclusive and after a couple of years he recommended Immunosuppressant which made me really ill and took 5 weeks before I felt better my ALT and ALP levels yo yo.
Biddyb
in
PBC Foundation
7 years ago
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YAY!!
I was recently diagnosed two months ago and started on
URSO
6 weeks ago. I have been taking my
URSO
and started an anti-inflammatory diet including a lot of lots of veggies and supplements! I am so happy to say that my labs done yesterday are now normal!!! I am ecstatic! I hope you are all well.
I was recently diagnosed two months ago and started on
URSO
6 weeks ago. I have been taking my
URSO
and started an anti-inflammatory diet including a lot of lots of veggies and supplements! I am so happy to say that my labs done yesterday are now normal!!! I am ecstatic! I hope you are all well.
youaremysunshine
in
PBC Foundation
7 years ago
Throat swelling anyone?
Hi I was diagnosed with Pbc in Jan13 due to nodules on my liver( no other symptoms except raised Ggt-120)I cannot tolerate
urso
well and only take450mg daily when I should be over 1000 however my liver results are bordering on normal now.Was told at Christmas some of the nodules had got bigger so had
Hi I was diagnosed with Pbc in Jan13 due to nodules on my liver( no other symptoms except raised Ggt-120)I cannot tolerate
urso
well and only take450mg daily when I should be over 1000 however my liver results are bordering on normal now.Was told at Christmas some of the nodules had got bigger so had
cazz22
in
PBC Foundation
7 years ago
Questran Light, (cholestyramine) and other meds - timings of taking advice.
Questran is prescribed as one sachet twice a day
Urso
with food three times a day Calcium twice a day BP tablet once a day always at the same time, so I have been having with breakfast along with first
Urso
and calcium.
Questran is prescribed as one sachet twice a day
Urso
with food three times a day Calcium twice a day BP tablet once a day always at the same time, so I have been having with breakfast along with first
Urso
and calcium.
Jo_Br
in
PBC Foundation
7 years ago
Peri portal lymphadenopathy
I also received prescription for my 1st lot of
Urso
.
I also received prescription for my 1st lot of
Urso
.
bullett
in
PBC Foundation
7 years ago
SBP, arrhythmia, tachycardia
Taking
urso
, 2 diuretics, preventative antibiotic. Also wondering what your experiences with stress are and how it impacts PBC and related problems. Thanks in advance for your thoughts! Amy in Tennessee, USA
Taking
urso
, 2 diuretics, preventative antibiotic. Also wondering what your experiences with stress are and how it impacts PBC and related problems. Thanks in advance for your thoughts! Amy in Tennessee, USA
tntarheel
in
PBC Foundation
7 years ago
Helping a study on ursodeoxycholic
I received a letter today from a health team asking me if I would like to take part in a study to try and find out why some pbc sufferers respond to
urso
and some don't. They said my hospital records show I would be a good candidate for the study as I am a responder to
urso
.
I received a letter today from a health team asking me if I would like to take part in a study to try and find out why some pbc sufferers respond to
urso
and some don't. They said my hospital records show I would be a good candidate for the study as I am a responder to
urso
.
Lcagar63
in
PBC Foundation
7 years ago
dilated bile duct
Does
Urso
keep it under control? --Jane
Does
Urso
keep it under control? --Jane
JaneIng
in
PBC Foundation
7 years ago
Diagnosed a week ago today
Two weeks later I'm being diagnosed with PBC, given a script for
URSO
, scheduling a liver biopsy, and feeling relief that there is an answer for a lot of the issues I have been having the last 15 years!
Two weeks later I'm being diagnosed with PBC, given a script for
URSO
, scheduling a liver biopsy, and feeling relief that there is an answer for a lot of the issues I have been having the last 15 years!
tonia66
in
PBC Foundation
7 years ago
Urso side effects
Hi All, I started
Urso
about five/six weeks ago and have been feeling okay until the last few days. I feel very achy and with a headache. Has anyone experienced this? Maybe its just a virus I am fighting too. Thanks!
Hi All, I started
Urso
about five/six weeks ago and have been feeling okay until the last few days. I feel very achy and with a headache. Has anyone experienced this? Maybe its just a virus I am fighting too. Thanks!
youaremysunshine
in
PBC Foundation
7 years ago
Anyone else have PBC and RA?
And after a second attempt I seem to be tolerating
URSO
. Been back on that for 3 weeks. About 5-6 weeks ago I noticed my joints were hurting. First my knees, then progressively over the days to weeks my ankles and wrists too. I feel like the tin man of Oz needing that oil can!
And after a second attempt I seem to be tolerating
URSO
. Been back on that for 3 weeks. About 5-6 weeks ago I noticed my joints were hurting. First my knees, then progressively over the days to weeks my ankles and wrists too. I feel like the tin man of Oz needing that oil can!
Ktltel
in
PBC Foundation
7 years ago
Urso results
Hello All, So I've been on
Urso
~4 months now since being diagnosed with stage 1 PBC and got my bloods done myself at work and I'm soon scheduled for my 6 month review with my GI.
Hello All, So I've been on
Urso
~4 months now since being diagnosed with stage 1 PBC and got my bloods done myself at work and I'm soon scheduled for my 6 month review with my GI.
Emer1986
in
PBC Foundation
7 years ago
Unable to take Urso for PBC
I am newly diagnosed with PBC and was given
Urso
.
Urso
made me very sick so I am now scared as to what is going to happen to me. Has anyone here not been able to take
Urso
and been well or found something else to help.
I am newly diagnosed with PBC and was given
Urso
.
Urso
made me very sick so I am now scared as to what is going to happen to me. Has anyone here not been able to take
Urso
and been well or found something else to help.
Wocket
in
PBC Foundation
7 years ago
Feeling bloated
I've been on
URSO
for 2 months now with no side effects, but could this be down to the medication too? Thanks for advice and best wishes 😊
I've been on
URSO
for 2 months now with no side effects, but could this be down to the medication too? Thanks for advice and best wishes 😊
happy-days71
in
PBC Foundation
7 years ago
Tests are better, but, not quite
After taking
Urso
for 3.5 months, my GGT level dropped from 130 to a normal level of 43. However, Alkaline Phos remained high, though not as high as before I started taking
Urso
. It was at about 300, now it is 189.
After taking
Urso
for 3.5 months, my GGT level dropped from 130 to a normal level of 43. However, Alkaline Phos remained high, though not as high as before I started taking
Urso
. It was at about 300, now it is 189.
iagra
in
PBC Foundation
7 years ago
Trouble with vision.
I have only been on
urso
for 3 or 4 weeks so I wondered if it was a side effect. Has anyone else had trouble after starting to take it? I do need new glasses anyway but its quite a difference in a short time.
I have only been on
urso
for 3 or 4 weeks so I wondered if it was a side effect. Has anyone else had trouble after starting to take it? I do need new glasses anyway but its quite a difference in a short time.
Angel_b
in
PBC Foundation
7 years ago
Should I be worried
Been back the dr Been on
Urso
for 3 month Alp gone back up by 50 to 634 Bilirubin is 20 Alt is 161 Should I be worried ?
Been back the dr Been on
Urso
for 3 month Alp gone back up by 50 to 634 Bilirubin is 20 Alt is 161 Should I be worried ?
Melwoods
in
PBC Foundation
7 years ago
Living while waiting for the other shoe to drop!
Urso
has helped with digestive issues, but the fatigue is like a wall I run into whenever I try to extend activities. Thanks for "listening"!
Urso
has helped with digestive issues, but the fatigue is like a wall I run into whenever I try to extend activities. Thanks for "listening"!
ILik3Pizza
in
PBC Foundation
7 years ago
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