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Urso
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help and advice much appreciated !
i was suffering with fatigue a bit, a little itchy but nothing major 6 months later -
Urso
not bringing levels down to the docs expectations so will request more bloods and liver biopsy - my symptoms still were about the same although i was getting a little worried now how this would effect my ability
i was suffering with fatigue a bit, a little itchy but nothing major 6 months later -
Urso
not bringing levels down to the docs expectations so will request more bloods and liver biopsy - my symptoms still were about the same although i was getting a little worried now how this would effect my ability
Paul05
in
PBC Foundation
8 years ago
PBC, AIH, Cirrhosis help !!!
i was suffering with fatigue a bit, a little itchy but nothing major 6 months later -
Urso
not bringing levels down to the docs expectations so will request more bloods and liver biopsy - my symptoms still were about the same although i was getting a little worried now how this would effect my ability
i was suffering with fatigue a bit, a little itchy but nothing major 6 months later -
Urso
not bringing levels down to the docs expectations so will request more bloods and liver biopsy - my symptoms still were about the same although i was getting a little worried now how this would effect my ability
Paul05
in
British Liver Trust
8 years ago
Not yet 100% diagnosed with pbc ,23 years old
I found this out accidently during a life insurance health exam (liver enzymes were elevated) my GI wants to wait on liver biopsy but wants me to start on
URSO
, is it possible to have a normal life expectancy with pbc? Do you guys know of anyone diagnosed this young who lived a long time?
I found this out accidently during a life insurance health exam (liver enzymes were elevated) my GI wants to wait on liver biopsy but wants me to start on
URSO
, is it possible to have a normal life expectancy with pbc? Do you guys know of anyone diagnosed this young who lived a long time?
Yacontreras
in
PBC Foundation
8 years ago
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Scared & Confused
He took me off the
Urso
, which I was unaware of until I went to refill my Rx. Then he told me he was going to just keep rechecking my levels every few months. I was confused so I went back to my Gastro Dr., he was just really confused too. He put me right back on the
Urso
.
He took me off the
Urso
, which I was unaware of until I went to refill my Rx. Then he told me he was going to just keep rechecking my levels every few months. I was confused so I went back to my Gastro Dr., he was just really confused too. He put me right back on the
Urso
.
Cstar1079
in
PBC Foundation
8 years ago
Need input
Still not issued
urso
. Doubled my Neurontin for FM. Ordered oxygen tanks for COPD. I am no longer able to do my job so she did say that she would sign the disability forms. MRI of liver was normal. Lymph nodes are swelling at an alarming rate and progressively getting worse.
Still not issued
urso
. Doubled my Neurontin for FM. Ordered oxygen tanks for COPD. I am no longer able to do my job so she did say that she would sign the disability forms. MRI of liver was normal. Lymph nodes are swelling at an alarming rate and progressively getting worse.
Robin15931
in
PBC Foundation
8 years ago
Hungry at last
I have started taking
Urso
three weeks ago..at present on 500mg a day but going up to 750 g next week..which I think is too much for my small weight of 49 kilos however the
urso
has made me hungry for the first time in ages so that is a big plus for me. Anyone else experienced this?
I have started taking
Urso
three weeks ago..at present on 500mg a day but going up to 750 g next week..which I think is too much for my small weight of 49 kilos however the
urso
has made me hungry for the first time in ages so that is a big plus for me. Anyone else experienced this?
bobbycat
in
PBC Foundation
9 years ago
PBC
Been on
Urso
since then and I have been going very well, but out of no where, I've had a set back where I am extremely tired, pain in bones, itching flared up again. Does it work that way that you have like set backs every now and then?
Been on
Urso
since then and I have been going very well, but out of no where, I've had a set back where I am extremely tired, pain in bones, itching flared up again. Does it work that way that you have like set backs every now and then?
Lekkerbek
in
PBC Foundation
8 years ago
My Experience so far with PBC
My first question is: Is it the PBC or the
Urso
that causes that? Do any of you have the occasional glass of wine? My doctor says it's okay once or twice a month. I used to love my wine. FYI.
My first question is: Is it the PBC or the
Urso
that causes that? Do any of you have the occasional glass of wine? My doctor says it's okay once or twice a month. I used to love my wine. FYI.
PLB21
in
PBC Foundation
8 years ago
Fibro myalgia and PBC
I am now on
urso
but it is quite late and my lfts are pretty raised and my liver was marked as 12.5 on the fibroscan.....,,but my back is somewhat better now I have given up gluten. When members of this site day they have bone pain..what is that exactly please?.
I am now on
urso
but it is quite late and my lfts are pretty raised and my liver was marked as 12.5 on the fibroscan.....,,but my back is somewhat better now I have given up gluten. When members of this site day they have bone pain..what is that exactly please?.
bobbycat
in
PBC Foundation
8 years ago
Blood pressure pills and urso
I take it in the morning just before taking the
Urso
? Any ideas? Thx
I take it in the morning just before taking the
Urso
? Any ideas? Thx
Oscardog
in
PBC Foundation
9 years ago
statins
I have had a prescription review today at my doctors surgery with the pharmacist he has suggested I might want to start taking statins as preventative medicine I am going to be 70 in April I was diagnosed with PBC a few years ago my liver function has always been normal I do not take
urso
yet my
I have had a prescription review today at my doctors surgery with the pharmacist he has suggested I might want to start taking statins as preventative medicine I am going to be 70 in April I was diagnosed with PBC a few years ago my liver function has always been normal I do not take
urso
yet my
chrissey7
in
PBC Foundation
9 years ago
Urso- how long does it take to work?
I've been on
urso
for almost a month and LFTs havnt changed much. How long does it take for LFTs to start to decline? I have normal bilirubin and I'm Ama negative.
I've been on
urso
for almost a month and LFTs havnt changed much. How long does it take for LFTs to start to decline? I have normal bilirubin and I'm Ama negative.
RB28
in
PBC Foundation
9 years ago
Hubby just doesn't get it!
I take my
Urso
and folic acid in the morning and I throw in a capsule of oil of primrose as I also have arthritis of the spine. These I take in the morning. My folic acid levels were low and this can contribute to fatigue.
I take my
Urso
and folic acid in the morning and I throw in a capsule of oil of primrose as I also have arthritis of the spine. These I take in the morning. My folic acid levels were low and this can contribute to fatigue.
SuzCurran
in
PBC Foundation
8 years ago
First Post and a Thank You
I have been taking the
URSO
for nearly one month with no issues. Why is it so darned expensive? I have another blood test scheduled in a couple months. I guess this will now be part of the routine.
I have been taking the
URSO
for nearly one month with no issues. Why is it so darned expensive? I have another blood test scheduled in a couple months. I guess this will now be part of the routine.
MK3117
in
PBC Foundation
9 years ago
breast pain
As I mentioned in a previous post, I was diagnosed with PBC in 2013, and have been managing my condition with
URSO
. A week ago I began having pain in my left breast, so badly that it woke me up in the night.
As I mentioned in a previous post, I was diagnosed with PBC in 2013, and have been managing my condition with
URSO
. A week ago I began having pain in my left breast, so badly that it woke me up in the night.
Seajeanie
in
British Liver Trust
9 years ago
Promising response to fenofibrate
After a sudden increase in all of my liver enzymes last year and exclusion of AIH by biopsy my specialist felt my response to
Urso
was no longer optimal. He started me on fenofibrate which I have been taking for 2 months now. I have just had repeat bloods which showed a remarkable improvement!
After a sudden increase in all of my liver enzymes last year and exclusion of AIH by biopsy my specialist felt my response to
Urso
was no longer optimal. He started me on fenofibrate which I have been taking for 2 months now. I have just had repeat bloods which showed a remarkable improvement!
Puddles
in
PBC Foundation
9 years ago
Pbc/aih
Hi besides the dreaded itch not sleeping taking
urso
plus steroids started to have terrible headaches plus when I am in my bed have like heart palpitations have also osteoporosis and osteoarthritis and just getting over a broken arm to boot are these other issues normal .
Hi besides the dreaded itch not sleeping taking
urso
plus steroids started to have terrible headaches plus when I am in my bed have like heart palpitations have also osteoporosis and osteoarthritis and just getting over a broken arm to boot are these other issues normal .
jimshe
in
PBC Foundation
9 years ago
Amount of urso taken
I was diagnosed in June 2015 after having liver biopsy started on
urso
,I did,not have any symptoms before biopsy just blood test showing something wrong ,when all the results of the biopsy were back I found out I was at stage 3 which supprised me as I was thinking I would only be in the early stages.I
I was diagnosed in June 2015 after having liver biopsy started on
urso
,I did,not have any symptoms before biopsy just blood test showing something wrong ,when all the results of the biopsy were back I found out I was at stage 3 which supprised me as I was thinking I would only be in the early stages.I
Mozzamo
in
PBC Foundation
9 years ago
Concerned
i workout 4x a week and im very active, even though im constantly tired.... is there anything i may be doing wrong, or is it the side effect of
Urso
, been on it for 6 years ?? Anyone have that same problem with swelling? If so any suggestions that may help are appreciated.
i workout 4x a week and im very active, even though im constantly tired.... is there anything i may be doing wrong, or is it the side effect of
Urso
, been on it for 6 years ?? Anyone have that same problem with swelling? If so any suggestions that may help are appreciated.
Rosairobles
in
PBC Foundation
9 years ago
Support NE Scotland
She really wishes she could talk directly to someone in her area especially now been told they don't think the
Urso
doing its job for her. She doesn't drive and the chronic fatigue limits ability to travel.
She really wishes she could talk directly to someone in her area especially now been told they don't think the
Urso
doing its job for her. She doesn't drive and the chronic fatigue limits ability to travel.
coutryquine
in
PBC Foundation
9 years ago
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