Search
Search
About
Log in
Join
Experiences with
Urso
Posts
Communities
1,380 public posts
Filter results
Reporting in.
I’m not on
URSO
because I had very bad reaction and not eligible for Ocaliva, so waiting for other clinical trials that I may be a candidate. Thanks for all your posts. Helpful to know one is not alone and that a lot of symptoms are common to us all You all have an awesome day. J
I’m not on
URSO
because I had very bad reaction and not eligible for Ocaliva, so waiting for other clinical trials that I may be a candidate. Thanks for all your posts. Helpful to know one is not alone and that a lot of symptoms are common to us all You all have an awesome day. J
Jeanb47
in
PBC Foundation
6 years ago
Hair loss with urso
Has anyone found out if we can use topical rogaine for hair loss with
urso
?
Has anyone found out if we can use topical rogaine for hair loss with
urso
?
Pamela4475
in
PBC Foundation
6 years ago
Colonoscopy and urso
I have pbc and take
urso
. The
urso
states i have to take them 3 x day with or just after food ! Do i continue to take
urso
without food for these 2 days ? Has anyone else taken
urso
without food and if so what effect does this have on the digestive system.
I have pbc and take
urso
. The
urso
states i have to take them 3 x day with or just after food ! Do i continue to take
urso
without food for these 2 days ? Has anyone else taken
urso
without food and if so what effect does this have on the digestive system.
pottery1
in
PBC Foundation
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Any partial responders to URSO out there?
Started
URSO
straight away and while they have come down hugely (and still are coming down albeit 1 or 2 points only but at least in the right direction), they are still nowhere near normal.
Started
URSO
straight away and while they have come down hugely (and still are coming down albeit 1 or 2 points only but at least in the right direction), they are still nowhere near normal.
LisaC22
in
PBC Foundation
6 years ago
For people who did not respond to Urso, has Ocaliva had a more positive effect?
My partner has been taking
Urso
for several years and it has not appeared to be helping at all. We went to see the liver consultant recently following another biopsy and there has been progression in the condition and
urso
has not been working.
My partner has been taking
Urso
for several years and it has not appeared to be helping at all. We went to see the liver consultant recently following another biopsy and there has been progression in the condition and
urso
has not been working.
djws
in
PBC Foundation
6 years ago
Fibroscan
Put on
Urso
2 months ago. So if it’s not PBC what else could it be? This has been going on since July and I want some resolution. Any thoughts? Ellyne
Put on
Urso
2 months ago. So if it’s not PBC what else could it be? This has been going on since July and I want some resolution. Any thoughts? Ellyne
Ellyne
in
PBC Foundation
6 years ago
Is it PBC or Urso ?
I have just st learned through lab testing that I am deficient in Vitamins A, D and K. Does the disease or the medicine cause this? What is the cure because I know we have a hard time absorbing these vitamins. I don’t see the doctor about these results for three more weeks
I have just st learned through lab testing that I am deficient in Vitamins A, D and K. Does the disease or the medicine cause this? What is the cure because I know we have a hard time absorbing these vitamins. I don’t see the doctor about these results for three more weeks
Sissymcc
in
British Liver Trust
6 years ago
Gallbladder-esque Symptoms
On
Urso
plus take a number of supplements like turmeric, Vitamins D and K. Take tiny dose of Doxiepin nightly for itching and sleep. Among other meds for various ailments. ANYway, has anyone here experienced gallbladder problems along with PBC?
On
Urso
plus take a number of supplements like turmeric, Vitamins D and K. Take tiny dose of Doxiepin nightly for itching and sleep. Among other meds for various ailments. ANYway, has anyone here experienced gallbladder problems along with PBC?
Sharonis
in
PBC Foundation
6 years ago
Alpha gal, Urso, and high cholesterol and blood sugar.
Wondering if I should be on
URSO
but wonder if I can have it without reacting if it’s derived from cows. I am 52 and have always been careful about diet and in good shape. This is so very discouraging. And do statins mess up the liver too? Any advice or info appreciated.
Wondering if I should be on
URSO
but wonder if I can have it without reacting if it’s derived from cows. I am 52 and have always been careful about diet and in good shape. This is so very discouraging. And do statins mess up the liver too? Any advice or info appreciated.
Beejoyful
in
PBC Foundation
6 years ago
Any insights?
I recently had my bi-annual blood work and all the liver function numbers are well within the normal range (thanks to
Urso
!). My question is: does anyone know why the AMA and smooth muscle tests need to be repeated since their levels do not indicate the progression of PBC?
I recently had my bi-annual blood work and all the liver function numbers are well within the normal range (thanks to
Urso
!). My question is: does anyone know why the AMA and smooth muscle tests need to be repeated since their levels do not indicate the progression of PBC?
ILik3Pizza
in
PBC Foundation
6 years ago
I was diagnosed 3 yrs ago with PBC. I would like to know how many people here have had their gallbladder removed and or appendix?
Does anyone know approximately how long between stages when on
urso
or is it different for everyone? My biggest issue is the not knowing. My doctor said to just go enjoy the time I have left but that is very hard to do.
Does anyone know approximately how long between stages when on
urso
or is it different for everyone? My biggest issue is the not knowing. My doctor said to just go enjoy the time I have left but that is very hard to do.
tealmust
in
PBC Foundation
6 years ago
When to test for urso response
Can anyone tell me when i should be tested to see if i am responding to
urso
. I have been taking
urso
for 1 month and have been diagnosed with pbc. I am from the uk.
Can anyone tell me when i should be tested to see if i am responding to
urso
. I have been taking
urso
for 1 month and have been diagnosed with pbc. I am from the uk.
pottery1
in
PBC Foundation
6 years ago
Thyroid
Do those of you on
Urso
have the same problem? So sick of it...
Do those of you on
Urso
have the same problem? So sick of it...
gwillistexas
in
PBC Foundation
6 years ago
PBC Vit D now getting bone pain
I was diagnosed with PBC by gastro and put on
URSO
and questran. I also went to see the general medicine guy and he said he couldn’t understand why I had been sent to see him. So I think he felt sorry for me and said would run some vitamin test as a Vit D deficiency could be causing muscle pain.
I was diagnosed with PBC by gastro and put on
URSO
and questran. I also went to see the general medicine guy and he said he couldn’t understand why I had been sent to see him. So I think he felt sorry for me and said would run some vitamin test as a Vit D deficiency could be causing muscle pain.
marieharris67
in
PBC Foundation
6 years ago
Pins and needles
Does anybody get pins and needles in their legs and feet im on
urso
and only had this since starting it 4 weeks ago
Does anybody get pins and needles in their legs and feet im on
urso
and only had this since starting it 4 weeks ago
kingsnorth
in
PBC Foundation
6 years ago
alk phos climbing
I have been on
Urso
for a year and 5 months on Ocalvia and my Alk Phos is still climbing. Has anyone else experienced this?
I have been on
Urso
for a year and 5 months on Ocalvia and my Alk Phos is still climbing. Has anyone else experienced this?
happy0507
in
PBC Foundation
6 years ago
Lower tummy pains with Urso
Hi, i was diagnosed with PBC in December and i am in my 3rd week of taking
Urso
, 3 x day. For the past 2 weeks i have a bloated tummy which is tender and a painfull lower tummy. It seems to get worse after each dose of
Urso
. The last dose is the most painfull.
Hi, i was diagnosed with PBC in December and i am in my 3rd week of taking
Urso
, 3 x day. For the past 2 weeks i have a bloated tummy which is tender and a painfull lower tummy. It seems to get worse after each dose of
Urso
. The last dose is the most painfull.
pottery1
in
PBC Foundation
6 years ago
My partner has PBC, just looking for some help, advice and support
She has been taking
Urso
for around 3 years but according to the doctor this has not really had any positive effect - the PBC is apparently getting worse and there is now signs of cirrhosis on the liver, according to a recent biopsy and also to readings from blood tests.
She has been taking
Urso
for around 3 years but according to the doctor this has not really had any positive effect - the PBC is apparently getting worse and there is now signs of cirrhosis on the liver, according to a recent biopsy and also to readings from blood tests.
djws
in
PBC Foundation
6 years ago
Concerns
After a definite diagnosis 5 weeks ago of pbc and aih consultant started me on proper dose of
urso
and steroids for aih , within 24 hrs the constant muscle pains had gone as had the fatigue, I was s new woman 😄5 weeks later steroids reduced from 8 a day to 6 a day and immune suppression drug added ,
After a definite diagnosis 5 weeks ago of pbc and aih consultant started me on proper dose of
urso
and steroids for aih , within 24 hrs the constant muscle pains had gone as had the fatigue, I was s new woman 😄5 weeks later steroids reduced from 8 a day to 6 a day and immune suppression drug added ,
Louisethew
in
PBC Foundation
6 years ago
Cold again!!!!
Can I take Night Nurse tablets with
Urso
, I am tired of repeat colds this winter just paracetemol doesnt do anything, o I thought I would try these.?
Can I take Night Nurse tablets with
Urso
, I am tired of repeat colds this winter just paracetemol doesnt do anything, o I thought I would try these.?
Sandie1
in
PBC Foundation
6 years ago
1
...
28
29
30
...
69
Next page
10
20
30
40
50
60
Filter results
Clear filters
Posted in
All communities
PBC Foundation
1249 results
British Liver Trust
74 results
PBCers Organization
34 results
View top 10 communities
Sort by
Most Relevant
Newest