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Urso
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Difficulty swallowing tablets
I’m finding it really hard to keep down the
urso
tablets. I take them with lots of water but they seem to be getting stuck and once the plastic coating is dissolved, the powder is coming back up and out of my mouth. Anyone have any suggestions to stop this?
I’m finding it really hard to keep down the
urso
tablets. I take them with lots of water but they seem to be getting stuck and once the plastic coating is dissolved, the powder is coming back up and out of my mouth. Anyone have any suggestions to stop this?
Elaineqs
in
PBC Foundation
6 years ago
Questions for consultant
I am AIH PBC overlap and recent bloods revealed that my AMA are raised despite taking
urso
. Just need some ideas thanks xx
I am AIH PBC overlap and recent bloods revealed that my AMA are raised despite taking
urso
. Just need some ideas thanks xx
Alley27
in
PBC Foundation
6 years ago
Itch Relief
I was thinking of going on a short time prednisone "cure" for the lichen planus Has anyone ever used prednisone while taking
urso
?
I was thinking of going on a short time prednisone "cure" for the lichen planus Has anyone ever used prednisone while taking
urso
?
Mulvaney
in
PBC Foundation
6 years ago
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PBC and newly started Ocaliva
At age 30 Started Ocaliva 9/4/18 Hoping this new medication along with the
urso
helps slow things down for me.
At age 30 Started Ocaliva 9/4/18 Hoping this new medication along with the
urso
helps slow things down for me.
Alison2306
in
PBC Foundation
6 years ago
urso medication: mg/kg and when is the best time to take them
I was wanderind about the correct therapy with
urso
!
I was wanderind about the correct therapy with
urso
!
Andrei
in
PBC Foundation
6 years ago
New diagnosis; itching not improving
I started on Cholestyramine 4g powder 2 x day and
urso
600mg 2 x day. Initially, I thought it was getting better. I have to say, even before treatment, I would have cycles where it was bad and times when it was improved.
I started on Cholestyramine 4g powder 2 x day and
urso
600mg 2 x day. Initially, I thought it was getting better. I have to say, even before treatment, I would have cycles where it was bad and times when it was improved.
55mimi
in
PBC Foundation
6 years ago
Nutrition and PBC
I am on
URSO
and cholestyramine at the moment. I have an MRI book for next month to confirm diagnosis. I am starting a raw plant based vegan diet and was wondering if anyone else is on it as well. If so, have you noticed a difference in your symptoms and energy levels?
I am on
URSO
and cholestyramine at the moment. I have an MRI book for next month to confirm diagnosis. I am starting a raw plant based vegan diet and was wondering if anyone else is on it as well. If so, have you noticed a difference in your symptoms and energy levels?
Mellynelise17
in
PBC Foundation
6 years ago
Stages of PBC-Prognosis-Next Steps?
Her physician started her on
Urso
(250mg 3xday) but no one has really provided us with any real information about next steps or the prognosis.
Her physician started her on
Urso
(250mg 3xday) but no one has really provided us with any real information about next steps or the prognosis.
Hidden
in
PBC Foundation
6 years ago
Ibuprofen
Hi...I have PBC and take
urso
...but have just developed tendonitis in my ankle and my gp recommended ibuprofen but I’m sure I read that you shouldn’t take these ? Can anyone tell me if they are ok to take ...thank you 😊
Hi...I have PBC and take
urso
...but have just developed tendonitis in my ankle and my gp recommended ibuprofen but I’m sure I read that you shouldn’t take these ? Can anyone tell me if they are ok to take ...thank you 😊
Jnuttall
in
PBC Foundation
6 years ago
PBC and work?
I am wondering how many of you who have pbc being controlled with
urso
to some extent still manage to work? I am a teacher and due to a flexible and supportive employer I am only at school 2 1/2 days a week now -but there is always work that needs to be done!
I am wondering how many of you who have pbc being controlled with
urso
to some extent still manage to work? I am a teacher and due to a flexible and supportive employer I am only at school 2 1/2 days a week now -but there is always work that needs to be done!
Jmorrison
in
PBC Foundation
6 years ago
Newbie from Texas
I have had 3 biopsies, been put on
Urso
(1200mg a day) and have massive itching. I am at my wits end with this constant itching, lack of sleep and being exhausted all the time! I have a drs appt in 3 weeks and hopefully can get something better for the itching.
I have had 3 biopsies, been put on
Urso
(1200mg a day) and have massive itching. I am at my wits end with this constant itching, lack of sleep and being exhausted all the time! I have a drs appt in 3 weeks and hopefully can get something better for the itching.
Pamela372
in
PBCers Organization
6 years ago
First post!
I was diagnosed with pbc about 4 years ago and have been on
Urso
ever since. Although having read posts from the pbc foundation before I don't recall ever becoming a member.
I was diagnosed with pbc about 4 years ago and have been on
Urso
ever since. Although having read posts from the pbc foundation before I don't recall ever becoming a member.
Jmorrison
in
PBC Foundation
6 years ago
Budesonide
I’ve been told the disease is progressing fast and will need transplant 3-5 years I’m a non responder to
Urso
etc. Consultant said he might try a steroid budesonide however need to have a scan to check that I’m not starting with chirrosis Anyone else tried this
I’ve been told the disease is progressing fast and will need transplant 3-5 years I’m a non responder to
Urso
etc. Consultant said he might try a steroid budesonide however need to have a scan to check that I’m not starting with chirrosis Anyone else tried this
Melwoods
in
PBC Foundation
6 years ago
Weight loss
Does anybody have weight loss with
URSO
. Ive lost weight since taking
URSO
2 months ago and really cant afford to. A lot of people have put weight on im losing it sadly.
Does anybody have weight loss with
URSO
. Ive lost weight since taking
URSO
2 months ago and really cant afford to. A lot of people have put weight on im losing it sadly.
kingsnorth
in
PBC Foundation
6 years ago
Urso and other medication
Morning I've been given folic acid to take as I'm low, but also have hydroxychloroquine pills to start, I'm having a eye test before I take hydroxy But I've not been told if I can take when I take
urso
, I take one am and one after dinner, but I was told by gastroenterology to start talking one more
Morning I've been given folic acid to take as I'm low, but also have hydroxychloroquine pills to start, I'm having a eye test before I take hydroxy But I've not been told if I can take when I take
urso
, I take one am and one after dinner, but I was told by gastroenterology to start talking one more
Pinkcrush
in
PBC Foundation
6 years ago
waitibg
panel but as of rt now they dont think i have pbc..idk how a dr can misdiagnosed something like liver diease i am a little worried being og
urso
for 3 months tho coz if i do have pbc its been working thxs for listening
panel but as of rt now they dont think i have pbc..idk how a dr can misdiagnosed something like liver diease i am a little worried being og
urso
for 3 months tho coz if i do have pbc its been working thxs for listening
Hidden
in
PBC Foundation
6 years ago
Need to know about test results
Hi everyone I have had BPC for about 5 years now, on
Urso
but I don't know what a I should be asking about my blood results and levels should be. I did not know there are stages.
Hi everyone I have had BPC for about 5 years now, on
Urso
but I don't know what a I should be asking about my blood results and levels should be. I did not know there are stages.
Jan1111
in
PBC Foundation
6 years ago
Diagnosis
I have been on
Urso
for 2 months and I take my LFT again in mid May. Will I know if I am a responder from those tests?
I have been on
Urso
for 2 months and I take my LFT again in mid May. Will I know if I am a responder from those tests?
Ellyne
in
PBC Foundation
6 years ago
Hepatologist
I been on
urso
ever since & been getting ultrasounds every 6 months along with blood work. My blood work has been normal but ultrasounds since shows cirrhosis, PBC & fatty liver.
I been on
urso
ever since & been getting ultrasounds every 6 months along with blood work. My blood work has been normal but ultrasounds since shows cirrhosis, PBC & fatty liver.
Yankeerose3
in
PBC Foundation
6 years ago
Reporting in.
I’m not on
URSO
because I had very bad reaction and not eligible for Ocaliva, so waiting for other clinical trials that I may be a candidate. Thanks for all your posts. Helpful to know one is not alone and that a lot of symptoms are common to us all You all have an awesome day. J
I’m not on
URSO
because I had very bad reaction and not eligible for Ocaliva, so waiting for other clinical trials that I may be a candidate. Thanks for all your posts. Helpful to know one is not alone and that a lot of symptoms are common to us all You all have an awesome day. J
Jeanb47
in
PBC Foundation
6 years ago
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