Newbie from Texas

[Pamela372]

Hi everyone. My name is Pamela and I have been dx as having autoimmune hepatitis/primary biliary cirrhosis in 2011 or so. I have had 3 biopsies, been put on Urso (1200mg a day) and have massive itching. I am at my wits end with this constant itching, lack of sleep and being exhausted all the time! I have a drs appt in 3 weeks and hopefully can get something better for the itching. It is so bad i wish I could roll around in a cactus patch!

[PBCCarol]

Pamela - where in Texas are you from? Are you aware of the 2018 PBC Conference being held in Houston May 17-19? It would be a great place for you to meet others. There are others attending that have both PBC and AIH and one of the speakers is on this topic. If interested go here

pbcers.org?2018PBC/conf.htm

I only have PBC.

Carol

[TomsMom4Life]

Pamela, your post is 3 months old. How are you doing? I come here to try and help my son. He has multiple conditions. Alpha 1 and PBC, and now maybe even cancer, an ulcer and a bad gallbladder. We are trying to get him on the transplant list. Wish you the best and would love to see an update.

[Pamela372 in reply to TomsMom4Life]

I will send prayers your way. It’s hard as a parent to see their child go thru things like this. Regardless of how old they are. My 10 year old was diagnosed on 3/15/17 with Type 1 diabetes and sometimes I feel like I put my care on the back burner and tend to her more. But then I can’t really do that because she needs me and I can’t be sick. We live life day to day and take it in stride. I feel pretty good. Itching is minimal, tiredness...well, I’m a mom and a work a full time job...so i don’t blame it all on PBC...

[TomsMom4Life in reply to Pamela372]

Thank you, Pamela. We are facing a hard road in this family. From my research, PBC is a difficult condition. Is a transplant an option? I wonder since that is what we are looking at and PBC is one of my son's conditions.